Carter's Coalition

Carter's Coalition In August of 2016, Carter Nolan Roberts was diagnosed with Acute Flaccid Myelitis (AFM), a very rare At first it seemed he just couldn't move his right arm.

In the time it took Carter to get a good nights sleep on July 30th his body began attacking itself. On 7/31 at 8 am Carter was in a ball on the floor next to his bed. He was unable to stand on his own and was saying "Help me, Help me". As soon as we went to the ER the doctor thought he had meningitis and a possible stroke. Carter was admitted to the PICU at CJW. Within 12 hours of his ER visit Carter fell unresponsive and was intubated. Forty-eight hours later Carter was paralyzed from the nose down. His stay in the PICU to uncover a diagnosis was complicated by pulmonary distress and involved three back-to-back days in the operating room. After 7 days doctors believe Carter had Acute Disseminated Encephalomyelitis (ADEM). High-dose sterois and IVIG helped minimally, the left side of his face came back to life and he could wiggle his right toes. Near the end of August though it became clear no other motor function or reflexes were returning. Carter was transferred 2 weeks ago to VCU for additional treatment and care. Carter now has a confirmed diagnosis (three docs at three different facilities) of Acute Flaccid Myelitis (AFM). Carter then spent 110 days in intensive in patient rehab. 9 months later Carter remain 100% dependent on a ventilator and others for all of his care and needs as a quadriplegic. The diagnosis is very rare and its spectrum of damage and recovery are vast. This page will serve to create awareness for Carter's condition as well as share information regarding Carter's progress and ways that everyone can get involved and assist. Donate at
https://www.gofundme.com/6m6ate77 ALL funds go to Carter's Irrevocable trust so they may be used only for his direct care, equipment and expenses related to him.

07/14/2025

McKenzie, and is a brave young adult from New Albany, Oregon, fighting to regain… Robin Roberts needs your support for Help Kenzie Reach Life-Changing Therapy

07/06/2025
04/14/2025
09/14/2024

Trying to help a family on the West Coast get to the East Coast with a medical flight for a teenager on a ventilator with severe physical impairments. If anyone has any contacts for a medical flight at the end of October to go from Washington state to Maryland, please let me know. 

12/15/2023

Wow, the response to the sizzle has been 🤯
https://watch.showandtell.film/watch/afmfilm

Your comments and contributions mean the world. A quick rundown of what you can watch.
1. Trailer: My (Sarah's) backstory on how this story came to be and why I had to take it on
2. Sizzle: Click watch now and enter your email to receive your ticket.
3. Surprise Announcement: Have you seen the news? I'll give you a hint....I may be changing the name of this page very soon. Take a look at the video from the Crew (me!)

Let's share this story far and wide! I've been fighting for two years to make this film happen and we are so close. Lets pull together the last funding needed to edit this full film and get it out to the world.

11/28/2023

It’s Giving Tuesday please consider supporting the AfMA to support families and research for Acute Flaccid Myelitis

09/22/2023

To honor Carter’s memory this week we want to call on the coalition on his 5 year Angel-versary and kindly ask that you consider donating $5 to the https://www.afmanow.org/donate or by doing a simple act of kindness for someone. Please help us by participating and sharing this post.

Exciting news! An AFM Film is currently under production - a remarkable documentary spearheaded by a phenomenal woman an...
05/25/2023

Exciting news! An AFM Film is currently under production - a remarkable documentary spearheaded by a phenomenal woman and her dedicated team. However, we're facing a significant funding challenge and need your support to make it to the finish line. This is why I'm reaching out to this community and to Carter's Coalition for your aid and to spread the word.

Financial contributions are crucial to facilitate domestic travel for the team and secure further necessary funds for the completion and promotion of the second half of this vital project. The implications are monumental - it can provide essential help to families and children, much like ours, mitigating devastating outcomes and even tragic loss.

Please, take a moment to share this post, spread the word, and let's further this cause! Contributions of all sizes, whether personal, corporate, or even collaborative partnerships with the team, are welcomed and deeply appreciated. Your assistance is the project lifeline! Here's where you can help: https://afmfilm.com/donate

Please consider donating and/or sharing
05/15/2023

Please consider donating and/or sharing

More details tomorrow! Let’s make the most out of the last moments of the weekend…

Donations $25 and higher receive a digital copy of the film: https://gofund.me/eeb178fa

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Charlotte, NC

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