RETpositive

06/08/2025

🎗️ June is RET+ Cancer Awareness Month 💜

Every day, people with RET-positive cancers are fighting for more time, more options and more hope. You can give them that.

💥 100% of your donation goes directly to life-saving research. That means more breakthroughs. More lives saved.

👉 Donate today and be part of the cure: https://givebutter.com/nV0S6u

01/16/2025

Our fabulous RETpositive board member, Emily Walthall discusses the importance of biomarker testing and its life changing impact on her cancer treatment. Thank you Emily for sharing your story. We love you.

12/20/2024

The origins of the RET registry with 23 & Me started with a friendship between Ilana Stromberg of Happy Lungs and Susan Troper.

Learn about the origin of 23andMe's Lung Cancer Genetics Study and the work of patient advocacy organizations in helping advance research.

12/11/2024

Check out our article!

A tale of friendship, finding community, and turning pain into purpose.

Not to mention the utmost importance of Comprehensive Next Gen Sequencing!

https://www.thehealthy.com/cancer/lung-cancer/finding-friendship-advocacy-and-a-lung-cancer-community-through-comprehensive-genomic-profiling/?fbclid=IwZXh0bgNhZW0CMTEAAR2XlFNmWSsMgxU_sbo20Sz3Q8e8is480HGdlIVK_Psdk66DyF1i3Rq3O_Y_aem_tD4lfjsR

Special thanks to Eli Lilly, The Healthy and Jeremy Greenfield for this story!

Finding Friendship, Advocacy, and a Lung Cancer Community Through Comprehensive Genomic Profiling

08/07/2024

Join us at September 20-21! The International Lung Cancer Survivorship Conference (ILCSC) is a free virtual educational conference for people with , caregivers, and advocates. The conference provides opportunities for attendees to hear from world-renowned researchers on the latest treatments, learn about ways to manage their lung cancer and treatment journey, and find hope in today’s scientific progress. Register now by visiting lungevity.org/ilcsc
LUNGevity Foundation

04/04/2024

We are excited to release our RETpositive micro-documentary, . This film follows the inspiring stories of 4 incredible individuals living with stage 4 RET-positive lung cancer. It's a rare disease, but their strength and resilience are anything but.

Why you should watch:

Raise awareness: Learn about RETpositive lung cancer and the challenges faced by patients.
Meet the fighters: Be inspired by the stories of 4 incredible individuals.

Support a cause: Help us spread awareness for our work supporting RETpositive patients.

Get Involved: Click the link below to learn more, or on the Donate button at the bottom of the post to contribute to RET positive research.

https://www.retpositive.org

03/28/2024

We are excited to share Linda Trask's story. Linda, a stage IV NSCLC RET-positive cancer patient and never-smoker, was diagnosed in 2020.

Please share her courageous story. We are working to get the word out about this rare cancer and raise awareness and funds to make it a manageable disease.



LUNGevity Foundation
American Cancer Society
Oncogene Cancer Research

“I’ve never smoked. I’m a non-smoker. That was my immediate thought. I couldn’t absorb that I had a mass in my lung. When I found RETpositive, I was amazed b...

03/26/2024

Today, we are excited to share the inspiring story of Brittany Hawkins, a stage IV NSCLC ret-positive cancer patient. Brittany, a mom and never-smoker, was diagnosed at age 36 in 2021 with stage IV RET+ NSCLC.

(Brittany is one of four ret-positive cancer patients profiled in our micro documentary, which will launch on 4/3).

Please share this video! We want to raise awareness of this rare cancer and find treatments to make it a manageable chronic disease.

American Cancer Society
LUNGevity Foundation
Oncogene Cancer Research

“Because I lost my Mom when I was a teenager, I put myself in my son’s shoes. I would have been extremely upset if no one had told me that she was sick. So w...

03/21/2024

We are so pleased to share Sara’s incredible story. She is a 14 year RET-positive stage IV NSCLC survivor! For many patients living with this disease research is hope!
Please share!


LUNGevity Foundation

Sara was diagnosed with lung cancer in 2010. "I've had it all - chemo, radiation, immunotherapy, surgery - & since 2017 a targeted therapy known at the time ...

03/21/2024

New research is looking into why so many young adults are being diagnosed with lung cancer and if there is a genetic component increasing their risk.

03/19/2024

So excited to share this powerful video of Chad Dunbar. Chad is a RET-positive NSCLC patient whose story is both inspiring and courageous. In Chad's video, you'll hear:

His personal journey with RET-positive lung cancer.
How he's facing this challenge with strength and hope.
The importance of raising awareness for RET cancer.

https://youtu.be/_1wi5_GGW2Y?list=TLGGo2fbAJDn254xOTAzMjAyNA

Please share!

American Cancer Society Oncogene Cancer Research

Chad was diagnosed with lung cancer in December 2022, one week after he had logged over 3,000 miles that year of cycling in the mountains. He has been the cy...

01/29/2024

Our January newsletter!

Stonger together! We have raised almost $77k to support our next round of two-year research projects which will be awarded in collaboration with Lungevity and the Hamoui Foundation this spring!