Mommy needs a new heart

Mommy needs a new heart My journey battling CHD and getting a heart transplant.

Hi! If you could follow this link and vote for me for The Mended Hearts, Inc. Rock your scar campaign. Please vote, like...
01/26/2024

Hi! If you could follow this link and vote for me for The Mended Hearts, Inc. Rock your scar campaign.

Please vote, like and share! You can vote once per day! ❤️‍🩹

Thanks!

The scars of resilience: A testament to the incredible journey of my heart and the skilled hands that have guided it. Complex d-TGA Heart Transplant 11/03/2022 at UCLA

I’ve entered the rock your scar contest. Please vote for me! It ends January 31st! Share this post so I get more votes. ...
01/20/2024

I’ve entered the rock your scar contest. Please vote for me! It ends January 31st!

Share this post so I get more votes.

Thank you!!

The scars of resilience: A testament to the incredible journey of my heart and the skilled hands that have guided it. Complex d-TGA Heart Transplant 11/03/2022 at UCLA

01/13/2024

Due to the huge success of our 2023 CHD Walk for Hope, the CHD Coalition granted $140,000 to advance three CHD research studies. This year, the institutions receiving the grants were Boston Children’s Hospital and Children's Hospital of Philadelphia.

To find out more about these programs:
https://chdcoalition.org/what-we-do/chd-research

It was my sister birthday today and I was able to bake her favorite cake. It takes me a really long time to bake and do ...
01/13/2024

It was my sister birthday today and I was able to bake her favorite cake. It takes me a really long time to bake and do things in the kitchen because my hands shake so bad and it’s really hard for me to stir but I got it done!

12/22/2023

Stacy Need's a New Heart Pictures of Stacy and the girls My older sister… Carey Minnis and Catie Rudolf needs your support for Mommy needs a new heart!

12/10/2023
Here is the Amazon list that a few people have asked me to post! Christmas List - Amazon Gift List -
12/06/2023

Here is the Amazon list that a few people have asked me to post!

Christmas List - Amazon Gift List -

Hi!Sorry I haven’t updated in a while, we have had a lot going on. Lexi went to the UK in September to start her masters...
12/06/2023

Hi!
Sorry I haven’t updated in a while, we have had a lot going on. Lexi went to the UK in September to start her masters program. She is having a great time but she can’t wait to get home and see her cats, dogs, sister and her friends and family. She’s really excited to be able to watch her new little cousin!

I still can’t work even though I made it to the one year mark! The one year mark brings down the mortality rate exponentially. Year 2 is supposed to be easier and I am supposed to start to feel better.

I still fell terrible most of the time. I had my one year angiogram and I ended up with a huge hematoma in my groin. I’ve been in the hospital twice in the last month. Once because my kidneys were not doing great and they needed to monitor them and give me fluids and rest to see if that would help. It did help and my kidney function improved some. I was also in the hospital for the hematoma, it wouldn’t stop bleeding and it’s one of the most painful things u have ever gone through. I couldn’t walk or sit down. They did pain management and got the bleeding to stop. I am still recovering from that, I can walk a little better and I can sit on the potty and not be in excruciating pain. Due to the location of the hematoma I had to lay down with my leg straight or I was in an incredible amount of pain. It still hurts to sit up and walk but not near as bad as it was. It was one of the worst things I have ever gone through.

Without being able to work I don’t have money to buy the girls much for Christmas. They know they won’t be getting very much and they tell me it’s fine. Cortana said “well at least I have a mommy still!” It makes me feel bad that they won’t be getting much because they have both been through so much. If you would like to donate for Christmas, I would really appreciate it. It’s hard as a mom to not being able to really do anything for your kids.

Recovery has been much harder than I think anyone anticipated. I have drs appointments weekly still. The gas and parking to go to LA is so expensive. I hope year two I won’t be at the drs all the time. My cardiologist told me that my recovery has been more work than probably two full time jobs. Every time a medication is changed or a dose is decreased or increased I feel terrible for a few days to a few weeks and then it’s time for another adjustment. That dosages should be more stable this next year and I have been able to come off 2 medications, one gave me daily stomach aches and horrible cramping.

My back is still an issue. I go in the next week to get steroid injections to see if that helps. The back pain now makes my calf and foot burn. It’s nothing like sciatica and it’s due to the compression fractures and nerve damage. I would love to be able to be free from pain and not take any pain meds in year two.

I have not had any rejection which is great. I do not have the results from my angiogram but they did tell me the heart looks wonderful, my pressures are good and my ejection fraction is really good! The heart seems to be doing amazingly well, now my body has to learn how to live with it. When they put a new heart in, the rest of your body has to kinda get used to it. I had such a terrible heart for 42 years and that affected all of my major organs. So now they are struggling a little.

