Katie Did Cancer

Katie Did Cancer Hi, I’m Katie. Thanks for being here.

I’m navigating a rare cancer called PEComa and documenting this side quest as it unfolds as honestly and openly as I can.

“KatieDid” is a nickname my grandparents gave me and one day, I'll say "I did cancer."

I told Zack this morning that my body felt like a Shel Silverstein poem. That thought inspired me to create this poem wi...
05/12/2026

I told Zack this morning that my body felt like a Shel Silverstein poem.

That thought inspired me to create this poem with AI’s help. Please enjoy. I hope you chuckle, nod, and tear up a bit like I did.

There once was a woman named Me,
Who fought Tiny Monsters intravenously.
They said, “You’ll feel weird.”
I said, “That’s fine.”
Now my body’s a haunted CVS pharmacy.

My right eye grew a stye named Lou,
Who blinked and puffed and oozed a goo.
He sits there all smug
Like a cranky bedbug
Saying, “Girl, I live here now too.”

My mouth grew sores by the score by the set,
So tomatoes and salsa are mortal threats.
I tried eating chips—
Set fire to my lips—
Now yogurt’s as wild as it gets.

Chocolate tastes WRONG.
Takeout tastes BAD.
The tacos I worshipped now make me sad.
My tongue says, “No spice!”
My stomach says, “Rice.”
My soul says, “This timeline is cursed and mad.”

My skin flakes off no matter the cream,
Like a snow globe powered by broken dreams.
I moisturize daily,
But still I look scaly—
A lizard who wandered out of a meme.

And itchy? Oh buddy, you have no clue.
I scratch random sores like a mangy canoe.
One scab on my shoulder,
Two bites on my thigh—
And something mysterious growing near my shoe.

My bruises appear from invisible crimes.
I bump into air and stay purple for times.
A table walks by?
I’m black-blue by July.
My veins hold eternal grudges and signs.

My nose sometimes bleeds just to spice up the day.
Green mucus on Tuesday. Yellow by May.
My body’s producing
New textures and hues and—
Frankly, I’ve stopped asking why things decay.

My hair packed its bags and quietly fled,
Except peach fuzz survived like determined bread mold instead.
The dark strands said, “Peace.”
The fuzz said, “Increase.”
Now I’m part baby bird, part haunted egghead.

My clothes hang like curtains.
My belt’s too enormous.
My butt disappeared without warning or chorus.
My muscles moved out.
No forwarding route.
My jeans look emotionally distant and foreign.

My ears itch inside, dry as the moon,
Though usually wax shows up every afternoon.
Now they’re crunchy and bleak
Like an abandoned creek
Where moisture got evicted too soon.

Some nights I can’t sleep at all in my bed,
While stressful dreams throw full parades in my head.
I wake up confused,
Emotionally bruised,
With anxiety tap-dancing near where I dread.

My neck and chest tighten from stress and fatigue,
While my brain fog rolls in dense as the sea.
I forget what I’m saying
While actively saying—
Then stare at the fridge like it owes me a key.

I’m hot. Then I’m cold. Then I’m lava. Then sleet.
My joints creak like pirates with each little beat.
I worked out “lightly” once—
A terrible choice—
Now my thighs file complaints when I stand on my feet.

My potassium’s low.
My enzymes are high.
My liver’s reviewing my choices nearby.
My blood counts are funky—
Both red cells and white—
My immune system’s basically “thoughts and goodbyes.”

There’s a port in my chest underneath all my skin,
Like a weird little robot installed from within.
Sometimes I poke it
To make sure it’s real—
Then immediately wish I had not checked again.

Labs every week.
Appointments galore.
People keep asking what vein they’re for.
I chew ice at infusion
For mouth sore prevention—
The mouth sores said, “Cute. We’d like seven more.”

I’m nauseous sometimes.
Not hungry at all.
Then suddenly starving for pickles and salt.
I force myself eating
Like it’s homework assigned
By a tiny nutritionist goblin at fault.

