Kopf Family Updates

Kopf Family Updates Major NeuroCognitive Disorder, Functional Neurological Disorder, Chronic Lyme Disease and more have all hit Scott hard.

His physical, mental and cognitive decline, has made it impossible for him to work, complete daily tasks, & affects his everyday life.

04/09/2025

I have received many messages over that past couple weeks asking for updates on Scott and our family. Doctors say they have no explanation as to Scott’s decline. They are done with all of their testing and have no concerns of anything to further look into (at this time). He remains a mystery as to what is exactly going on. Overall, Scott is doing pretty well. He is content. He spends the majority of his days at day programs for people living with some type of disability. Staff there tell me that he laughs and smiles, plays games with others, goes on little trips and participates in programming. The goal at this point is to keep his mind and body active. He has a difficult time with personal relationships, meaningful conversations and has pushed a lot of us away. He is fine with short conversations. His body is weaker than it should be and he gets tired easily. Some days he barely has any pain and other days he is in a lot of pain. Each day is different.

Continued prayers for our family, as we accept our “new life,” would be greatly appreciated.

Also, we are still waiting for the judge to make a decision about SSDI. It has been 18 months since applying for SSDI, which means 18 months without his income. Until that is approved, I need to pay for all of his programming, appointments, and care out of pocket by myself, as well as all of the bills, mortgage, and living expenses for the kids and I. Please keep praying!

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We spent a couple days last week in Wisconsin getting Scott tested and treated for Lyme Disease. So far his body is resp...
12/22/2024

We spent a couple days last week in Wisconsin getting Scott tested and treated for Lyme Disease. So far his body is responding well to the treatment. Time will tell how his body responds long term. Lyme is hard to treat and is a long process.

This week has been tough.  It’s actually been exhausting.  Scott has been emotionally, physically, and cognitively strug...
12/13/2024

This week has been tough. It’s actually been exhausting. Scott has been emotionally, physically, and cognitively struggling all week. He has had two big falls. We are thinking he blacked out and that is why he fell. At this point, there is no explanation as to why he fell (or blacked out). He got admitted into the University of Iowa Hospital yesterday.

We will continue to use this page for updates.  Scott did not have a good week.  It was filled with ER visits and doctor...
11/09/2024

We will continue to use this page for updates. Scott did not have a good week. It was filled with ER visits and doctor appointments.

He was able to enjoy a couple hours of the benefit last Sunday. Any time he does something (even for a small amount of time), it just completely wipes him out. For days afterwards, he experiences extreme fatigue, weakness, head aches/migraines and chronic pain.

Here are some photos from the benefit!   It was a great day!   Thanks again for coming and supporting our family.
11/08/2024

Here are some photos from the benefit! It was a great day! Thanks again for coming and supporting our family.

11/04/2024

Thank you everyone for supporting our family. Seeing so many friends, family, neighbors, past coworkers, high school classmates, community, and even complete strangers come together at our benefit means the world to us. Thank you to all the donors for donating such wonderful prizes, gifts of money, and food. We are overwhelmed with gratitude. Thank you to all of the volunteers who made countless phone calls and traveled to pick up all of the donations. Thank you to everyone who helped with the baskets. The time you committed to our family is greatly appreciated.

I want to thank our family for your support over the past year. A special thank you to my mom. Without her, this benefit would not have happened. She spent an endless amount of time planning and preparing for this event. She has a lot of energy and was the perfect person to plan this benefit. No matter what I need, at a drop of a hat, she is there, always sacrificing.

I want to thank my kids…my older kids for all the ways you have stepped up and helped. For doing the little things and the bigger things just to show you care. My younger kids, for your resiliency. Your lives have changed over the past year. You have rolled with the changes and have sacrificed. You have learned compassion and the importance of putting others first. You have accepted the new “normal,” not knowing what to expect from day to day. I love you all! My two grandbabies for making me smile on the days that are tough and helping me forget the worries. I don’t know how I got so lucky that God chose me to be your grandma.