On my last CT scan my pancreas didn’t look great. So I have an appointment with a specialist in the next week also so they can determine if that’s new or if it’s been like that for a while because of my old heart.

People often don’t realize a heart transplant is not a cure, I traded one set of heart problems for another. This has been frustrating for me because I was used to my old heart and being tired often but it’s nothing close to the exhaustion I feel now and how most days I feel like I have a bad cold or flu with body aches and soreness and generally just feeling terrible. I’m excited to get to the good part where I will supposedly feel better than I have everything felt in my life.

Thanks for all the support I really appreciate it. The only way I make it through the end of the month with groceries, and all the bills is from all of your support. The girls and I appreciate all the love, prayers, well wishes and donations!

Happy Holidays with love,
Stacy, Lexi and Cortana

Venmo - StacyMinnis
https://venmo.com/u/StacyMinnis
Last four of phone number 9872

CashApp life0fstacy

https://gofund.me/824b6fdf

Lexi leaves tomorrow for the UK!Here is her amazin list. Her Visa was over $1,000.00 more than what the school had said....
09/19/2023

Lexi leaves tomorrow for the UK!

Here is her amazin list. Her Visa was over $1,000.00 more than what the school had said. So she doesn’t have any money really left to buy the things she needs for her student housing.

It will all go directly to her student housing and security collects it.

Thank you!!!

Help Lexi at Uni! – Amazon Gift List –

New update!
09/13/2023

New update!

Stacy Need's a New Heart Pictures of Stacy and the girls My older sister… Carey Minnis and Catie Rudolf needs your support for Mommy needs a new heart!

We are reaching out to you today with a heartfelt request to support Lexi, an extraordinary young woman who has overcome...
06/29/2023

We are reaching out to you today with a heartfelt request to support Lexi, an extraordinary young woman who has overcome immense challenges in her life and is now embarking on a remarkable journey. Lexi is my daughter.

Lexi, who was in foster care during her early years, has been granted a life-changing opportunity to pursue her education in England. We are organizing this fundraiser to help her make this dream a reality.

Lexi's journey has been far from easy. After spending the first year of her life in a challenging environment, I was allowed to become her foster mom and bring her home to California. Her resilience and determination have been evident throughout her life, and six years ago, she faced another significant test of strength. Lexi's biological mother reached out to me, pleading for me to care for Lexi’s three-year-old sister. This came at a great cost, both financially and emotionally. I had to legally contest this adoption in two states, hire two separate legal teams, and temporarily relocate to Oregon to establish residency. Finally, after six long years, the adoption was legally finalized in May 2022 when Cortana was 9 years old.

As for my own backstory, I was born with a congenital heart disease (or defect) and never expected to see the third decade of life. Thanks to medical advancements and amazing clinical teams, my heart was instrumented multiple times while awaiting a heart transplant. In May 2022, right after legally adopting Cortana, the condition of my heart forced me to be admitted to UCLA with the only option of getting better, needing a heart transplant. After over 200 challenging days inpatient with a heart that continued to worsen, I finally received the long-awaited heart transplant. The transplant, for which I had waited 42 years, began a series of different obstacles, medications, and medical follow-throughs.

We are reaching out to you to support Lexi in her dream of achieving this life milestone.

Our goal is to raise enough funds for Lexi to travel to England and support her stay there for the year-long master's program in the UK. By creating a fund to support Lexi in her studies and living expenses, you can help make a tremendous difference in the life of this young woman.

Lexi will be pursuing a master's degree in special effects and prosthetics. During the year that I waited for my transplant, she obtained a cosmetology license to be able to volunteer in hospitals, providing haircuts to patients who are medically unable to go home for long periods.

As many of you know, only half of foster children graduate high school, and only about 1/5 go to college. Lexi’s story will not only support her and her future but also inspire other foster children to pursue their dreams.

We humbly request your support in making a donation to Lexi’s GoFundMe campaign. Every contribution, no matter how small the amount, will make a significant impact on her journey, both symbolically and physically, and support her personal mission to bring joy to those in need. Together, we can and will uplift Lexi and help her create her own brighter future. Thank you for your empathy, generosity, and time to read this.

We are reaching out to you today with a heartfelt request to support L… Stacy Minnis needs your support for Help Lexi, former foster child achieve her dream!

Today I exercised for 40 mins straight!! I have never been able to exercise in my life! I would go to the gym and lift w...
06/24/2023

Today I exercised for 40 mins straight!! I have never been able to exercise in my life! I would go to the gym and lift weights and take 500 breaks. At one point o decided to get skinny and would ride my bike and take tons of breaks. It took me forever. I lost a lot of weight mostly from starvation and I blew the baffle in my heart. I need surgery to repair it and stents put in.

