Foundation for Angelman Syndrome Therapeutics

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Foundation for Angelman Syndrome Therapeutics

FAST is the leading patient advocacy organization working to cure Angelman syndrome. We are based in the USA with 9 global chapters around the world.
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Page Rules:
Thank you for your interest in the Foundation for Angelman Syndrome Therapeutics (FAST). FAST was founded with a single, critical mission: to cure Angelman syndrome. The organization, founded in 2008, is the largest non-governmental funder of Angelman syndrome research, and today has a global presence. We designed this page as a platform to share research, resources, and information to our Angelman syndrome community and those interested in supporting our mission to cure AS. We have outlined community guidelines to ensure that conversations remain respectful and are aligned to Facebook’s official terms of use and community standards. FAST reserves the right to modify the guidelines, if needed. Your acceptance of these terms is made by the use of this page. To ensure that this page remains a positive resource, we have developed the following page rules. These rules are guidelines for comments on our page, and we reserve the right to delete any comments or threads that violate these rules:

1. Be kind and courteous. We're all in this together to create a positive, informative, and respectful environment. Healthy debates are natural, but kindness is required.

2. No disrespectful comments. Bullying of any kind isn't allowed and degrading comments will not be tolerated. Do not post profane, defamatory, offensive or violent language.

3. Do not share personal and private information. This is a public page and information that is shared will be publicly accessible.

4. No advertising. Don’t use this page for advertising your or someone else’s business, page or website.

5. Do not disclose confidential, nonpublic or proprietary business information that may compromise the confidentiality and security of FAST or any other person or company.

6. Do not post attacks or negative comments regarding groups. Any comments meant to harass, disparage, threaten or abuse an individual will be removed. FAST will do its best to respond to any questions or concerns in a timely fashion; however, at times, FAST may choose to respond privately or not to respond at all.

11/22/2025

What began as one family’s search for hope has become a movement. Through Maddie’s Mission, Laura and Patrick Sargent have turned heartbreak into action—rallying their Kansas City community and raising over $1 million in just four years for Angelman syndrome research and care.

Each year’s block party ends with a father–daughter dance that reminds us all what this mission is really about: love, hope, and a future full of possibility.

Read more: https://buff.ly/b7M5dz2

11/20/2025

Grace and Dave ride for their son Jack—and for every family impacted by Angelman syndrome. What started as a search for answers turned into a journey of community, strength, and hope.

Together with their friend Colby, the Jack Pack took on the 207-mile LoToJa race and raised over $23,000 for FAST to help fuel life-changing research. Every mile, every dollar, and every show of support brings us all closer to a brighter future.

Read more: https://buff.ly/9ROtznq

11/19/2025

Whether you joined us in Orlando or couldn't be there this time, the 2025 FAST Global Science Summit & Gala was a powerful weekend of science, connection, and hope.

Catch up or re-watch the 2025 Global Science Summit presentations on our YouTube channel!

📺 Watch Now: https://buff.ly/RlDKlGE

English not your preferred language? Turn on captions on the video - instructions here: https://buff.ly/b6C4bOi

11/18/2025

Angelman syndrome is in the national spotlight on a Behind the Mystery segment on Lifetime’s longest-running morning show The Balancing Act.

This new episode weaves together powerful stories from two families living with Angelman syndrome and perspectives from advocacy, industry, and science. Featuring leaders from FAST, Angelman Syndrome Foundation, and Ionis Pharmaceuticals, the segment drives home the urgent need for progress in research and treatments.

📺 Tune in Wednesday, November 19 at 7:30 AM ET and Thursday, November 27 at 7:30 AM ET on Lifetime to watch.

Behind the Mystery, featured on Lifetime’s longest-running morning show The Balancing Act, returns with an episode that explores life with Angelman syndrome through the voices of two families, a physician, an Ionis employee, and an advocate who each share their personal perspectives and experiences.

Tune in Wednesday, November 19 at 7:30 AM ET on Lifetime to watch this powerful new story unfold.

11/16/2025

Families living with Angelman syndrome are often told to “wait and see.” Dr. Allyson Berent’s story is about what happens when you refuse to just wait.

