Emory Adult Cystic Fibrosis Program

02/16/2022

Are you or a loved one with cystic fibrosis living with advanced CF lung disease or navigating the transplant journey? Join us February 24 for NextBreath, a free, online event for people with CF, family members, and caregivers age 16 and older to find support and have conversations with people going through similar experiences.

Have candid conversations during small group discussions about overall well-being and personal experiences of life with advanced CF lung disease, considering a transplant, preparing for a transplant, or life post-transplant.

Save your seat today: https://on.cff.org/NextBreath

10/18/2021

*** There is still time to register for the Dr Daniel B Caplan Family Science Event!! Don’t miss out on this amazing learning opportunity!! ***

06/23/2021

Happy Birthday celebration and farewell (for now) dinner for our clinical pharmacist Erin Wei- Thank you Erin for your many wonderful contributions to the Emory CF program!

06/10/2021

Join us for (virtual) CF Education Day on 6/19!

04/23/2021

If you missed it Tuesday night, here’s your chance to hear the honest stories of courage from an incredible panel of individuals.

04/16/2021

Join us for a long overdue conversation about Mental Heath as it relates to cystic fibrosis.

No mater your connection to CF, this Community Event is for YOU!

Panelists include:
Meg Lindsay- New CF Mom
Erin Sprinkle- Experienced CF Mom
Caroline Starnes- CF Adult
Andy Lipman- CF Adult

Click below to register for this event!
https://afasignup.formstack.com/forms/mental_health_in_cf_community_event

08/24/2020

🚌 The kids are back in school, and routines are back on track⏰ which means it is time to kick off the Fall Virtual Event's Calendar! 📅

We have an exciting lineup of events that include:
- Parent's and Grandparent's Roundtables!
- Community Events with special guests like Dr. Arlene Stecenko with Emory University! 👩‍🔬
- Fun happy hours for CF Adults! 🍻
- And so much more!

We have something for everyone! Mark your calendars and lookout for more information in the weeks to come!

08/07/2020

Share Your Thoughts: CFF Mental Health Research Priority Survey

The CF Foundation and the Mental Health Advisory Committee are deploying a broad survey to identify research priorities in mental health for the people with CF and their caregivers. Results of the survey will help guide the CFF in funding decisions based on priorities identified by the entire CF community.

It is important that the CFF hears your input! If you are interested in participating in this opportunity, please click here take the 10-minute, anonymous survey by Monday, August 17th at 11:59 p.m., ET.

Take this Community Voice survey on mental health research.

08/05/2020

Were you a patient of Dr. Caplan?

🐢🐢🐢Were you a patient of Dr Caplan’s? In order to recognize Dr Caplan’s impact on CF patients’ and families’ lives and to share this impact with his family and friends, we are asking anyone interested to submit a short 20-30 second video to us for a special compilation. Please share your most special memories about Dr Caplan with short phrases or even just 3 words defining how much he meant to you. Once we have received submissions, we hope to have the compilation completed by the end of September. Please submit your videos to Caplanvideo@gmail.com. Include your name, return email, and phone number with your submission. Videos should be HD. Deadline for submissions is August 21st. We look forward to hearing from you all and sharing in these special memories.🐢🐢🐢

05/21/2020

05/14/2020

These last few months have caused uncertainty for everyone. Join us Wednesday, May 20, at 7 p.m. ET to learn helpful tools from mental health professionals Stephanie Filigno and Shaina Blair for navigating uncertainty, managing dilemmas, and "living in the grey," as we move forward together. Katie Fielding, an adult living with cystic fibrosis, will moderate the discussion.

Register today, and share your source of uncertainty, struggle, or dilemma for consideration to be discussed during the event. https://on.cff.org/navigatinguncertainty

05/12/2020

Check out this upcoming CFF Virtual Event next week, May 20, 7 p.m. ET!

Navigating Uncertainty- Mental health professionals will discuss tools for navigating uncertainty, managing dilemmas, and "living in the gray" as we move forward together.

Register here: