Chiesi Global Rare Diseases

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Chiesi Global Rare Diseases

We are making a rare difference.

10/09/2025

Imagine hearing stories that challenge what you thought you knew – about pain, strength, and what it means to keep going.

That’s been the experience for Lorenza and Lucia. Listening has changed how they work and why they show up every day – and here they’re sharing their new perspectives.

Want to be inspired too? Visit r.chiesi.com/GRD17 to listen and learn from a powerful video about Abrar and Michael, two young people living with , produced for us by BBC StoryWorks Commercial Productions.

10/07/2025

Have you ever felt different – like no one quite saw you for who you are? For Abrar, living with a rare skin condition called EB meant sometimes standing out in ways others couldn’t understand. But because of her strength, and her family’s constant presence, today her confidence shines bright.

At Chiesi, we believe being different doesn’t mean being alone. It means being seen – and that starts with the people around us. Visit r.chiesi.com/GRD17 to watch Abrar's video, produced by BBC StoryWorks Commercial Productions.

10/02/2025

Elena lives in Madrid and, despite the challenges of , she bursts with energy: she climbs, she sings and plays the guitar, spreading her vitality wherever she goes. Among all her passions, music stands out as a space of freedom, expression, and connection.

That’s why on , we’re sharing her story. It reminds us that living with a may make you feel different—but in truth, we are all different. It’s by embracing our uniqueness and daring to go beyond our limitations that we discover joy, strength, and the freedom to be fully ourselves.

🎥 Watch Elena’s full story at https://itsrareforme.com/story/elena/

09/29/2025

Patricia’s story isn’t just about the long road to the diagnosis—it’s about discovering what truly makes her feel alive and happy.

Living with a rare disease pushed her toward self-awareness: daring to own her desires, breaking free from childhood judgments, and recognizing that constant hunger and criticized appearance were actually signs of an undiagnosed condition.

Patricia’s story shows that even when life feels settled, there’s still space to redefine your path—and embrace a future shaped by your own choices.

🎥 Watch Patricia’s full story at https://itsrareforme.com/story/patricia/

09/26/2025

What drives someone to share their most personal challenges with the world? Abrar and Michael chose to speak out about life with so others with this painful, rare skin condition wouldn’t feel as lonely.

Visit r.chiesi.com/GRD17 to hear them tell their stories first-hand in a touching film produced for us by BBC StoryWorks Commercial Productions.

09/24/2025

When someone like Sarah shares her experience with a rare disease like alpha-mannosidosis, it helps others better understand what living with it is really like. And for those with the disease, it creates space to feel seen, heard, and supported. Visit r.chiesi.com/RMF11 to learn more about life with this rare disease.

09/23/2025

is more than just “high cholesterol.” It’s a rare disease characterized by extremely elevated levels of bad cholesterol (LDL-C) since birth. Have you ever heard of HoFH? Visit r.chiesi.com/HF1 to learn more.

09/19/2025

Have you ever truly said “I feel you”?

It means stepping into someone else’s world - not just seeing what they see, but sensing what they feel.

This , we invite you to simultaneously experience life through two perspectives—one with , one without. You’ll realize how LHON changes not only vision, but also the way a person navigates everyday life. The missed details. The silent struggles. The strength it takes to move forward.

𝘐 𝘧𝘦𝘦𝘭 𝘺𝘰𝘶 is more than a phrase. It’s a promise to understand.

Let’s replace distance with closeness.

Watch, share, and

09/10/2025

Lipodystrophy has a wide variety of symptoms, including constant hunger. Hear Andra’s experience below & share this post to spread awareness about lipodystrophy.

09/04/2025

For people living with a rare condition like , finding their voice early can help build confidence to take an active role in their own health.

During month, hear how Ismäel and Tyler found a sense of empowerment on their challenging journeys through self-advocacy, and visit r.chiesi.com/OIW11 to learn more.

09/03/2025

Explore ways to rethink how everyday food choices can impact life with acromegaly in this free webinar on Sept 17th. Register at r.chiesi.com/ACR12

08/28/2025

Independence — a concept we often take for granted, until life challenges us to redefine what it truly means.

When Sebastian lost his central vision due to , he had to reimagine his daily life from the ground up: from cooking and cleaning to simply getting around.

It wasn’t easy, but step by step, he built a new way of living. Because independence isn’t about doing everything alone, it’s about being true to yourself, recognizing your limits, and having the strength to ask for support when you need it.

🎥 Watch Sebastian's full story at https://itsrareforme.com/story/sebastian/

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