https://linktr.ee/chronicallyillvee?fbclid=PAZXh0bgNhZW0CMTEAAaZgFfoZEmBTNcVRYwjrmLDQxbUL_wbA4rZP_CJLsz6rB47GG2fhB-1iGgM

05/31/2026

Ostomy Hack!
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Now I know someone maybe have thought about this already but this is the first time I wore my jean shorts overalls since I bought them last year and this how I emptied my bag!
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I thought it was easy and wanted to share it with my fellow ostomates! Because the struggle is real when it comes to rompers and dresses! Not only do you have to whole the dress or romper up, you gotta be careful not to get any output on it! And that sucks! Lol
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But yeah I just wanted to share this with you guys and I hope it’s helpful! If you have any questions please ask away! Also please know you are not alone! I’m always here for you and will always be here for you! We got this! I love you guys and thank you for allowing me to share my life with you! ♡♡♡
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05/30/2026

Doing my nails. 💅🏼
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So as you guys know I have wristdrop and I can’t go get my done. So I’ve been buying press on nails and they’ve been last me a long time! These are the ones I did today.
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Not going to lie I did mess my finger on both hands BUT I did it and I’m so freakin proud of myself. Was it hard? Yes. Does it suck I can’t get my nails done? Yes. Did I struggle putting these press on? YES! But I did it and I’m so proud of myself. I think I did a good job. But let me know what you guys think and if you have any tips or tricks when it comes to doing press on nails. Because it’s hard doing my right hand right now. 😭
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I know this is random but I want to share everything with you guys! So I thought why not show you my nails! If you have any questions please ask away! And remember you are not alone. Especially if you’re dealing with something like me or different. You are not alone. Don’t give up and I will be cheer you on! We got this! I love you guys and thank you for allowing me to share my life with you! ♡♡♡
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05/29/2026

Occupational therapy!
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✨ Incase you didn’t want to look at the pictures I made a reel for you guys! ✨
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So today was my 4th appointment with my occupational therapist and not much has changed when it comes to my wrist, BUT my fingers are now at 0 which is normal and I’m so excited! He told me normally people get improve with their wrist first. But I’m doing it with my fingers first and he said that’s a good sign.
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He used. E-STIM on my arm to help wake up my nerve. It’s like a little electrical shock that wakes the nerve up and moves your arm to your fingers. It’s so weird seeing it but it didn’t hurt, for me at least.
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He also fixed my brace because while I was wearing it it was hurting my bones and just felt uncomfortable, so he fixed it and added cushion to my brace. Oh and he also played Fall Out Boy for me during our appointment and it was so cool.
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But that’s the update guys. I’m nowhere near gettinf full function back with my wrist yet, but I am doing better and I’m so excited about that. And if you’re going through something similar or the same as me. Please don’t give up. I know it’s hard. I know it’s frustrating. I know it suck’s. But I promise things will get better and we got this. And I will always be here for you guys. Always. If you have any questions please ask away and I love you guys and thank you for allowing me to share my life with you! ♡♡♡
•••

05/29/2026

Occupational therapy!
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✨ if you swipe to the right you’ll see a video of my arm moving from the E-STIM or TENS, that sends electrical shocks to wake up my nerve.✨
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So today was my 4th appointment with my occupational therapist and not much has changed when it comes to my wrist, BUT my fingers are now at 0 which is normal and I’m so excited! He told me normally people get that or improve like that with the wrist first. But I’m doing it with my fingers first and he said that’s a good sign.
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However because I’ve been having pain in my upper arm and thumb he wants me to take a break from doing my exercises. Because sometimes your body needs time to relax and heal. So no exercise this weekend. But I’m so happy things are getting better. It’s going slow but it’s getting better and I’m so excited about that.
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He also fixed my brace because while I was wearing it it was hurting my bones and just felt uncomfortable, so he fixed it and added cushion to my brace. (If you swipe to the last two pictures you’ll see what I mean.) Oh and he also played Fall Out Boy for me during our appointment and it was so cool.
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But that’s the update guys. I’m nowhere in getting function back with my wrist yet, but I am doing better and I’m so excited about that. And if you’re going through something similar or the same as mine. Please don’t give up. I know it’s hard. I know it’s frustrating. I know it suck’s. But I promise things will get better and we got this. And I will always be here for you guys. Always. If you have any questions please ask away and love you guys and thank you for allowing me to share my life with you! ♡♡♡
•••

