Margaret Hackett Family Program

Margaret Hackett Family Program We currently have collaborating research sites located in Los Angeles, CA, Boston, MA, Charlotte, NC, and Portland, OR.

The MHFP aims to provide compassionate patient care, resources in support of community and education for both patients and their families, and steps in advancing the research and recognition of CNS anomalies such as Hydrocephalus, Chirai and more! The Margaret Hackett Family Program (MHFP) is a donor-funded program, established and supported by individuals who can appreciate the physical, developmental, and emotional challenges that children and adults may experience with congenital anomalies of the central nervous system. Common Congenital Anomalies:
- Chiari Malformation
- Craniosynostosis
- Syringomyelia
- Spina Bifida
- Hydrocephalus

The MHFP can help you by:
• Finding and connecting you with the correct physician for you or your child.
• Connecting you or your child’s care to other physicians or medical centers.
• Identifying supportive services that are available through the University of Chicago Medicine and partner organizations.
• Answering any questions or concerns you may have. The MHFP has also established a network of medical experts who are committed to the care of children and adults with congenital CNS anomalies, supporting innovative research initiatives that explore options for better care and treatment of these conditions.

11/13/2025

Join MHFP for our Annual Event at Pinstripes in Oakbrook!

Come connect with others in the CNS Anomalies community — including individuals and families affected by Spina Bifida, Hydrocephalus, Chiari, Syringomyelia, and more. This special day is all about building community, sharing stories, and having fun together!

Event Highlights:
🎁 Raffle prizes
🍽️ Catered lunch
🎈 Each child receives a toy
🎯 Family-friendly games & entertainment
📚 Resource vendor fair
🎳 Bowling and social time

Whether you’re looking to make new friends, find support, or simply enjoy a fun day out, this event is for you. Come join us, connect, and celebrate community!

Click the link in bio to sign up!

11/04/2025

Join us for the virtual MHFP Educational Webinar on November 6th at 7:00pm CST!

Our guest speaker, Dr. Arthur DiPatri, Director of Pediatric Neurosurgery at Comer Children’s Hospital, will discuss the understanding, treatment, and support of Hydrocephalus.



🔗 Click the link in our bio to register!

10/06/2025

🎗 October is Spina Bifida Awareness Month! ⁠

Spina Bifida is a lifelong condition, but with the right care and support, individuals can live full, healthy lives. 💚⁠

The Margaret Hackett Family Program (MHFP) supports amazing organizations like and to provide resources, build community, and advocate for individuals and families affected by Spina Bifida.⁠

✨ Learn more about our advocacy efforts—click the link in our bio.⁠

Join Margaret Hackett at the “Chicago Walk to End Hydrocephalus” with the Hydrocephalus Association on 9/21 in Libertyvi...
09/13/2024

Join Margaret Hackett at the “Chicago Walk to End Hydrocephalus” with the Hydrocephalus Association on 9/21 in Libertyville, IL. Join Margaret’s team and support the cause! Link in bio to join.

This study aims to address this concern by optimizing both the number and range of valve performance levels for infant h...
04/18/2024

This study aims to address this concern by optimizing both the number and range of valve performance levels for infant hydrocephalus, aiming for improved shunt surgery outcomes.

Learn more at our website!!

Join us Saturday April 26th from 11am to 2pm at Pinstripes in Oakbrook to meet and greet Connect Group members of the MH...
04/16/2024

Join us Saturday April 26th from 11am to 2pm at Pinstripes in Oakbrook to meet and greet Connect Group members of the MHFP. Join us if you are a new or existing group member or thinking about joining a group! Parents, adults and children are welcome to join! Register through link on bio!

This symposium will introduce a variety of central nervous system (CNS) congenital anomalies and the challenges of their...
03/26/2024

This symposium will introduce a variety of central nervous system (CNS) congenital anomalies and the challenges of their treatments. Specific congenital syndromes will be visited in detail to describe treatment approaches. In addition, models of care as well as future approaches will be discussed!!

Register with the link in our bio!

Address

5841 S Maryland Avenue
Chicago, IL
60637

Telephone

+17737950622

Website

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