Pandas Awareness TX

23/09/2025

💚 There is still a short window of time remaining to order a T-shirt with delivery in time for PANS PANDAS Awareness Day at the Capitol on October 9th! This is our community’s opportunity to demonstrate courage through advocacy. Wear green or grab a shirt, and join us at the Capitol in Austin!

https://www.bonfire.com/panspandas-awareness-day-2025/?fbclid=IwdGRleANADHRleHRuA2FlbQIxMQABHqGAQSMcDLB8keZ-7jele24M8YBOuHmaMFNcx2P68l52LdioXm0t26u1s-Hw_aem_ONpV2KhK1V23M-0haYsBHg

13/09/2025

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In addition to attending PANS PANDAS Awareness Day at the Capitol on October 9th, it is time to reach out to your Texas state legislators and invite them to join us!

We meet at the Capitol because our goal as a community is to advocate for legislation that will ensure access to timely and effective treatment for PANS PANDAS. This happens when we partner with legislators who care.

This post is designed to provide you with the information needed to begin a relationship with your Texas House Representative and Senator through email contact, phone calls and even face to face meetings to share your family’s journey and the needs of our community as a whole.

Our strategy leading up to October 9th is to begin communication with a personal email invitation to join us at the Capitol. Second, follow the email up with a phone call to your legislators with a request to speak with the staffer who handles health matters for their office. We will have a designated block of time at the beginning of our event to visit legislators in person and invite them to attend again.

You can begin by looking up your Texas House Representative and Senator at: https://wrm.capitol.texas.gov/home (Note that you do NOT want to contact your US Congress members for this event.)
Refer to the second and third lines showing your Texas State Representative and Texas State Senator.
You can email them at:
Firstname.Lastname@house.texas.gov for State House Representative
Firstname.Lastname@senate.texas.gov for State Senator
You can also follow the links to their government web pages where you will find information on the key issues they focus on.

Follow the link below to find example templates to use when drafting a letter and when calling to speak with your Representative and Senator. Most importantly, please use them as a starting point and personalize them, focusing on the issues that are most important to you individually.

https://drive.google.com/drive/folders/1PFF10OwQQ7eWxKz2dE4di598cWPrhzmr?usp=share_link

💚Every person’s story matters and when we speak out on behalf of ourselves and one another we will make progress toward our goals.

See you on October 9th!

08/09/2025

PANS PANDAS Awareness Day at the Capitol is fast approaching and this year we have multiple new additions to this important event!

💚 Please register at the following link to confirm your attendance and let us know if you would consider sharing your story, be interested in volunteering at the event or open to attending an informal family-friendly social gathering and dinner the night before:

https://docs.google.com/forms/d/e/1FAIpQLSePlwB5PR6MRCDv-rVMxDw5Zc5g0b_yUYi6GfrbtS9AMgq8bQ/viewform?usp=sharing&ouid=111988820198036206355

💚 A hotel block has been secured with discounted room rates and valet parking plus breakfast vouchers for each guest at the Hilton Garden Inn within walking distance of the Capitol. The group code for anyone who prefers to book over the phone is PANDAS:

https://www.hilton.com/en/book/reservation/rooms/?ctyhocn=AUSAUGI&arrivalDate=2025-10-08&departureDate=2025-10-09&groupCode=PANDAS&room1NumAdults=1&cid=OM%2CWW%2CHILTONLINK%2CEN%2CDirectLink

💚PANDAS Awareness TX has a new (optional) T-shirt fundraiser available at the following link with multiple styles and colors to choose from. The sale of each shirt contributes to the mission of raising awareness and supporting families.

https://www.bonfire.com/panspandas-awareness-day-2025/

💚 Stay tuned for information on how to contact your legislators and invite them to attend!

22/01/2025

Family, friends, and supporters, of PANS/PANDAS families across Texas, we need your help!! PANDAS Awareness Texas promotes awareness and advocacy on behalf of all PANS and PANDAS families throughout Texas through media awareness campaigns and awareness events such as the OCTOBER 9th PANS/PANDAS Awareness Day at the Capitol each year. As Director, we need financial support to continue to share our message on K*T, K*TX, and NPR. Can you afford $20, $50, $100 or more to support us in our awareness campaign?

Please go to GiveSendGo and share a prayer and/or financial support for PANDAS awareness throughout Texas and share this post with friends on Facebook. THANK YOU SO MUCH!! It means SO MUCH to so many of our families struggling daily with this devastating disorder 💚💚💚

Dear Supporters of PANS/PANDAS Families,I’m writing to you on the behalf of the Texas leaders of PANS/PANDAS Awareness Texas.We're excited to announce that P...

05/11/2024

"There is hope!"
Please listen to Kelley Siliven's journey of healing and advocating for others 💚💚💚

05/11/2024

"I Am Living My best Life!" Please listen to Amy Urbanovsky tell her journey about her daughter's incredible positivity in the face of a serious diagnosis of PANDAS.

Even when you're weak, BE STRONG and courageous and advocate for your children! It's the most important job you have and can make a world of difference! 💚💚💚

05/11/2024

"Imagine Watching Your Child Suffer for 138 Days. We Must Get More Support for Our PANDAS Children" Please listen to Stacy Zwerneman's journey for diagnosis, support, and services for her PANDAS family 💚💚💚

05/11/2024

"Challenges With The Healthcare System" Please listen to Ashley Berner's journey and search of treatments for her family. Please consider how you can raise awareness and support families gain access to the healthcare that they desperately need!💚💚💚