Margaret Hackett Family Program

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Margaret Hackett Family Program

We currently have collaborating research sites located in Los Angeles, CA, Boston, MA, Charlotte, NC, and Portland, OR.

The MHFP aims to provide compassionate patient care, resources in support of community and education for both patients and their families, and steps in advancing the research and recognition of CNS anomalies such as Hydrocephalus, Chirai and more! The Margaret Hackett Family Program (MHFP) is a donor-funded program, established and supported by individuals who can appreciate the physical, developmental, and emotional challenges that children and adults may experience with congenital anomalies of the central nervous system. Common Congenital Anomalies:
- Chiari Malformation
- Craniosynostosis
- Syringomyelia
- Spina Bifida
- Hydrocephalus

The MHFP can help you by:
• Finding and connecting you with the correct physician for you or your child.
• Connecting you or your child’s care to other physicians or medical centers.
• Identifying supportive services that are available through the University of Chicago Medicine and partner organizations.
• Answering any questions or concerns you may have. The MHFP has also established a network of medical experts who are committed to the care of children and adults with congenital CNS anomalies, supporting innovative research initiatives that explore options for better care and treatment of these conditions.

09/13/2024

Join Margaret Hackett at the “Chicago Walk to End Hydrocephalus” with the Hydrocephalus Association on 9/21 in Libertyville, IL. Join Margaret’s team and support the cause! Link in bio to join.

04/18/2024

This study aims to address this concern by optimizing both the number and range of valve performance levels for infant hydrocephalus, aiming for improved shunt surgery outcomes.

Learn more at our website!!

04/16/2024

Join us Saturday April 26th from 11am to 2pm at Pinstripes in Oakbrook to meet and greet Connect Group members of the MHFP. Join us if you are a new or existing group member or thinking about joining a group! Parents, adults and children are welcome to join! Register through link on bio!

03/26/2024

This symposium will introduce a variety of central nervous system (CNS) congenital anomalies and the challenges of their treatments. Specific congenital syndromes will be visited in detail to describe treatment approaches. In addition, models of care as well as future approaches will be discussed!!

Register with the link in our bio!

02/19/2024

Join the MHFP on March 7th at 7pm for an online learning session on pain management with the Director of Health Psychology, Dr. Nancy Beckman!

Register using the link in our bio!

02/15/2024

The Margaret Hackett Family Program is awarding grants for Translational Research that focused on the biology, diagnosis, treatment or outcome of patients with central nervous system anomalies that are basic, translational or purely clinical in nature.

In addition, patient or family advocacy related projects are also welcome. Applications are due at midnight, April 1, 2024.

Apply today and visit our page for more details!

01/22/2024

Join the MHFP for Connect Group on Feb.1st!

The Margaret Hackett Family Program (MHFP) creates spaces for individuals with CNS Congenital Anomalies and their support systems to connect, receive support and be strengthened.

Get connected and register with the link in our bio!

01/22/2024

Dr. Seif Gholampour has published multiple articles on a variety of topics to help engage the research community, physicians and educate those experiencing these conditions.

This research topic, consisting of seven papers, seeks to provide more in-depth studies addressing concerns, explaining the complexities of CSF disorders, and offering insights into the mechanisms underlying these disorders.

Learn more about the evolving landscape of research the MHFP offers on conditions and disorders that are known for their considerable complexities by on our website!

01/08/2024

We’re hosting a LIVE Q&A THIS THURSDAY, Jan. 11th at 7pm and YOU’RE INVITED!

Learn about new ways to navigate the healthcare system as an adult with CNS Anomalies or while supporting an individual with one. We will have Lead Advanced Practice Provider for the Dept. of Neuro Surgery, Amanda Johnson to answer your questions and assist you with next steps.

You can register with the link in our bio!

01/02/2024

Join the MHFP for the first Connect Group of the year on Jan. 11th!

The Margaret Hackett Family Program (MHFP) creates spaces for individuals with CNS Congenital Anomalies and their support systems to connect, receive support and be strengthened.

Get connected and register with the link in our bio!

Address

5841 S Maryland Avenue
Chicago, IL
60637

Telephone

+17737950622

Website

https://mhfcp.uchicago.edu/

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