Prayer For Ahnalita- Elly's 12yr old baby

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Join my family through Ahnalitas scary journey fighting a rare tumor...

My daughter Ahnalita Gabrielle Mcmillin has been diagnosed with an intraoseous capillary hemangioma in the MAXILLARY region which is a VERY RARE tumor in the mouth ((0.5%-1% chance of acquiring condition based on what I have researched... Think of birth control pills... 99.9% effective)) that began as a congenital condition (was born with abnormality) this condition consists of an abnormal growth of blood vessels embedded inbetween the soft bone (which explains missing teeth in her mouth that never had a chance to form) and needs extensive treatment at Childrens Hospital in Seattle, where (hopefully) all of the necessary treatments will be available. Now that she has gotten older, the area of problem has expanded and will continue to basically demolish the bone in the way... She may lose bone in her pallate and teeth of areas affected to complete the removal and treatment. Dr klein, the oral surgeon who found this condition, is working hard to get a treatment plan and has finally got childrens hospitals acceptance but since these tumors are so rare & this involves the arterial capillaries, the surgeons are affraid of hemorrhage that could occur while treating her :(
It is known that God does things for a reason... Had she not had braces placed, we would have never immagined that she had a serious life threatening condition... Last summer her braces were placed but that is going to waste because of the area compromised... But money is replaceable and my baby girl is not. YOU ARE MY MOTIVATION TO WAKE UP EVERY DAY AND KEEP GOING IN LIFE!! Believe in him and let him take care of this for you:)
❤️❤️

ITS A BOY!!!!!Sorry for the late update ;)
28/12/2014

ITS A BOY!!!!!

Sorry for the late update ;)

Sounds like we will be going over treatment possibilities & collaborating with a new Dr... Hopefully something new happe...
13/11/2014

Sounds like we will be going over treatment possibilities & collaborating with a new Dr... Hopefully something new happens...

Litas baby bro or sis:)
30/09/2014

Litas baby bro or sis:)

20/09/2014

Updates: Dr Egbert says that Litas tumor has shrunk atleast "a little"... But doesnt have measurements... He thinks we are running the course of the labetalol treatment & need to start perparing ourselves for a tentative surgery to do a resection of the palate. He said that unfortunately he cant give me deffinitive answers until he speaks with Dr Perkins (interventional radiology) & the next step will be to schedule a CT to see what the extent of involvement is at this time...

*side note... i will definately be more sympathetic towards patients that have vertigo&hyperemesis... Car ride home was torture! Ive never felt so bad

04/09/2014

Happy Birthday to my BEAUTIFUL PRINCESS TODAY!! Shes officially a TEEN

04/09/2014

We're having a hard time getting in school... They dont want to "risk" any trauma happening to her tumor... Understandable... I wish "OTHERS" would take that much precaution...

BAD LITA!lol
27/08/2014

BAD LITA!
lol

UPDATES!!We have officially moved to Spanaway! Court went well & the judge awarded our relocation. Lita will be starting...
23/08/2014

UPDATES!!

We have officially moved to Spanaway! Court went well & the judge awarded our relocation.

Lita will be starting 8th grade at Bethel Middle School & its a small quiet community in the outskirts of town (with a boys & girls club directly accross from Bethel Elementary,Middle School, High School) on Sept 3rd & shes surprisingly excited about it ;)

And FINALLY, Im expecting baby #2 =)
We are almost 5 weeks along & I deff. feel preggo :) we r so excited!

23/08/2014

Think ill be having Litas birthday&house warming on the same day... On Thursday Sept.4th at 5pm...

---let me know if youll be there;)

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