Lupus Lives Foundation

01/12/2026

Rest is not a luxury.
It is a medical necessity. 💜

Living with Lupus means navigating a body that is often at war with itself. When we talk about "resting," we aren't just talking about taking a nap, we are talking about vital biological maintenance.

Here is why rest is a non-negotiable part of the journey:

Physical Healing: While you rest, your body works overtime to repair cellular damage and flush out the toxins that contribute to systemic inflammation.

Immune Function: An overactive immune system needs "downtime" to recalibrate. Deep rest helps lower the stress hormones that keep your body in a state of high alert.

Flare Prevention: Think of your energy like a battery. If you push into the "red" every day, you trigger a flare. Rest is how we keep the battery charged and stay out of the danger zone.

Stop apologizing for needing to lay down. Stop feeling guilty for saying "no" to plans. You are managing a chronic condition, and your body deserves the grace to heal.

Listen to your body now, so it doesn’t force you to later. 🦋✨

08/01/2025

✨ Hello, August! 💜

A new month brings new chances to grow, glow, and go after what sets your soul on fire. As we welcome August, Lupus Lives is shining light on awareness topics that often go unnoticed, hair loss, sun safety, and eye health.

Whether you’re navigating chronic illness or simply trying to stay on top of your wellness, this month we encourage you to:

🌞 Protect your skin from the sun
👁️ Get your eyes checked
💇‍♀️ Speak openly about hair loss, it’s real, and it’s valid

Let’s keep showing up for ourselves and each other. Awareness matters.

07/23/2025

World Sjögren’s Day: Awareness Through Research 💙💜

Sjögren’s is more than just dry eyes and mouth, it’s a complex autoimmune condition that can affect your entire body. From swollen lymph nodes and kidney damage to central nervous system and nerve complications, the impact on quality of life is real.

As someone living with this condition, advocacy starts with you.

✔️ Stay hydrated
✔️ Monitor your eyes and mouth regularly
✔️ Communicate openly with your healthcare team
✔️ Prioritize rest and self-care

Empower yourself through education and action. Together, we raise awareness and push for research that leads to better care and lasting change. 💜💙

07/04/2025

Today, we honor freedom and the fight for it in every form.

As we celebrate Independence Day, we’re reminded that freedom isn’t about fireworks and flags, it’s about the everyday warriors who fight silent battles with strength and grace.

💜 Freedom is the ability to speak your truth, even when your illness is invisible.
💜 Freedom is the choice to rest, to heal, to advocate for yourself.
💜 Freedom is the power to live boldly, love deeply, and keep going, even on the hard days.

To every lupus warrior, survivor, caregiver, and advocate:

You are brave. You are worthy. You are a symbol of strength.

This Fourth of July, we celebrate YOU and the community that keeps fighting for visibility, equity, and hope.

🎆 Stay safe. Stay proud. Stay powerful.

07/02/2025

Always remember the strength it takes to be a

Your

06/29/2025

✨ Just a reminder from your Lupus Lives family: You are doing the best you can and that is enough. ✨

Living with lupus means waking up not knowing what your body will feel like today. Some days you’re a warrior in motion, others, rest is the battle you win.

💬 If today is one of those days… Pause. Breathe. 😮‍💨

Let yourself just be. Your strength is not in pushing through pain, it’s in listening to your body and honoring its needs.

06/24/2025

💜 Flare days are heavy — but you are heavier with strength ❗️

Some days your body slows down to remind you: rest is resistance, and healing is power.

✨ Even in pain, you are resilient.
✨ Even in stillness, you are fighting.
✨ Even in quiet, you are growing.

🌿 Today, give yourself permission to breathe.
To say no.
To sleep longer.
To ask for help.
To not be okay — and still be worthy of love and light.

📖 Affirmation:

“I honor my body’s pace. My worth is not measured by productivity, but by the courage it takes to keep going.”

Drop a 💜 if you’re choosing grace over guilt today.

Tag a warrior who needs this reminder.

05/04/2025

May is Lupus Awareness Month! Let’s stand together to support the warriors fighting this invisible battle every day. Lupus may be unpredictable, but our support is unwavering. Join me in raising awareness, showing love, and advocating for better research, care, and hope.

05/01/2024

Day 1 💜💜💜💜💜

Today we kick off lupus awareness month. Day 1 Wellness Check in💜

04/23/2024

💜🫶🏽

I hope everyone found a bit of joy and happiness this weekend, got some self care time in, and are ready for the new week ahead. Nothing bad happened today, so I’ll call that a very good day! Boring but good! Early appointment in the morning at the doctor’s. I told the receptionist since she couldn’t get me in later, and I don’t do mornings well at all, to expect me in my PJs. She’s buying me a cup of French Roast!! Frequent flyer perks, I guess 😆
Sleep well, sweet souls, and we’ll see you tomorrow! 🌝😴💤💜Beth 🟦

Artwork by Hajin Bae