Robyn’s Kidney Kapers

Robyn’s Kidney Kapers I was diagnosed with PKD in 2011. I received a new kidney gift in 2021!

The Saga of my Dialysis Access.
08/23/2025

The Saga of my Dialysis Access.

My dialysis access decided it didn't want to play anymore.

I love hearing about progress in medicine!
06/08/2025

I love hearing about progress in medicine!

From the latest edition of KidneyTalk - Learn from Dr. Villicana, "New Developments in Kidney Transplantation"
https://ow.ly/YVjt50VXixL

https://www.youtube.com/watch?v=8Aslsoq-zyQ
04/27/2025

https://www.youtube.com/watch?v=8Aslsoq-zyQ

Is it possible to die without pain? In this video, I talk about one of the most peaceful ways to die—end stage kidney disease. Many people fear pain in death...

Interesting read!
04/09/2025

Interesting read!

Positive Topline Data from the Fourth Cohort of Patients Consistent demonstration of polycystin (PC) biomarker impact confirming 300 mg fixed dose selection to...

From superficial blood clot to aneurysmal proximal L BC AVF with small pustule. They can't ligate this mess until the an...
01/11/2025

From superficial blood clot to aneurysmal proximal L BC AVF with small pustule. They can't ligate this mess until the aneurysmal section is relieved by the surrounding veins. It's a slow process for sure.

The picture on the top right is what my AVF usually looks like. A couple of days after I hit it on the dryer, it looked like the picture on the top left, and it developed the SBC. The weird red dot showed up mid-December.

It kept growing, so I went BACK to the ER and they lanced it. Scary thing to do to the top of an AVF! The top of my vein is less than .5mm from my epidermis. LESS THAN HALF A MILLIMETER! 😱

So this is a good time to remind people that a kidney transplant is NOT a cure. It's a treatment that can involve a lot of side effects. Just go with the flow and advocate for yourself with your healthcare! All of the medical professionals here have been so good to me 💚

GOD is GREAT!!

I'm forever grateful 🥰
01/11/2025

I'm forever grateful 🥰

Today is International Thank You Day! Thank you to organ, eye and tissue donors and donor families for your generosity. You save and heal so many lives each year. Thank you to donation and transplantation professionals for your incredible dedication and collaboration! 💙💚

12/10/2024

My doctor says a living donor is needed because it is best, and because the deceased donor kidney transplant waiting list is extremely long. I hope to see my small grandchildren grow up. That is why I am reaching out to you, praying that you would consider blessing me by donating a kidney.

https://avenumedical.com/ellipsys/
12/06/2024

https://avenumedical.com/ellipsys/

The Ellipsys® Vascular Access System provides a groundbreaking, minimally invasive and cost effective method to create a percutaneous arteriovenous (AV) fistula for hemodialysis access in patients with End-Stage Renal Disease.

Today is my 3rd Kidney Transplant Anniversary!!😍Thank you, God--for giving me a second chance at life! ✝️💟
11/25/2024

Today is my 3rd Kidney Transplant Anniversary!!😍
Thank you, God--for giving me a second chance at life! ✝️💟

💕
11/23/2024

💕

Are you or someone you know exploring the possibility of a kidney transplant? You can download, print and share this infographic with tips to help you navigate the process more easily. https://ow.ly/UsI850Uaj1t

Address

Auburn, ME

Website

Alerts

Be the first to know and let us send you an email when Robyn’s Kidney Kapers posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram