Journey of a special needs parents

Journey of a special needs parents A look inside special needs parenting

12/12/2024

When you know what you need, you create it.

Yes, the exhausted, sleep deprived caregiver goes and creates what she needs.

Because there is no other option.

I am a caregiver.

And in this journey I have met so many people.

People who constantly remind me to find my village.

A village with people who are like minded.

A village with people who live a similar life to ours.

I don't think I ever truly found my village.

I am a caregiver.

And in this journey I have met so many people.

People who constantly remind me to find my tribe.

A tribe with people who I can connect with.

A tribe with people who understand this life instead of judging this life.

I don't think I ever truly found my tribe.

Something to think about and maybe this only applies to me.

I am a caregiver and for this entire journey thus far I have known what I needed.

Knowing what I need was the easy part.

Obtaining what I needed was not so easy.

Until more recently in my journey of being a caregiver.

When you know what you need, you create it.

Yes, you go and create the village, the tribe, the community of all the people that will sit with you in the storm.

A few years back I was part of creating a special needs moms weekend retreat.

During the retreat everyone laughed, cried & found comfort in knowing they were not alone on this journey.

Someone asked me the other day “ Did I end up finding my village yet ?”

Truth is I didn't find my village nor did I find my tribe.

But this is something maybe no one knew.

I don't want a village.

I don't want a tribe.

I want a whole damn community.

And in this life I am a caregiver who deserves that.

I will never create a village.

I will never create a tribe.

But a community.

That is the one thing I know I need.

A community is what will get you through the best days, worst days & all the days in between.

I ended up creating a community of caregivers & it will never get better than that.
# # Journey of a special needs parent

Happiest birthday to the love of my life,, in you I have seen the Goodness of the Lord, I have laughed, cried and smiled...
16/03/2023

Happiest birthday to the love of my life,, in you I have seen the Goodness of the Lord, I have laughed, cried and smiled but all in all we shine and we smile regardless,, you’re so social and loving and I can’t be without you,, I am addicted to loving you and sharing my life with you, you’re my Joy,, boy I love you to the moon and back. Let’s Celebrate our new year in style. Lemmi do wanna do.

10/02/2023

Hello my warrior parents,, how is everyone doing??please let’s share our challenges,, we are in this together

02/11/2022

“To all the mamas who will hear the words ( Cerebra palsy, Autism, Down syndrome)for the first time this year, I need you to remember a few important things:

1. Your child will become your greatest teacher. You will watch this little person learn and master ways to adapt into fitting into a world not made for them. It will astound you.

2. The milestones. Forget about them. Your child will do all things in THEIR time. Put the books down. Stop Googling and enjoy that little baby in front of you – exactly where they are at and not where literature says they are supposed to be.

3. Your heart will break over and over again by the stereotypes held by society. It’s your job to help break down those barriers. You are now an advocate. Mama bear. Tiger Mama. You will grow to be passionate and you’ll become an expert on your child’s diagnosis.

4. Find your tribe(special needs groups). Lean on them. Love them hard. Confide in them. Cry with them. This is so important. They understand like no one else. And they need you, too.

5. It’s not all rainbows and unicorns. It can be so damn hard some days. And it’s okay to acknowledge it. The language,delay alone will break your heart over and over. But when those little lips utter the words ‘mama’ for the first time, your eyes will fill with tears. It’s like nothing else in this world. Relish in it.

6. Prepare yourself for the questions. People mean well, they really do. Ignorance is real and out there, but you will learn to grow thicker skin. You’ll learn to welcome this dialogue and encourage it in the future. Trust me on this.

7. Your child will find joy in all of life’s little pleasures. The sun on her face. A beautifully picked dandelion. Sand on her toes. Soon, you too will see the world through those rose-colored glasses. It will take your breath away and remind you of what truly is important in life.

8. Your child will connect with strangers of all walks of life. Learn from them.Pay your child’s pure love and genuine joy forward. In any way you can. Imagine how much kinder the world could be?

9. Dance

10. Take photos and go out

11. Happiness comes from within. Look deeply at your little person. See that happiness? It radiates and it looks good on you, too.

12. Lastly and most importantly, you CAN do this! You might not believe it now, but you will. The NICU stays, the weeks on end hospital stays. Sometimes the punches never stop coming it seems. But when the dust settles and the appointments wind down and you catch your breath for a moment, give yourself the grace and look at the little person before you who has endured so much but still finds the joy every day.

You’ve got this mama!

Love,
Mummy Malcolm

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Kampala

Opening Hours

Monday 09:00 - 00:02
Tuesday 09:00 - 00:00
Wednesday 09:00 - 00:00
Thursday 09:00 - 00:00
Friday 09:00 - 00:00
Saturday 09:00 - 00:00
Sunday 09:00 - 00:00

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+256702094588

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