What is Scleroderma

12/09/2025

Friday, December 12th at 2:00 PM Eastern

Explore the Future of Scleroderma Treatment! 🔬

Join Dr. Dinesh Khanna and Dr. Monalisa Ghosh for an in-depth webinar on cell therapies in systemic sclerosis.

Learn about potential benefits, who may qualify, and where to find information on upcoming clinical trials.

Register today at https://ow.ly/FTco50Xqw3j

11/21/2025

💙 Before scleroderma, there was friendship. Later, both were diagnosed with the same disease.
Kay and Carol, former teachers, share their journey after both being diagnosed with scleroderma.
Kay and Carol, former educators, share how they’re facing scleroderma with courage and connection.
🎥 Watch their journey in this short video:

...

11/19/2025

The Chronic Crusaders crusaded to see Carol and Kay. Watch as Sheri Harworth Hicks and Carol talk about her journey with scleroderma.

Meet Carol. A fighter, advocate, and inspiration. In this Chronic Crusaders spotlight, she opens up about her journey with scleroderma and how she’s turned c...

11/18/2025

What happens when you have Carol and Sheri talk about the rainbow of Raynaud's colors.

07/01/2025

🥸Have You Taken Our Quiz Yet?
Click on the image below
👉We need your feedback! You will receive an email requesting your input. Please share your thoughts with us!
📩You'll have to provide your email address to get your results!

Dive into our exciting pop quiz, learn more about scleroderma, and put your understanding of scleroderma to the test. Are you a Scleroderma Explorer, Enthusiast, or Expert?

06/20/2025

🌞 Summer Joy Bingo is in Full Swing! 🌞
June and July are all about finding joy in the little moments, and Summer Joy Bingo: Scleroderma Edition is here to make it even better!

🎯 How to play:
-Join the private Facebook group Scleroderma Backers
-Complete as many squares as you can!
-Snap a pic of your favorite moment and share it in the comments! 📸
-Tag and invite your scleroderma friends to join in
-Blackout Challenge🏆: Complete all squares. Take a photo of your filled card and post it along with three pictures of your favorite activities in June and/or July for a chance to win a special prize! 🎁

📝 For a paper version, send me your email address at support@sclerodermabackers.com or DM me, and I will send you a printable Bingo card.
-Let’s make summer joyful and meaningful—together! ✨

06/16/2025

🚨 Reminder! 🚨
The wait is almost over—Sheri’s Scleroderma Session is happening tomorrow!
✅ Tuesday, June 17th
✅ 6:30 PM ET on Zoom
✅ Featuring Andrew Buttieri Botieri Helene Golston and Barbara Butorovich
Don't miss this chance to hear powerful stories and connect with others who truly understand. See you there!
Join the Scleroderma Backers for the Zoom link.

06/15/2025

🎉 Meet The Guest Speakers🎉
Join us on June 17th at 6:30 PM ET, featuring powerful journeys, advocates, and changemakers.
📚 Andrew Buttieri Botieri has written a book
🥳Helene Golston and Barbara Butorovich run thriving Facebook communities - Adapting to Scleroderma and Thriving with Scleroderma
Their stories will educate, uplift, and empower—so don’t miss out!
🔗 Zoom link posted on Monday and Tuesday in the Scleroderma Backers group. Join to get the link. You don't have to turn on your camera.
📧Comment or DM me your email address for a reminder.

06/13/2025

🔵 The countdown begins! 🔵
We’re 5 days away from an inspiring Scleroderma Session on Tuesday, June 17th at 6:30 PM ET on Zoom!
👉This special event will highlight incredible scleroderma warriors who amplify awareness through a book and thriving Facebook communities.
📅 Mark your calendar, spread the word, and get ready to be inspired!
🔗Zoom Link will be posted the day of the event. You don't have to turn on your camera.
📧Send me your email address if you would like a reminder or to invite those not on Facebook. Helene Golston Andrew Buttieri Botieri Thriving with Scleroderma Adapting to Scleroderma Barbara Butorovich

06/12/2025

🌟 Exciting Announcement! 🌟
🎉Our mystery guests have been revealed! 🎉
Join us for Sheri’s Scleroderma Session on Tuesday, June 17th at 6:30 PM ET on Zoom.
🎉We’re celebrating Scleroderma Awareness Month by highlighting our incredible scleroderma warriors.
📚 They’ve written a book
💙 They lead thriving Facebook communities
Who are they? Meet Helene, Barbara, and Andrew, inspiring voices that are making a difference in the scleroderma community!
😪Don't miss this chance to hear their stories, learn from their experiences, and connect with others who truly understand.
Join us on Zoom and be part of the conversation.
🔗 Join Scleroderma Backers for the Zoom invite.

06/11/2025

👀Are you a care partner or caregiver? If so, I invite you to take part in an interview for the University of Michigan Scleroderma Program.

What’s involved? We are conducting one-on-one Zoom interviews to better understand the experiences, challenges, and needs of people living with scleroderma and other rare diseases. Your insights will help shape initiatives that truly make a difference.

The conversation will last approximately 45 minutes, and with your permission, will be recorded.

Your voice matters. Thank you for considering this opportunity to share your perspective. Comment below or DM me, and we will reach out.