Today I was on the treadmill and took zero breaks and didn’t even get short of breath. You can see the chart from before my heart TX (transplant), then when they put me on medication in the hospital to improve function and now today! Also I did a whole peloton stack, where I stacked my warm up, walk, cool down and then stretch. It was a total of 45 minutes!!

I’m just now getting to where I feel kinda normal. I don’t sleep at all. I sleep in the morning for a few hours. Last week they diagnosed me with PTSD and insomnia from medical trauma. They put me on lexapro and it gave me a migraine so bad I had to go to the ER. I had to stop it. It also made me really anxious and made the insomnia worse. So this week we will try something else.

I’m still finishing my class and getting things up and running for my new business. I’ll be doing social media marketing. It’s something I’ve always wanted to do and in college I took a lot of marketing classes and I’ve always done a lot of advertising for my companies and realtors and just people I know. I’ve mostly always done it for free but now I’ll be able to make money doing it. I really enjoy it so far but I still can’t work more than an hour or two a day. My main doctor said it will be a year at least from TX before I can work part time. So I still need financial help.

The last month I have made a lot of progress! I can’t believe I can do an exercise and actually do it and not have a massive headache after 2-3 minutes. I also jogged for 2-3 minutes. I have never ran or jogged in my life. I really don’t even know how. I finally feel like I may someday get my life back.

I’m attaching my GoFundMe and also my Venmo. If you would like to donate you can either way. Venmo doesn’t take a fee. I would like to try and take the girls to Disneyland this summer or possibly a road trip. Lexi leaves in September for the UK and Cortana is having a hard time and cries when she thinks about it. It would be good for them to do something normal before she goes because the last 3 years have been far from normal.

Please share our story and register to become an organ donor!

https://www.registerme.org

https://gofund.me/18c2072a

Venmo StacyMinnis
9872 last 4 of ☎️

Thank you for everything you all have done and continue to do for us. We appreciate all the prayers, shares and donations! 🫀

I posted an update and there are pictures of my heart on it! https://www.gofundme.com/f/mommyneedsanewheartPlease regist...
04/27/2023

I posted an update and there are pictures of my heart on it!

https://www.gofundme.com/f/mommyneedsanewheart

Please register to become an organ donor!
Organdonor.gov

More info
United Network for Organ Sharing

Stacy Need's a New Heart Pictures of Stacy and the girls My older sister… Carey Minnis and Catie Rudolf needs your support for Mommy needs a new heart!

Thank you to all of you who have donated and shared my GoFundMe! I had my checkup today and I’m still doing fairly well ...
03/23/2023

Thank you to all of you who have donated and shared my GoFundMe! I had my checkup today and I’m still doing fairly well as far as transplant goes. My doctor did say this is usually one full time job for a year and with everything I have going on it’s about as much work as 3 full time jobs but I have stayed out of the hospital. They have wanted to put me back in several times and I’ve asked that they figure something out. Cortana just can’t go through me being in the hospital. My white blood cell count has rose a little more. I’m always tired because the insomnia is so bad. It was a different tired that I was used to with my old heart. This is complete and utter exhaustion and then I can barely walk because my back is so bad. I have started PT but it makes it worse, they say it will eventually get better. Right now “no news, is good news!”. The medicine has become easier for me to organize and to take. I had an allergic reaction to one and have rashes and scabs on my face.

Thank you so much for all the help and please keep sharing my GoFundMe. Until I can work again I’ll just be praying I get by. Everyone says to get help, there really is no help in America. Food stamps is really the most help you can get...and yes those are helpful but it doesn’t pay the bills.

Your support is really appreciated. sorry if I don’t return calls and texts much but I don’t feel good and most of the text are generally the same thing and same questions and some days I can’t deal with one more person asking “Are you feeling better yet?” Or if I can go to lunch or dinner. I can’t go anywhere because of my white blood cell count. It’s been almost a year since I have gone anywhere.

One day I will be able to re-enter the world but I have to get my immune system up and not go back in for Cortana’s sake.

Here she is at the doctors with me today! Lexi is so busy with school, she helps when she’s home or if I need her to help. The yellow stuff is the nasty medicine that I was allergic to, it didn’t come in pill form. 🤮

Here is the link to my GoFundMe. Please keep sharing our story!

https://gofund.me/824b6fdf

Latest update
03/21/2023

Latest update

Stacy Need's a New Heart Pictures of Stacy and the girls My older sister… Carey Minnis and Catie Rudolf needs your support for Mommy needs a new heart!

Here is the latest. The injections I have to give myself are awful!
02/15/2023

Here is the latest. The injections I have to give myself are awful!

Stacy Need's a New Heart Pictures of Stacy and the girls My older sister… Carey Minnis and Catie Rudolf needs your support for Mommy needs a new heart!

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