Cooper's CF Crew

12/16/2025

12/31/2024

To see this medicine now available for so many different cystic fibrosis genetic mutations is amazing!!

The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to people with cystic fibrosis ages 2 and older who have at least one of 94 rare mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene.

12/12/2024

💜💜💜💜💜

Since its 2019 approval, treatment with Trikafta has markedly reduced the number of lung transplants for cystic fibrosis patients in the U.S.

12/01/2024

So true!! There is so much information that is outdated. Ask a CF parent and they will gladly share all of the best/worst parts of having children with cystic fibrosis in 2024!

Please don't search online to find information about CF, columnist Lara Govendo writes. Everyone's experience with the disease is different.

06/04/2024

Panera ✔️. Coffee ✔️. Time for a Cooper's CF Crew check up!!

05/05/2024

One more week until our 3rd annual Great Strides Walk with the Cystic Fibrosis Foundation!!!

03/06/2024

Woohoo!!! Thank goodness for these trials and studies!!

Trikafta is associated with improved mucus clearance, leading researchers to study whether stopped inhaled therapies would have an effect.