Curtis's Epilepsy journey

Curtis's Epilepsy journey This about Curtis's new journey on epilepsy and new doctors and how we're doing with it it then how hes doing

05/16/2025

Just making an update because it's been a while. Yes this page is still active. Curtis is still having seizures, the doctors are adjusting medications as we go along. At this time it's trial and error! However, Curtis is happy, mostly healthy, and strong! Everyone stay safe and be blessed!

03/30/2024

Well we get to go home they think his tummy was irritated and that's why...let's hope no more hospital

03/30/2024

Ok now at the hospital with Curtis he is puking up blood

03/30/2024

I know I don't post much which is good but unfortunately this morning we had to reset the clock with Curtis he had a grandmal seizure he's okay he and didn't have to go to the hospital hopefully we'll have an answer Monday

01/29/2024

So here's an update on Curtis. He saw his neurologist today, and we are at our max dose with his seizure medicine so we will be adding on another seizure medicine to see if that helps control everything. Sorry I don't update very much. I only do it whenever something happens or we see his doctor...We are running out of medicine to try with his rare form So prayers that this one works...

09/11/2023

So unfortunately Curtis had to reset the clock at 1:00pm... he had a grandmal seizure 😢 he is ok and it's didn't last longer than 2 minutes just waiting to hear back from his doctor

After 24 wires and our long stay going home with some puppy love...
05/25/2023

After 24 wires and our long stay going home with some puppy love...

Day 4: GOING HOME!!! Still having seizure activity all though his brain all the time witch is why he has epilepsy..... s...
05/25/2023

Day 4: GOING HOME!!! Still having seizure activity all though his brain all the time witch is why he has epilepsy..... still dont know why webwill know more and treatment plan when we meet with his neurologist.

Day 3: things are going good since starting back on the medication, so hopefully we get to go home tomorrow...curtis is ...
05/25/2023

Day 3: things are going good since starting back on the medication, so hopefully we get to go home tomorrow...curtis is ready to come home he is get antsy...other than that he is doing good from what we know!!!

Day2: Curtis had a 4 second seizure this morning and has had a headache ever since, so he is currently sleeping it off. ...
05/23/2023

Day2: Curtis had a 4 second seizure this morning and has had a headache ever since, so he is currently sleeping it off. Restarting Lamictal, to avoid major seizure activity and will continue to monitor thru the week.

Day 1
05/22/2023

Day 1

05/22/2023

So I only update when there are updates, Curtis hasn't had any big seizures, but he is still having the staring off ones. So to find out what is going on in his head and to choose the best treatment for his mixed epilepsy he has been admitted for a week video EEG also they are stopping all seizure medicine while here...I will update daily...

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Carlinville, IL

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