10/10/2025
🧠 “Bet You Didn’t Know This…”
📜 A Historic Moment in Membranous Nephropathy
Long before the latest breakthroughs, there was a powerful moment in kidney disease history that changed the conversation — and EKF was part of it.
The world’s leading MN researcher, Dr. Laurence H. Beck, Jr., MD, PhD, led the creation of the “Voice of the Patient” Report — a landmark medical journal that captured the real, raw patient experience of living with Membranous Nephropathy (MN).
And the voice that helped shape that report?
👉 It was our very own Founder, Dan Holmes.
As the patient representative, Dan shared his story with the FDA and top kidney researchers. That testimony became part of the official historical record of MN and is now used to:
✅ Guide research and treatment priorities
✅ Shape clinical trial design and drug development
✅ Elevate patient voices in national and global conversations
This is why EKF doesn’t just react to news — we help make it.
📝 Cliff Notes — Voice of the Patient Highlights
🫡 Patient Voices at the Center: This report was the first of its kind for MN, ensuring patients drive the conversation on future treatments.
🧬 Anti-PLA2R Identified as Key: The document highlighted the need for early detection and monitoring using biomarkers like PLA2R.
🏛️ Regulatory Impact: It laid groundwork for how future MN clinical trials could be structured — including endpoints now being advanced through PARASOL.
💬 Lived Experience Matters: The patient stories in this report continue to shape advocacy, research, and policy today.
✨ This isn’t just medical history. This is EKF’s legacy in action.
📎 Here’s the link to the full report: https://www.patreon.com/posts/140929917?pr=true