05/27/2026

The Mandalorian and Grogu 💫
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So on Saturday I saw the Mandalorian and Grogu and omg I loved it! I even dressed up for it. I had to wear my Grogu (This Is The Way) t-shirt! And yes I decorated my purse but honestly it always looks like that! Let me know if you wanna see a what’s in my purse post or video and I’ll totally do one! I love seeing a “what’s in my purse” video! Oh and did I buy a cup…..yes. Yes I did! It’s so cool, I had to!
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Oh and yes I took a few pictures of the movie and I don’t regret it even though, I know you’re not supposed to! But I love The Mandalorian and Pedro Pascal so much! I’m also a huge Star Wars fan if you guys didn’t know. I have so much Star Wars stuff! Let me know if you guys wanna see that too!
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I know this is random but I wanted to share this with you guys because like I said I love The Mandalorian and Grogu! And I thought my outfit and purse was so cute that I had to share it lol! Again I know this is random, I just wanted to share this with you guys because I was so excited and it made me so happy to see the movie! Please let me know if you guys like post like this! Oh and a huge s/o to my boyfriend for dressing up with me and loving Star Wars like I do. I love him so much. But I love you guys and thank you for allowing me to share my life with you! ♡♡♡
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05/27/2026

Med refill! 💊
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I’m so late refilling my meds but I did it today! I used my .o.s.e.y am and pm medicine containers! They are so freakin cute and I’m obsessed with them! Not only are they cute but they help me so much to take my meds.
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✨ .o.s.e.y isn’t paying me to talk about them. I just truly love their products and would highly recommend them to everyone! They are so cute and perfect!✨
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I’m just mad I didn’t do it su day like I normally do but I haven’t felt good these last few days. I don’t know what’s going on with my body. I think it’s my period because I started it and I have horrible cramps, really bad brain fog, body aces, and I just over all don’t feel good when I’m on my period.
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But I just wanted to share this and hopefully remind anyone out there to refill their meds, if they forgot like I did! I hate having brain fog and my period. It sucks and it’s not fair we gotta go through this. But if you guys have questions please ask away! And please remember that you are not alone. I’m right here with you and I will always be here for you! Always. You are never alone. I love you guys and thank you for allowing me to share my life with you! ♡♡♡
•••

05/22/2026

After and before! 💫
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So my occupational therapist said I can decorate my new brace so I did! I added a White Claw, pusheen, and Star Wars stickers too it! I really wanted to draw on it but I knew I would be upset if I made a mistake, so putting stickers on it was my second thought.
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These are a few of my favorite things! I don’t drink often but I when I do, I love a good White Claw and I’m obsessed with and it’s crazy how much I love them and obsessed with them!
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I know this is silly but since I will be wearing this for a long time, so I thought why not make it cute! That way it can make me smile when I look at it! But I hope you guys are having a good day, and if you aren’t feel well like me (because I have a really bad headache that I’m pretty sure is going to turn into a migraine. And my freakin period started. So these cramps are so bad right now.) just know you are not alone! You are never alone! I’m right here with you and I will always be here for you. I love you guys and thank you for allowing me to share my life with you! ♡♡♡
•••

