RETpositive

RETpositive 501(c)(3) Nonprofit funding research and supporting all those affected by RET positive cancer

Happy Mother’s Day, especially to all the moms who are patients, caregivers, and advocates. The greatest gift is more ti...
05/10/2026

Happy Mother’s Day, especially to all the moms who are patients, caregivers, and advocates. The greatest gift is more time: more birthdays, more graduations, more Sundays with family. That’s what research is delivering.

100% of donations to RETpositive go directly to funding research grantees. Learn more about the research RETpositive & our partners have funded to-date: https://www.retpositive.org/pages/funded-research

The clinical trial for a new cancer vaccine has opened for RET-positive NSCLC patients currently taking a RET inhibitor....
05/07/2026

The clinical trial for a new cancer vaccine has opened for RET-positive NSCLC patients currently taking a RET inhibitor. Using the same mRNA technology behind the Covid vaccine, the goal is to train the immune system to recognize and attack cancer cells. This trial is currently enrolling at MD Anderson and select U.S. sites.

Full details here: https://clinicaltrials.gov/study/NCT05142189

Lori () was diagnosed with Stage IV RET-positive lung cancer in July 2022, but because of cancer research she’s soaking ...
04/21/2026

Lori () was diagnosed with Stage IV RET-positive lung cancer in July 2022, but because of cancer research she’s soaking up the sun on the water with her husband of 26 years! Lori is on targeted therapy and has had “great results so far.” Thank you for sharing your story, Lori!

100% of donations to RETpositive go directly to funding research grantees. Learn more about the research RETpositive & our partners have funded to-date: https://www.retpositive.org/pages/funded-research

What happens when RET inhibitors stop working? RETpositive and The Happy Lungs Project helped launch an international c...
04/17/2026

What happens when RET inhibitors stop working? RETpositive and The Happy Lungs Project helped launch an international consortium called the RETgistry to answer that question. Swipe through to see the findings!

Waliany S, et al. Landscape of Genomic Mechanisms of Resistance to Selective RET Inhibitors in RET-Altered Solid Tumors: Analysis of the RETgistry Global Consortium. Clinical Cancer Research (March 16, 2026)

100% of donations to RETpositive go directly to funding research grantees. Learn more about the research RETpositive & our partners have funded to-date: https://www.retpositive.org/pages/funded-research

Jenny was diagnosed with RET-positive thyroid cancer in 2016, but because of cancer research she’s still hitting the ski...
04/14/2026

Jenny was diagnosed with RET-positive thyroid cancer in 2016, but because of cancer research she’s still hitting the ski trails in Sweden. Thank you for sharing your story, Jenny!

100% of donations to RETpositive go directly to funding research grantees. Learn more about the research RETpositive & our partners have funded to-date: https://www.retpositive.org/pages/funded-research

04/11/2026

Happy National Pet Day from RETpositive! Meet some of the animal caregivers who make hard days a little softer.

100% of donations to RETpositive go directly to funding research grantees. Learn more about the research RETpositive & our partners have funded to-date: https://www.retpositive.org/pages/funded-research

Happy National Pet Day from RETpositive! Meet some of the animal caregivers who make hard days a little softer. Drop a p...
04/11/2026

Happy National Pet Day from RETpositive! Meet some of the animal caregivers who make hard days a little softer. Drop a photo of your pet in the comments — we want to see your caregivers too!

RET is best known in lung and thyroid cancer, but it can show up in colorectal cancer too. A new case report describes a...
04/10/2026

RET is best known in lung and thyroid cancer, but it can show up in colorectal cancer too. A new case report describes a stage IV colon cancer patient who was successfully treated with Retevmo. Read more here:

Trovato G, et al. “Molecular and Clinical Profile of a RET-Rearranged Colorectal Cancer With Prolonged Response to Platinum Therapy and Subsequent Targeted Treatment With Selpercatinib.” JCO Precision Oncology (2026) https://doi.org/10.1200/PO-25-00975

100% of donations to RETpositive go directly to funding research grantees. Learn more about the research RETpositive & our partners have funded to-date: https://www.retpositive.org/pages/funded-research

Our April Newsletter has updates on the landmark RETgistry study, our partnership with Lungevity, as well as links to ne...
04/08/2026

Our April Newsletter has updates on the landmark RETgistry study, our partnership with Lungevity, as well as links to new information about chemotherapy, biomarkers, and Retevmo for early-stage patients. Sign up at retpositive.org to subscribe!

was diagnosed with Stage 4 RET-positive lung cancer in 2019, but because of cancer research she was able to celebrate h...
04/06/2026

was diagnosed with Stage 4 RET-positive lung cancer in 2019, but because of cancer research she was able to celebrate her husband's 50th birthday! Amy is one of the most encouraging, most consistent contributors to our RETpositive Facebook Group for patients and caregivers. Thank you Amy!!!

100% of donations to RETpositive go directly to funding research grantees. Learn more about the research RETpositive & our partners have funded to-date: https://www.retpositive.org/pages/funded-research

Happy Easter from the RETpositive community!
04/05/2026

Happy Easter from the RETpositive community!

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