Thank you to my bankers and their families. You are not just my bankers; you are my friends, my family. Together, we have shed some tears, laughed, and have expressed frustration. You have been there with me in our highs of excitement when starting a business and while building our house, to the lows of being worried that we may lose it all. I don’t know how many times I have heard you say, “We are here for you. We will help in any way we can and do everything we can for your family.” Here you are again, not just showing support, but volunteering your time at our benefit. You have gone above and beyond and I am so grateful. If anyone is looking for a good bank, I will happily give you a referral to a bank that truly cares.

Thank you to my friends that I met through church. I could not have gotten through this past year without you. You have shown me what it means to truly love your neighbors. You have listened to me during my meltdowns. You let me cry. You held my hand. You prayed. You lifted me back up. You let me vent, without judgement. You have shown me grace. You have shown me love. You promised that you are not going to leave me nor let me walk through this alone. You have sacrificed. You have your own families, but you are continually there for us. You have shown up with meals, household supplies and coffee. You have helped us find resources. You have helped with projects around our house, chopped tree’s down, and so much more. You have shown me that it isn’t about life being too busy, it is about priorities. Your priority is serving Christ, which one way you do that is by serving others. Many times, I have heard you say, “Michelle, we’ve got you. We will walk through this with you.” You are so much more than friends, you are family. I love and appreciate you more than I could express.

Thank you to the Bean family, my neighbors. Over the past 15+ years, you have been there for me over and over again. You remind me what’s important in life, to keep my eyes on Jesus, not to worry about other people’s opinion, and not to fall for Satan’s tricks. You constantly direct me to truth, pointing it out over and over. Somehow you always know when I need you. You know my kids’ favorite treats, something as simple as a good apple, a pizza or some fresh fruit. Something so little to others, but so big to us to know you see us and you care about the details. You never cast judgement. Your friendship is one of a kind and it is treasured deep in my heart.

A thank you to all my friends. I don’t have time to list each and every one of you, but know you are all loved and appreciated. I am blessed with pretty amazing friends and I am grateful!

There have been days where I was exhausted and didn’t want to cook supper or days where I didn’t have the food to cook. The next thing I knew, a meal or bag of groceries appeared on my doorsteps. There have been times I went to pay a bill online and it would say, “paid in full” or partially paid. I never asked for help, I never told anyone what bills we were struggling to pay, but God saw it and He provided. I have seen people brought into our lives, like a classmate from high school that has went above and beyond in being gracious and kind and giving to our family. I will never forget what you have done for us! I have met complete strangers in places like grocery stores and Great Clips. God had us cross paths for a reason. Awhile back, my daughter, Nevaeh and I started working for a cleaning business. At the time, I thought we were connected with this company for only the purpose of needing a job. I have since realized God had bigger plans. A kind family that became our friends, fishing buddies for our sons, and have given my daughter and I the opportunity to work together and create memories that we will cherish forever. If any of you own a business and need your business cleaned, I can testify to this wonderful Christian business/family. When we meet people, we don’t always see God’s purpose. Trusting his plan and purpose has brought so many wonderful people into our lives. People we don’t even know have reached out to us that have shared their stories with Lyme Disease, chronic pain, or dementia. Each sharing what worked and didn’t work for them. Each giving guidance, support, and advice they have from their experiences. I am grateful for all of the wisdom, advice, and information I have received.

I am doing everything I can to take care of Scott, take care of our children, take care of our home, find Scott services, get Scott proper medical care and treatment (constantly researching), get everyone to all of their appointments/activities/jobs, be the sole decisionmaker for our family, find a way to pay all bills (now being the sole provider for our family), work when I can, and find time to be the very best caregiver, wife, mom, grandma, daughter, sister, and friend that I can be. I feel blessed to have so many people that love and care about our family and are willing to help lighten this heavy load. Thank you to each and every one of you for walking through this journey with us. Sincerely,
Michelle Kopf

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One dozen gourmet cupcakes and a gift certificate for a future dozen donated by Heather’s Cake Studio, Center Point.  $5...
11/02/2024

One dozen gourmet cupcakes and a gift certificate for a future dozen donated by Heather’s Cake Studio, Center Point.
$50 retail value

They look delicious! 🧁

This will be a $10 raffle.
10/31/2024

This will be a $10 raffle.

This will be a $10 raffle! Scuba diving in Iowa!
10/31/2024

This will be a $10 raffle! Scuba diving in Iowa!

$5 Raffle
10/29/2024

$5 Raffle

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