05/21/2026

Update on my Wristdrop!
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✨incase you don’t want to watch my reel, I thought I would also post pictures!✨
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So today was either the 3rd or 4th appointment with my occupational therapist. We were able to finish my new brace and do some NEM, which is basically waking the nerve up but send electrical shocks to it. Sounds scary and painful I know, but it’s not. It doesn’t hurt at all. The only weird thing is my arm and fingers are moving from it.
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I also made more progress with my wrist and I’m beyond happy. But he did say it’s still going to take a while for it to get better and to continue doing my exercises. I will be making a video on it soon but I need help recording it.
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We are also trying to get me my own NMES so I can do it at home. My P*P just has to write a scrip for it so he can send it in and order it for me. So we are waiting on that! He also scheduled more appointments to see him and I’m just hoping things continue to get better. Because although I’m doing good and making progress, things are still very hard. But I’m trying my best to stay positive. So if you’re dealing with something similar, please don’t give up. I know it’s hard. I know things don’t steam like they’re getting better. But I promise you things are getting better and we got this. You are not alone. I’m right here with you and I will always be here for you.
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But yeah that’s the update and I just wanted to share this with you guys. And show you my new brace. He also told me to not wear it all the time, only when I need it. But to be honest I’m probably going to wear it all the time because I need the help. Oh and he told me to use my old brace at night when I sleep. If you have any questions please ask and I love you guys and thank you for allowing me to share my life with you! ♡♡♡
•••

05/21/2026

Update on my Wristdrop!
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So today was either the 3rd or 4th appointment with my occupational therapist. We were able to finish my new brace and do some NEM, which is basically waking the nerve up but send electrical shocks to it. Sounds scary and painful I know, but it’s not. It doesn’t hurt at all. The only weird thing is my arm and fingers are moving from it.
•
I also made more progress with my wrist and I’m beyond happy. But he did say it’s still going to take a while for it to get better and to continue doing my exercises. I will be making a video on it soon but I need help recording it.
•
We are also trying to get me my own NMES so I can do it at home. My P*P just has to write a scrip for it so he can send it in and order it for me. So we are waiting on that! He also scheduled more appointments to see him and I’m just hoping things continue to get better. Because although I’m doing good and making progress, things are still very hard. But I’m trying my best to stay positive. So if you’re dealing with something similar, please don’t give up. I know it’s hard. I know things don’t steam like they’re getting better. But I promise you things are getting better and we got this. You are not alone. I’m right here with you and I will always be here for you.
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But yeah that’s the update and I just wanted to share this with you guys. And show you my new brace. He also told me to not wear it all the time, only when I need it. But to be honest I’m probably going to wear it all the time because I need the help. Oh and he told me to use my old brace at night when I sleep. If you have any questions please ask and I love you guys and thank you for allowing me to share my life with you! ♡♡♡
•••

05/21/2026

Strike out cancer! 🩷
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This past weekend we took my mom to a game for cancer and breast cancer awareness! If you didn’t know my mom has breast cancer but thankfully she’s doing great and on the path to becoming in remission, after 4 years of taking one of her medications.
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It was so much fun and I hope my mom had a great time! A huge s/o to my amazing boyfriend for helping me plan this and taking my momma to the game.
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Side note: I know I look healthy and completely fine. But I’m not. It’s called wearing makeup and using ALL of my spoons. I was so tired after the game and I’m still recovering. The game was Saturday and it’s now Thursday. I push myself to have fun and enjoy the game. It was not easy but I did it. This why it’s called an invisible illness. You can see it because it’s all on the inside. I’m not faking. If anything I’m faking looking healthy and giving everything I have to have a good time.
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I know I don’t have to explain myself but I want people to know what an invisible illness looks like. Yes we look fine on the outside but we aren’t. I just wanted to share these with you guys and tell you about my weekend. Please know that if you have an invisible illness you are not alone. You are not faking. Your pain and illnesses are valid and real. Don’t you ever let anyone make you feel bad or feel like you’re faking and please know I am always here for you! Always! I love you guys and thank you for allowing me to share my life with you! I will always be here for you. ♡♡♡
•••

Chronically Ill Vee

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