Sometimes vertigo spins me around like a ride,
And I wobble dramatically side to side.
I walk through the hallway
Like a pirate on gravy
While pretending my dignity hasn’t yet died.

I’ve got a long scar from my belly down low,
A roadmap of places I never would go.
A reminder my body
Went fully to battle—
Though honestly… damn, it survived quite a show.

Some days I feel hopeful.
Some days I feel numb.
Some days every feeling arrives all at once.
Depression drops by,
Then gratitude too—
Then rage because apples suddenly taste dumb.

And strangest of all in this odd in-between
Is watching the world stay relentlessly seen.
People buy patio sets.
Have meetings. Fold laundry.
While I sit contemplating what “living” might mean.

But somewhere beneath all the itching and ache,
The fog and the fear and the sleep that won’t take,
There’s still someone in here
Who laughs at the chaos—
Who says, “Well… this body’s dramatic, for heaven’s sake.”

But even through all of the poking and pain,
The weirdness and worry that rattle my brain,
Something surprising
Keeps showing up softly
Again and again and again.

Friends send messages. Family calls near.
Strangers hold doors and are strangely sincere.
People bring soup.
People bring flowers.
People say, “Thinking of you, dear.”

And somehow the world still keeps offering things—
Warm golden sunlight and soft drizzling springs.
The smell after rainfall.
A breeze through the trees.
Tiny miraculous everyday things.

My Pomeranian curls by my side,
A warm little cloud with his paws tucked inside.
His soft fuzzy chest,
His sleepy small sighs—
A heartbeat reminding me life hasn’t lied.

And even though salsa betrayed me this year,
There are new foods appearing that taste bright and clear.
Fresh herbs and broths,
Warm roasted garlic,
Little discoveries bringing back cheer.

Outside in the garden the butterflies roam,
While beetles and bees carry on with their own.
The birds still sing loudly.
The flowers still bloom.
The earth keeps whispering, “You’re still home.”

And maybe that’s all any of us can do—
Keep finding small beautiful moments to move through.
A laugh. A warm drink.
A hand reaching out.
A body still trying its best to pull through.

So yes, I am tired.
And yes, this is hard.
And yes, some days leave me completely charred.
But somewhere beneath
All the chaos and fear…

There is still softness.
Still wonder.
Still heart.

04/13/2026

GoFundMe: https://www.gofundme.com/f/support-katies-healing-journey-with-pecoma

Hi, I’m Megan, one of Katie’s close friends.

As Katie has shared her journey with you recently, you might be wondering how you can support her.

There are many ways to show up for Katie, and one of those ways is financially.

Right now, she’s navigating a lot of treatments, appointments, and ongoing care that aren’t always fully covered. And personally, I just don’t think someone should have to carry financial stress while going through something this heavy.

I decided to set up a GoFundMe page so she can focus fully on healing, without that added weight.

If you’re able to support her financially, you can visit the GoFundMe page linked in her bio.

And if you’re not in a position to give, that’s completely okay; sharing this page is just as powerful.

04/03/2026

Here's a bit of insight into how I got here.

It began in Tahiti (yes, the French Polynesian island) around February 2024. The fibroid and potentially cancer could have been there longer, but lying on the hammock in our bungalow was the moment I realized something was off.

Insurance is really frustrating. I got a quick insight that I had a fibroid growing in my uterus. Fibroids are (unfortunately) quite common among women, and there isn't enough research on this. We need more time and energy for women's health.

After months of resolving my insurance issue and working around my financial limitations, we finally got some medical support. I got a Uterine Fibroid Embolization (UFE) done in August of 2025 to help shrink the fibroid. My plan was to get a hysterectomy if it didn't work. If you know me, I try to go the natural route as much as I can before going fully conventional.

The procedure seemed to work. My symptoms were improving, and I was feeling optimistic.

