Remarkable Warrior Rinken

Remarkable Warrior Rinken One location for us to easily update our family and friends on Rinken. At 7 days old she had her first open heart surgery.

https://gofund.me/c8065130 *** Vemno:

Rinken was born 10/19/20 in Omaha, NE with Hypoplastic Left Heart Syndrome. She is awaiting her second one in the next few weeks.

Hey Everyone! We are fundraising to go to Church Camp here in July!! We are raising money for registration fee's, transp...
04/25/2025

Hey Everyone! We are fundraising to go to Church Camp here in July!! We are raising money for registration fee's, transportation, food and canteen money while we are at Outlaw Ranch. Tickets are $20 each. Three payouts: $100 / $150 / $250. Drawing will be held as soon as all squares are full!
Venmo: CashApp: $eaj0384 Apple Pay
Thank you in advance for helping us get to camp!!!

Hey Everyone! I plan on being there the 11 and 12th!!! Please let me know if you can make it and I will get you in!!! I’...
04/07/2025

Hey Everyone! I plan on being there the 11 and 12th!!! Please let me know if you can make it and I will get you in!!! I’m so proud of this video, the people in it, the person who produced it and the meaning behind it!! Any questions please feel free to let me know!!!

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EXCITING NEWS!! Next weekend, April 11-13, you can see my award-winning documentary, Heart Sisters, in an actual cinema! These are private, invitation-only viewings but I, of course, can get you in. St. Michael Cinema has graciously donated one of their auditoriums so admission is *FREE*! All you need to do is:

1) Email heartsistersdocumentary@gmail.com (or message me personally).
2) Tell us which viewing you want to attend.
3) Tell us how many tickets you need and I will make sure you're on the list.

A Q&A with me and/or one of the families featured in Heart Sisters will follow all three viewings. We'd love to fill this 149-seat auditorium every time so please share this with anyone and everyone!

*** WINNER *** People's Choice Award (2025 Frozen River Festival – Winona, MN)

*** WINNER *** Best International Feature Documentary (2024 Docuworld Film Festival – London, UK)

*** WINNER *** Best Feature Documentary (2024 Interrobang Film Festival – Des Moines, IA)

SYNOPSIS: "Heart Sisters" tells the story of two girls, ages 6 and 2, from separate families who formed a close bond while living in a pediatric hospital as they both awaited life-saving heart transplants. Alongside their emotional journeys, this hour-long documentary takes viewers into the operating room and answers the question, "So, how exactly does a heart transplant happen?"

And just like that….we are back in the Castle. Rinken had a fever, started throwing up and another bloody stool. Her XRa...
02/02/2025

And just like that….we are back in the Castle. Rinken had a fever, started throwing up and another bloody stool. Her XRay shows pneumonia. Still waiting on labs….looks like we’re just need to stay put for the time being.

This sucks. It’s hard. But I’m strong and God has us. Prayers for us all.

They have also started her on fluids, Rocephin and O2…..thankfully she can still suck her thumb

tatus 10-7 — 10-42!!We are home………..long unknown road ahead of us but we are home!! Today Rinken had a tough tough day. ...
02/02/2025

tatus 10-7 — 10-42!!

We are home………..long unknown road ahead of us but we are home!!

Today Rinken had a tough tough day. Started off with an X-Ray at about 0630……and just went down hill from there….

Next up, Labs. Rinken has had an absolute bad time with labs her whole life. We have figured out that nitrous oxide works wonders for her, and everyone involved. We were told today that wasn’t an option. 6 pokes and 1.5 hours later they were able to finally get 10mls……not good at all!!!!!

I just get her settled down and back to normal and they come for another test. This one is to take photos every 10 minutes for one hour……I knew this wasn’t going to fly especially because of how her morning went…..

I spoke with the nurse who then had her P*P who agreed she needed something to calm her down. I’m so happy we have the team we have!!! It helped soooo much!!!

After the preliminary test results came back we got the clear to come home!!!! However we have a long long road ahead!

-Labs in one week
-Stool samples all week
-upcoming scans and testing
-upcoming scope: upper and lower.
-waiting on about 15ish lab results to come in

We have come so far in the last few days. Even though they were extremely scary, they have been so informative!!

So for now we wait, but we get to wait at home!! She’s been given zero restrictions, just lots of documentation and photos.

I can’t thank everyone enough for the visits, calls, messages, prayers and love. You help a mama have the strength!!

Gods got us!!!!

Until we know more……

Emily and Rinken

We are once again admitted to Children’s Castle. As you know we have been in and out these last 4 months now with fevers...
01/31/2025

We are once again admitted to Children’s Castle. As you know we have been in and out these last 4 months now with fevers, bloody stools and much more. Today I got a call from Rinken’s teacher saying that she had two very bad stools and a slight fever. So I packed up my office and headed to get her. As we were on our way down I notified her doctor so they knew we were on our way and waiting for us.

