Ellasyn's Journey with McCune Albright Syndrome/PFD

Ellasyn's Journey with McCune Albright Syndrome/PFD Ellasyn was born with a rare genetic disorder called McCune-Albright Syndrome. Unfortunately, Ellasyn has all 4! They are from Appleton, WI.

There are 4 aspects to this disorder and to be diagnosed, you have to have at least 2. Please help share her page and watch for updates!!! Ellasyn is the daughter of James Berry and Leah Suprise. She is a wonderful little girl and has one of the biggest hearts!! She struggles through everyday life and never complains. Please share....she deserves it!! She has to go through life making sure to be careful so not to break a bone which can happen way too easily. She has bones that are very porous. http://www.nlm.nih.gov/medlineplus/ency/article/001217.htm

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Appleton, WI

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