Georgia EDS & Hypermobility Network

03/16/2025

Enjoy!

09/03/2024

You can donate to keep our services to over 1500 EDSers free! See the link below of our Nonprofit funding source the Wellspring Corporation .

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04/13/2024

Early responders to zilucoplan, the newly approved medication for myasthenia gravis have sustained benefit for up to 60 weeks, new analyses show.

11/21/2023

We are pleased to launch our fundraising store on Bonfire, featuring shirts with original designs created by members of our community! Funds will maintain/expand our nonprofit peer support community for Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorder (HSD) patients in Georgia. Read more about our cause, organization, and goals at the store!

👚Link to store: https://www.bonfire.com/store/ga-eds/ 👕

· Please share to spread awareness! You don’t have to be a member or have EDS/HSD to wear our shirts and support our cause. We appreciate you all!

· Each design comes in 9 shirt styles in 5 different colors per style. Options VARY—make sure to check them all out! We tried to cover as many options as possible. (Alas, we don’t get to set the prices!) 👉See the comments for an infographic if you need help navigating the options!

· Per the artists’ preference, there may be a crest option added for #4 later on.

· For your holiday shopping convenience, we are making all designs print-on-demand; they will print and ship as soon as you order them! After the New Year, we will switch to batch printing, as it is more economical; all orders of a particular design will print and ship at once after accumulating for two weeks.

· We’d love to see the shirts folks order and hear how you like them! Feel free to post pictures and reviews on this thread. If you’ve previously ordered from Bonfire, we’d also love to hear your tips on styles and sizing!

Our community provides compassionate and medically accurate support for patients with EDS and HSD in the state of Georgia.

10/26/2023

The autonomic nervous system (ANS) regulates involuntary functions of the body that we do not consciously think about, such as heart rate, digestion, and breathing. The ANS includes the sympathetic nervous system, which stimulates the body's "fight or flight" response, and the parasympathetic nervous system which stimulates the body's "rest and digest" responses needed to restore energy and rest the body. People living with various forms of can have trouble regulating one or both of these systems, causing a variety of symptoms such as lightheadedness, fainting, unstable blood pressure, abnormal heart rates, gastrointestinal dysmotility, sweating abnormalities and much more. Learn more: bit.ly/WhatisDys

10/06/2023

08/30/2023