Sauk county Ehlers Danlos syndrome page

03/17/2026

02/21/2026

Pretty good read!💕

Madison Dr. Nathan Rudin estimates roughly 12,000 people in the state have hypermobile Ehlers-Danlos Syndrome. Many struggle for care.

02/19/2026

What happens when patients seeking answers are turned away?

Alexa Barbagallo shares concerns about growing barriers to care for people with hypermobility and related connective tissue disorders. Access to answers can take years. For some, options are shrinking.

Read more in the comments.

02/14/2026

A little something to think about today!

If you could have one completely symptom-free day, what's the first thing you would do?

Let's share some dreams in the comments. ✨

02/11/2026

Coping with EDS: You're Not Alone

Living with Ehlers-Danlos Syndromes (EDS) often means navigating a world that doesn't always understand invisible illnesses. From chronic pain and fatigue to dislocations and stretchy skin, every day can bring its own set of challenges. But here's what we want you to remember:

• You're incredibly resilient. Managing EDS requires immense strength and perseverance.

• Your experiences are valid. It's okay to feel frustrated, sad, or overwhelmed sometimes.

• Community is key. Connecting with others who understand can make all the difference. Sharing tips, stories, and support helps us all feel less alone.

• Advocate for yourself. You know your body best. Don't hesitate to seek out doctors who listen and therapies that help.

• Small victories count. Celebrate every good day, every successful management strategy, and every moment of peace.

What's one thing you've learned on your EDS journey that you'd share with someone newly diagnosed? Let's build each other up! ❤️

02/07/2026

02/07/2026

01/25/2026