In this piece, she shares what it takes to change the future of a rare disease like AS, why gene therapy is such an important opportunity for people living with AS, and what must change so future treatments actually reach families.

If you need a reminder that your loved ones are not forgotten, start here. 💙

For Dr. Allyson Berent, science and motherhood collided the day her daughter was diagnosed with Angelman syndrome. Today, as Chief Science Officer at the Foundation for Angelman Syndrome Therapeutics (FAST), she’s turning that urgency into progress, advancing the first gene therapy programs for An...

11/15/2025

Today is International 15q Day.

We’re thinking about every family affected by changes in the q11–q13 region of chromosome 15, including Angelman syndrome, Prader-Willi syndrome, and Dup15q syndrome.

FAST focuses every day on Angelman syndrome, but our work is connected to the broader 15q community. Together with partners like the Angelman Syndrome Foundation, The Foundation for Prader-Willi Research, and the Dup15q Alliance, we’re supporting efforts to:

• Improve and speed up diagnosis for 15q conditions
• Build stronger clinical and research networks
• Move toward better treatment options for all our families

Sending love to every 15q family today.💙

11/15/2025

🏌️‍♂️ Swing into action at the annual Hole Out Fore Heath Golf Tournament—happening Saturday, November 22 in New Smyrna Beach, FL at Hidden Lakes Golf Club.

Tee up with hosts Ian and Lisa Hoffman and the Heath’s Heroes community for an unforgettable day on the course, all to benefit FAST and honor Heath, who lives with AS.

⏰ Spots are filling fast—register to play or lock in your sponsorship today!Head to our bio for all the details!

Learn more: https://buff.ly/FL80R9B

11/13/2025

Today is Genetic Counselor Appreciation Day, and we’re proud to spotlight Niki Armstrong, MS, CGC, our Vice President of Genetic Services & Education at FAST. With over 20 years supporting families living with rare conditions, she leads our efforts to make complex genetics, research and clinical-trials information clear and usable.

For families in the U.S., Niki offers one-on-one sessions to help you understand Angelman syndrome genetics/genotypes and how research and clinical trials work so you can ask informed questions and make decisions with your medical team.

📅 Book a session today: https://cureangelman.org/angelman-syndrome-genetic-counseling

11/09/2025

💙 What an inspiring weekend filled with honoring individuals around the world living with Angelman syndrome and being in a community of those who are fighting for a better future for them. The weekend closed out with the FAST Gala, our biggest fundraiser of the year, and the opportunity for the community to enjoy an evening, together.

We climb this mountain together through the peaks and valleys and we paid tribute to our journey through this year’s FAST Gala Video.

Watch here:

An annual event to celebrate the community and honor those living with Angelman syndrome.

11/08/2025

It's a wrap! Today’s focus at the Global Science Summit was updates on investigational clinical trials for Angelman syndrome.

We had speakers from 6 different industry partners as well as updates on therapeutic programs in the Angelman syndrome Drug Development Pipeline.

Take a deep dive into the pipeline to better understand all of the “shots on goal” for Angelman syndrome and to help make informed decisions for your loved one. cureangelman.org/current-pipeline

11/08/2025

One day. Maximum impact.

Today is FAST’s Day of Giving. When you give today, your gift helps FAST say yes to time-sensitive projects now, not months from now.

Let’s meet the urgency families live with every day. Big or small, your gift counts toward moving research forward, faster.

Thank you for standing with families, researchers, and advocates. Add your gift now so we can say yes now: https://bit.ly/4nCJx2r

11/07/2025

This year’s global science summit kicked off today with breakfast and basics, followed by lunch and legislation, and the participants are currently listening to translational research updates.

This evening, the community will have the opportunity to dive deep into science talking 1:1 with researchers during the poster reception.

"This is about turning complex science into helpful information so you can move forward with confidence," said Dr. Allyson Berent, FAST's chief science officer. "When you understand the why and the how, research moves faster, safer, and farther for all of our loved ones living with Angelman syndrome."

Missed a presentation? No problem, FAST will upload all Science Summit presentations to our YouTube channel shortly after the event ends!

Address

Austin, TX

Telephone

+16308503278

Website

http://www.cureangelman.org/

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