Cure SCG

08/18/2025

Our brave Sara, living with Limb Girdle Muscular Dystrophy (LGMD), is using her art to help fund life-changing research. By supporting her paintings, you’re not just purchasing art, you’re fueling hope and standing with every child fighting LGMD. But time is muscle. Every day that passes, children with LGMD lose abilities most of us take for granted, climbing stairs, lifting their arms, walking, and even the ability to breathe. That’s why your support is needed now more than ever. Together, we can turn Sara’s art into action and transform hope into urgently needed cures 💚

🔗Shop https://curescg.org/shop
🔗Donate https://www.curescg.org/donate

07/19/2025

Behind every clinical trial are heroes. Today, we remember one. 💚

07/17/2025

Disheartening update for the LGMD community.
Sarepta Therapeutics has announced a pause on most of its gene therapy programs for LGMD as part of a strategic shift.

Read the full announcement: bit.ly/3GQo9aM

07/07/2025

Be part of the global conversation on LGMD – Register today at www.InternationalLGMDConference.com

06/09/2025

Congratulations to Atamyo Therapeutics on dosing the first patients in their groundbreaking gene therapy trial for LGMD2C/R5! A major step forward in advancing treatment for the LGMD community.

05/04/2025

04/21/2025

What an incredible and inspiring week at Abu Dhabi Global Health Week and the MENA Congress for Rare Diseases!

At CureSCG, we were proud to be part of the energy — connecting health institutions, researchers, investors, and biotech leaders to help accelerate the path toward a cure for Limb-Girdle Muscular Dystrophy (LGMD).
We were also thrilled to see our partners at Virginia Commonwealth University (VCU) share their promising gene therapy results during the congress — a major step forward in offering real hope to patients and families affected by LGMD.

A heartfelt thank you to Dr Ayman, Congress President, for his leadership and vision. Deep gratitude to Burjeel Medical City for making this important event possible, and to the Department of Health – Abu Dhabi for hosting such a powerful platform that brings together all healthcare stakeholders under one roof.
And a special shoutout to the incredible women biotech leaders in the UAE — your dedication and leadership are transforming research into real, life-changing solutions every day. It’s an honor to stand beside you in this mission.
Here’s to continued collaboration, innovation, and hope for every patient still waiting for a cure. 💙

04/15/2025

Exciting progress in the fight against Limb-Girdle Muscular Dystrophy!📣

To everyone living with LGMD and every family fighting beside them — today’s news is a step closer to answers, to treatment, to change. We’re not there yet, but we’re on the way.

04/02/2025

✨ Don’t miss the LGMD Symposium
Led by Dr. Nicholas Johnson (VCU) on Day 1 – April 17
Explore the future of gene therapy for LGMD and connect with global experts.

🎟️ Special Discounts Available!
🔹 Use SPK120 to register for just 120 AED (professionals – limited to first 100!)
🔹 Families affected by rare diseases can use FAM to attend all 4 days for only 120 AED

🔗 Register now: menararediseases.com

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03/25/2025

🚨 Join the Largest Rare Disease Event in the Region!
MENA Congress for Rare Diseases 2025
🗓️ April 17–20 | 📍 Abu Dhabi

CureSCG is proud to be the scientific partner of this historic event, bringing together 160+ speakers from around the world.

🎟️ Special Discounts Available!
🔹 Use SPK120 to register for just 120 AED (professionals – limited to first 100!)
🔹 Families affected by rare diseases can use FAM to attend all 4 days for only 120 AED

🔗 Register now: menararediseases.com

Let’s move one step closer to treatment and hope — together 💜
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03/23/2025

Thrilled to have joined forces with fellow LGMD advocates at the MDA Clinical & Scientific Conference 2025. This event was not just a meeting point, but a melting pot of ideas, dedication, and shared goals. Together, we’re energizing the fight against LGMD, fostering community ties, and paving the way for groundbreaking advancements.

03/16/2025

https://www.mdaconference.org