Friends of Tim

Friends of Tim This site is for everyone interested in following along on Tim's journey through his heart transplant and life afterwards.

Tim suffers from a rare heart condition in which the lower half of his heart operates in reverse. Instead of the stronger half of his heart pumping blood to his body, it is serving his lungs. And the weaker half is working in overdrive to pump blood to his body. Tim also was born with other heart defects. A hole in his heart was repaired when he was just 5 months old. During that same surgery, a p

acemaker was installed to remedy an irregular heartbeat. Over the next 2 years, Tim had 3 surgeries to prepare him for the complicated "Double Switch" procedure. This complicated surgery disconnects major blood vessels from the heart chambers they are currently attached to and reconnects them to the correct chambers. Tim underwent this procedure in June, 2010. While the surgery successfully reconfigured the vessels, his heart did not recover fully and he is now in heart failure. Despite his diagnosis, Tim lives a very full and relatively normal life for a 5 year old boy. We keep in close contact with his cardiology team, and he is on several medications daily. He is now in need of a heart transplant, but we have always focused on making the most of the day to day.

A lot can happen in ten years…Keeping up my reputation of taking Tim to cardiology on holidays, today we headed downtown...
02/14/2023

A lot can happen in ten years…

Keeping up my reputation of taking Tim to cardiology on holidays, today we headed downtown for a clinic visit. Not much to report (always good), and as a special Valentine’s Day bonus, Tim gets to wear a holter monitor for the next 24 hours. 💗

06/09/2022
Only four weeks to go until the Move for Kids walk on June 12. Sign up to join our team, help raise money and awareness,...
05/17/2022

Only four weeks to go until the Move for Kids walk on June 12. Sign up to join our team, help raise money and awareness, or make a donation. We want to see as many of you as possible at Soldier Field that day!

More than just a walk, it is a day for our community to come together on behalf of the children we care about.

It's hard to believe that next month is the 10-year anniversary of Tim's heart transplant. He will be a featured speaker...
05/09/2022

It's hard to believe that next month is the 10-year anniversary of Tim's heart transplant. He will be a featured speaker at the 2022 Move For Kids fundraising walk for Ann & Robert H. Lurie Children's Hospital of Chicago.

We're hoping everyone will consider joining us for the walk on June 12th, making a donation, or both. We've created a Friends of Tim team page that you can do everything from:

More than just a walk, it is a day for our community to come together on behalf of the children we care about.

Tim rarely grants photos these days, evidence that he is a normal teenager.  Good news - his clinic visit confirmed that...
01/22/2022

Tim rarely grants photos these days, evidence that he is a normal teenager. Good news - his clinic visit confirmed that not only is he a normal teenager, but a healthy one too! 💖

After…. Overall a great visit - all the test results were good, just waiting to hear biopsy results tomorrow.  An added ...
06/25/2021

After…. Overall a great visit - all the test results were good, just waiting to hear biopsy results tomorrow. An added bonus, he only had to wait 2 hours after the biopsy to be released!

Checking in for Tim’s annual heart biopsy - year 9!
06/24/2021

Checking in for Tim’s annual heart biopsy - year 9!

Tim has spent this last “covid” year GROWING!   He is taller than his mom, and graduating 8th grade next week.  More goo...
05/23/2021

Tim has spent this last “covid” year GROWING! He is taller than his mom, and graduating 8th grade next week. More good news - he has received his first covid vaccine, and will be fully vaccinated before high school starts in the fall.

Address

225 E Chicago Ave
Chicago, IL
60611

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