We got in right away and they got the IV in. After some X-rays we were admitted.

Plan of action:
Lots of blood work
Stool samples
Urine samples
CT/MRI
Upper and lower scopes

Lots of waiting and watching and praying. I need prayers to focus what is at hand and comfort that all the laundry and bedding and washing can wait. and prayers for answers once and for all. Looks like we will be here for a while. I appreciate all the support. I couldn’t do it with out you all.

SIDE NOTE: We get to meet Rinken’s Donors dad on February 22! That made my day. God is good!!

Emily

Hi from Brookings!!!Rinken and I were able to break out of the hospital and come home last night. We are still waiting o...
12/19/2024

Hi from Brookings!!!

Rinken and I were able to break out of the hospital and come home last night.

We are still waiting on quite a few tests to come back but we do have some answers. Poor Little Miss has been battling pneumonia and a very major sinus infection! It took a CT scan to show exactly what is going on inside her little body!!

So this now makes sense why she would show signs of getting better after some antibiotics and then dip right back down to being so sick. We have been sent home on antibiotics as well as close follow up from her team at Sanford Children's Hospital - Sioux Falls!! They have been nothing short of amazing this last stay. We now have a P*P, ID, and GI all under the same roof!!! Rinken will now just follow up with her Heart Doctors in Minneapolis. This is a HUGE thing for her, and me!

Again, I can not thank everyone enough for checking in with us, calls, mesasges, everything. It truly takes a village and I'm so thankful for ours!!!

Merry Christmas and Gods Blessings as we start a New Year!!

Emily and Rinken

Good Morning from the Castle! Early Sunday morning...about 1:30ish...Rinken woke me up shaking....I took her temp and it...
12/17/2024

Good Morning from the Castle!
Early Sunday morning...about 1:30ish...Rinken woke me up shaking....I took her temp and it was 102.5.....I gave her some Tylenol and an hour later it was 103.4....so off to the ER we went...we went to Brookings this time because of the weather...by the time I got to the er her temp was 104.2.....
They shipped us off to Sioux Falls about 4:30 Sunday morning. It's been a lot of testing, blood work, x-rays, and talking with different doctors. Yesterday I talked with the ID (infectious disease) Doctor for about an hour......then all crap hit the fan.......I'm going to skip that part and go onto the plans going forward as I don't want to dig into it again!!
Today, Rinken will be having more blood work.......like 16 tubes I believe.......more stool samples.......more urine samples.....and 6 CT scans, 3 without contrast and 3 with contrast, with sedation, today. And at least one more night of observation.....the ID doctor is very on top of figuring this out and what we need to do from here.
We will also be setting up care here for a P*P, ID and GI Doctor. This way everyone, but her heart doctors, will be under one roof....and for this I am soooo thankful!!!
I have a nice little office set up right next to Rinken's bed....they brought her in a Christmas tree and Sneaky the Elf showed up this morning saying he missed her!
I'm thankful for the prayers, friendship and most of all the understanding and support while we try and get her feeling better!!! I Have a great feeling we will get to the bottom of this yet this year!

Night 4:We have many things to be thankful for this Thanksgiving Day!!! We are home!!! Thanks be to God and all the pray...
11/29/2024

Night 4:

We have many things to be thankful for this Thanksgiving Day!!! We are home!!! Thanks be to God and all the prayers!!!! She’s been confirmed with Coronavirus, Rhinovirus and Norovirus…..because she’s on immunocompromised they are waiting to see what Minneapolis states for treatment. They did say she is no longer contagious bc her fever has been gone for over 24 hours. I can’t thank you all for the continued support with all our peaks and valleys!!! Gods blessings this season.

Night 3:I think we have turned the corner!! She’s starting to be her normal little self again! I can only say that god w...
11/28/2024

Night 3:

I think we have turned the corner!! She’s starting to be her normal little self again! I can only say that god works in amazing ways!!! Prayers we continue this way!!

Also asking for prayers for two other families that are our neighbors whom we know the families. Please pray over them as well.

Night two:Rinken had a rough night. She was up most of the night in pain. She’s had some good naps today…..Doctors order...
11/27/2024

Night two:

Rinken had a rough night. She was up most of the night in pain. She’s had some good naps today…..Doctors ordered more labs and we are waiting on results. I can’t thank you all for all the calls, messages and prayers. They truly help me get through the day!! Little miss is sleeping away so I ran out to get some food quick.

Prayers for a peaceful night night.

All our love.

Address

Brookings, SD

Telephone

+16056958466

Website

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