Margaret Hackett Family Program

Margaret Hackett Family Program We currently have collaborating research sites located in Los Angeles, CA, Boston, MA, Charlotte, NC, and Portland, OR.

The MHFP aims to provide compassionate patient care, resources in support of community and education for both patients and their families, and steps in advancing the research and recognition of CNS anomalies such as Hydrocephalus, Chirai and more! The Margaret Hackett Family Program (MHFP) is a donor-funded program, established and supported by individuals who can appreciate the physical, developm

ental, and emotional challenges that children and adults may experience with congenital anomalies of the central nervous system. Common Congenital Anomalies:
- Chiari Malformation
- Craniosynostosis
- Syringomyelia
- Spina Bifida
- Hydrocephalus

The MHFP can help you by:
• Finding and connecting you with the correct physician for you or your child.
• Connecting you or your child’s care to other physicians or medical centers.
• Identifying supportive services that are available through the University of Chicago Medicine and partner organizations.
• Answering any questions or concerns you may have. The MHFP has also established a network of medical experts who are committed to the care of children and adults with congenital CNS anomalies, supporting innovative research initiatives that explore options for better care and treatment of these conditions.

Register today to attend the 8th Annual Margaret Hackett Family Program Research Symposium:Intraventricular Hemorrhage o...
05/14/2026

Register today to attend the 8th Annual Margaret Hackett Family Program Research Symposium:
Intraventricular Hemorrhage of Prematurity - Pathophysiology, Outcomes, and Emerging Therapies.

Registration is free, and breakfast and lunch will be provided for all in-person attendees. CME Credit will be provided.

This event will be available online and in-person. Register here: https://cme.uchicago.edu/MHFPS2026

Hydrocephalus Association Education Day is rescheduled for May 30th!The Hydrocephalus Association is hosting Educational...
05/06/2026

Hydrocephalus Association Education Day is rescheduled for May 30th!

The Hydrocephalus Association is hosting Educational Day here in Chicago on May 30th! Dr. Arthur DiPatri, Director of pediatric neurosurgery at Comer's Children Hospital will be presenting on hydrocephalus management.

Click the link in bio to attend and learn more!

04/22/2026
04/22/2026
02/26/2026

Join us for our March Connect Group Webinar featuring Gabrielle Schmitt from the Division of Specialized Care for Children (DSCC)!
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📅 Date: March 5th
⏰ Time: 7:00 PM – 8:00 PM CST
📍 Location: Virtual via Zoom
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DSCC Services:

Access to diagnostic tests
Answers insurance questions
Care coordination plans
Communication with your child’s providers
Financial support
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Don’t miss this opportunity to learn, ask questions, and connect with resources that matter. 💬
⁠
Click the link in bio to register!

01/30/2026

Explore the latest published paper by Dr. Seif Gholampour:
“Preoperative Neuroimaging Markers, Clinical Severity Measures, and Shunt Characteristics for Predicting Shunt Revision in Idiopathic Intracranial Hypertension: An Explainable Machine-Learning Study.”

Visit the MHFP Research page on our website to read the full article.

Click link in bio.

01/09/2026

Connect with MHFP Connect Group leaders, hear more about the program, and share your story in an interactive, welcoming space. Let’s learn, connect, and build community!

Click link in the bio to register!

12/22/2025

We had a wonderful time at the 2025 MHFP Holiday Party at Pinstripes! Families came together to celebrate their accomplishments and milestones throughout the year. Thank you to everyone who attended and helped make the event so special. A heartfelt thank-you to our vendors—Illinois Respite Coalition, Illinois ABLE Account, and Division of Specialized Care for Children. This was truly an event to remember!

11/13/2025

Join MHFP for our Annual Event at Pinstripes in Oakbrook!

Come connect with others in the CNS Anomalies community — including individuals and families affected by Spina Bifida, Hydrocephalus, Chiari, Syringomyelia, and more. This special day is all about building community, sharing stories, and having fun together!

Event Highlights:
🎁 Raffle prizes
🍽️ Catered lunch
🎈 Each child receives a toy
🎯 Family-friendly games & entertainment
📚 Resource vendor fair
🎳 Bowling and social time

Whether you’re looking to make new friends, find support, or simply enjoy a fun day out, this event is for you. Come join us, connect, and celebrate community!

Click the link in bio to sign up!

11/04/2025

Join us for the virtual MHFP Educational Webinar on November 6th at 7:00pm CST!

Our guest speaker, Dr. Arthur DiPatri, Director of Pediatric Neurosurgery at Comer Children’s Hospital, will discuss the understanding, treatment, and support of Hydrocephalus.



🔗 Click the link in our bio to register!

Address

5841 S Maryland Avenue
Chicago, IL
60637

Telephone

+17737950622

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