07/12/2025
A post back to back.... why not while I have a moment!
Wednesday was a bad... Wednesday was the appointment for Cameran's one month follow up of him getting his suprapubic catheter port!
Everything looked amazing, his port was changed about 3PM, and we headed to Ladysmith for meds before home.
We get home and no urine in sight. Cameran is a stickler sometimes with getting fluids in so I immediately thought he hadn't had enough intake to produce any and he swallowed nearly 18 oz of water.
By 6PM he started with signs of Autonomic Dyslexia, his blood pressure was rising and still no urine... I immediately resorted to straight cathing and tried for nearly a hour with no success.
By 7PM, his blood pressure was even higher and I KNEW he had to p*e and it was time to head to the ER! We loaded up, and started heading towards Memorial Regional in the monsoon of a storm!
Cameran was steadily checking his blood pressure, and it was slowly continuing to creep higher and higher. By the time I got to Rt 2, I made the decision I was going to hand him over to the rescue squad in Bowling Green.
We get to the fire department, and there was no rescue squad. They dispatched to Frog Level and they were waiting on me when I got there! I handed Cameran over to the rescue squad and went to the hospital.
After a CT scan, it was found that when the new tube was placed, the balloon of the catheter got stuck in the bottom of his bladder! This was also preventing a straight cath from entering his bladder!
The balloon was adjusted and he immediately relieved nearly an entire liter of fluid! The boy HAD TO P*E!
Following his blood pressure being extremely high (maxing at 181/124) for numerous hours, his regular is 90/60, he then immediately tanked and he felt like complete s**t until today.
I am thankful that come his appointment in August I will be trained to change out his ports here at home once a month! This would have been such an easy fix here at home if I had the supplies.
He is just about back to normal just in time for a full weekend! π