Then, the Monday before Thanksgiving, I was admitted to the hospital (that's another story for another day). Through that, imaging showed something strange with my lungs, and we did more tests. On December 18, 2025, I found out that my fibroid had shrunk, but another one had grown so fast. The mass was cancer.

It explained the unbearable pain. Even fentanyl (in the hospital) barely helped.

On December 19, I had an emergency hysterectomy. They took out everything, including the ovaries, due to the risk of cancer growing back. I wanted to keep my ovaries for my own health reasons, but... this is a new reality I need to live with.

I am grateful for the surgery. Honestly, I should have done it years ago. But it is what it is... I told Zack, what if I had the hysterectomy before, and the cancer started somewhere I couldn't remove? Maybe delaying the hysterectomy saved my life. Maybe it's the reason the cancer grew. We will never know, and we've made peace with it.

At the encouragement of community members, I sought a second opinion from MD Anderson, which has a department specializing in sarcomas. PEComa, what I have, is a form of sarcoma cancer. They gave me a second, stronger diagnosis. Since they are more well-versed in PEComa, they were able to tell my oncology team at UT Austin Health that it's PEComa and not leiomyosarcoma as originally thought.

My entire oncology team is amazing. I am grateful to the local team and the MD Anderson team in Houston for being with me through this process.

And here we are. More to come... of course.

This was my view during my first   treatment for  , a form of     late January. (My favorite part of this moment was hav...
03/23/2026

This was my view during my first treatment for , a form of late January. (My favorite part of this moment was having Zack right next to me.)

Not exactly where I imagined I’d be… but here we are.

As I move through treatment, I’m going to do my best to share what this actually looks like… the process, the decisions, the research, the ups, the hard days… all of it. Not just for me, but for anyone who might need it now or someday.

If you’re curious about anything, please ask. Truly.

Nothing is off-limits. No question is too morbid, too awkward, or too “rude.” I’d rather we talk about it than pretend it’s not happening.

We’re in this together 🤍🤟

03/22/2026

I made a decision to create a separate account for this journey, and I want to explain why.

This experience deserves space.

Space to be honest, messy, uncertain, and real… without feeling like I have to filter it into my everyday life or fit it into the version of me people already know.

I didn’t want cancer to become my entire identity, but I also didn’t want to hide it.

So this account is where both can exist.

The name “KatieDidCancer” comes from something really meaningful to me.

My grandparents used to call me “KatieDid,” after the katydid bug. It’s one of those small, simple things that carries a lot of love and memory, especially from time spent with them on their shrimp boat named "KatieDid."

And the word “did”… that’s on purpose.

Because I don’t plan to stay in this chapter forever.

One day, I want to look back and say:
I did cancer.
And I moved through it.

That’s what this space is for.

If you’re someone who wants to understand more of what I’m navigating, I’ve put together a document that shares addition...
03/21/2026

If you’re someone who wants to understand more of what I’m navigating, I’ve put together a document that shares additional details.

https://docs.google.com/document/d/14VkNdWVm_9rKIagRrVj19U8Gp4bEn-6qOEUsOMKXlyk/edit?usp=sharing

This includes more context around my diagnosis, what I’ve learned so far, and what this journey currently looks like for me.

There’s absolutely no expectation to read it. This is just here for those who are curious, want to learn, or feel more comfortable having a deeper understanding.

03/21/2026

Today I’m sharing something I never expected to say out loud.

I’ve been diagnosed with a rare cancer called PEComa.

Most people have never heard of it; I hadn’t either. It’s a type of tumor that develops in soft tissue, and because it’s so rare, there’s still a lot that doctors are learning about it.

This isn’t a “perfectly put together” story. It’s real, it’s unfolding, and I’m sharing it in real time.

If you’re here to learn, to support, or because you’re going through something of your own... you’re not alone.

Thanks for being here with me. 🤍

Address

Austin, TX

Website

https://www.instagram.com/katiedidcancer/, https:

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