05/22/2026
We are beyond proud of the Every 100th Heart team for organizing and leading the first-ever National Congenital Heart Disease Advocacy Summit in Washington, D.C. 🫀🗣️
Patients, families, clinicians, researchers and advocates came together to build advocacy skills and strengthen connections across the CHD community. These changemakers headed to Capitol Hill to meet directly with policymakers and advocate for increased funding, research and support that will drive progress for those impacted by CHD.
Special shoutout to our CURA team members for powering this summit and helping it run smoothly: Scott Leezer, Sarah Whitworth, Emily Crouch, Patrick Meade, Maddie Helmus and Courtney Corrado.