STAIA Olfactory futures. Genderless form. Post-wellness dispatches from ETIEN. Formerly Well Scent. Launching ETIEN 2025/ 2026. Post wellness dispatches on Substack.

Performance is not pathology. It is an adaptation.  
It begins in childhood, where safety and care are often conditional...
07/28/2025

Performance is not pathology. It is an adaptation. 
 
It begins in childhood, where safety and care are often conditional. We learn to perform — to suppress our needs in order to belong. 
“The child’s need for attachment trumps even the need for authenticity.”
— Dr. Gabor Maté 

Brené Brown calls this performative belonging, the internalized belief that love and worth are earned through perfection and self-erasure. 

This same dynamic reappears in clinical settings. Within a medical system still shaped by hierarchy, productivity, and purity ideals, patients, especially those with complex, contested, or invisible illness must perform not just their symptoms, but their legitimacy. What we call compliance is often a trauma-informed strategy: fawning, freezing, performing wellness to access care. 

“Patients shouldn’t have to become medical experts just to be taken seriously.”
— Ragen Chastain 

“To get help, I had to act like the kind of sick person doctors wanted to help—cogent, grateful, and above all, not angry.”
— Meghan O’Rourke 

This is compliance theater. And when your illness lacks visibility or a formal label, you also lack diagnostic privilege, the social power of being legible to systems designed for the measurable. 

“We are trained to be grateful for scraps of care.”
— Leah Lakshmi Piepzna-Samarasinha 
“The burden of proof always lies with the patient.”
— Trisha Greenhalgh 

Care cannot be extracted through performance. It must be co-created. 
“When doctors interrupt patients after 11 seconds, they miss the most vital clues.”
— Dr. Danielle Ofri 

“The white coat can be armor, but it can also be a blindfold.”
— Dr. Sayantani DasGupta 

“What we practice at the small scale sets the patterns for the whole system.”
— adrienne maree brown 

If performance is the price of entry, the system is not healing us. It’s rehearsing us. Real care begins where performance ends—where worth is not proven, but presumed. 

Featuring quotes from thinkers and writers who have shaped my understanding of performance and care.

Can hope live alongside loss, grief, pain, chronic illness? What do you think?                         If this landed—sa...
07/24/2025

Can hope live alongside loss, grief, pain, chronic illness? What do you think?

If this landed—save it.
Or send it to someone who needs to feel seen.

Chronic illness often reveals itself not just in symptoms, but in the silence it draws around us. We stop talking about ...
07/22/2025

Chronic illness often reveals itself not just in symptoms, but in the silence it draws around us. We stop talking about legacy, about summer plans. Instead, we inhabit a landscape shaped by loss and invisibility. Our pain becomes something to sidestep, to erase.    ⁣
    ⁣
As setbacks accumulate—hospitalizations, surgeries, new diagnoses—what disappears is not always love, but structure. Not outright rejection, but the slow, quiet erosion of the social scaffolding that should hold us up.    ⁣
   ⁣
In this liminal space, we learn to perform health just to stay tethered to others. At its best, it reads as optimism.
At its worst, it deepens the isolation.
We hide our truth—not to deceive, but to make others more comfortable.    ⁣
    ⁣
Chronic illness asks us to reimagine connection—not around comfort, but around truth. The landscape may not be “normal,” but it is rich in ways most will never fully understand. It is hard won wisdom born of the ashes.

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