The Spina Bifida Coalition, Inc.

05/25/2026

Remembering those who gave the ultimate sacrifice.

05/22/2026

COMING SOON! The 2026 Walk & Roll Website and Registration officially open on June 1st!

We can’t wait to celebrate 5 years of Walk & Rolls in Northeastern Ohio AND 26 years in Cincinnati. This year is going to be unforgettable.

⭐Early Bird Registration: June 1 – July 31
Your chance to support SBC and save $$ on your registration!⭐

What’s New in 2026:
**Exciting fundraising incentives for raising $500 / $1000 / $2000 / $3000
**A “Spec"tacular” registration gift

And NEW this year…⭐⭐ Every Spina Bifida Warrior will receive their very own BIG HEAD! ⭐⭐

Keep an eye out for the June–July newsletter on June 1st for all the details.

Let’s get ready to walk, roll, celebrate, and make 2026 our best year yet!!

05/18/2026

Board Spotlight on Judy Albert — A Legacy of Love and Leadership!

More than 40 years ago, Judy Albert and husband, David joined SBC shortly after welcoming their son, Tim. Since then, Judy has become one of the most dedicated and influential members of our community.

She has served as a Board Member at Large many times throughout the years, keeps our organization strong as the SBC Bookkeeper, and—together with Dave—launched the Walk & Roll 26 years ago, helping it grow into the beloved event it is today.

Judy enjoys traveling and spending time with her family, and while her six-year term on the board concludes in June, her legacy will continue to inspire us. And don’t worry — you’ll still see Judy at SBC events, cheering on the community she has helped build.

Thank you, Judy, for your decades of service, your leadership, and your heart. SBC is better because of you.

05/12/2026

Join us for the 63rd Annual Flying Circus!
June 27 & 28 • 12–3:30 PM • Butler County Regional Airport

The Greater Cincinnati Radio Control Club—one of SBC’s longest and most valued partners for over 34 years—invites you to two days of high‑energy flying and family fun featuring 175+ model aircraft of all kinds.

Jet Stars Youth Group
• Sport & aerobatic maneuvers
• A recreation of the Blue Angels’ four‑ship F/A‑18C Hornet formation flown on 90mm EDF jets

Food Booth
Hamburgers, hot dogs, pizza, chips, soda, water, Gatorade… plus the ice cream truck!

2025 Flying Circus Raffle
Prizes include a 3D printer, RC Flight Simulator, ready‑to‑fly RC plane, one‑year GCRCC membership, RC planes & cars, and premium bourbon.
Tickets: $2 each • 3 for $5 • 7 for $10
(Winners announced Sunday; no need to be present.)

Show Highlights
1/3 Scale Stearman Squadron • The Doolittle Raiders • 200 mph turbine jets • Giant B‑29 & B‑17 bombers • Rocket‑powered Bell X‑1 • WWI & WWII battles • Drones • Air races • Helicopters • Plus fun flyers like Spongebob, Snoopy’s Dog House, and Harry Potter
Full‑scale aircraft displays and possible fly‑bys, too.

Come enjoy one of Greater Cincinnati’s favorite summer traditions—brought to you by our incredible partners at GCRCC

05/10/2026

Happy Mother’s Day!

Thank you to all the moms for your dedication, strength, and the care you bring to everything you do. We appreciate you today and always.🌸

05/06/2026

Join ODD and Family Resource Network of Ohio for an Inspiring 1-Hour Live Session on Charting the LifeCourse!

Whether you're new to the LifeCourse framework or just need a quick refresher, this session is designed to spark ideas and support your journey toward a good life.
It’s perfect for individuals, families, and anyone looking to explore practical tools and strategies.
Bring a friend—or a few! Everyone’s welcome.
Scan the QR Code to register!

04/30/2026

Honoring 50 Years of Youth Challenge – Westlake

On Saturday, April 25th, SBC was proud to join the celebration at The Madison Event Venue in Cleveland as Youth Challenge marked 50 years of service, leadership, and community impact.

Our board members — Irene Dietz, M.D., Talisa Miles, LSW, Hillary Mettler, and Melanie Dresch, Esq. — along with their guests, enjoyed an evening filled with joy, reflection, and appreciation for the incredible work Youth Challenge continues to do.

We are grateful for our long-standing partnership and the shared commitment to supporting individuals and families in our community.

Cheers to 50 years — and to the future we continue building together.

04/28/2026

Have questions about financial or legal planning for yourself or a loved one with spina bifida?

Join us, TOMORROW, April 29 at 7 PM for our next Navigating Life with Spina Bifida session: Financial & Legal Considerations — created for grandparents, parents, caregivers, and adults living with SB. Register to attend at: https://secure.qgiv.com/for/sbcoc/event/navigatingsb/

Zoom link: https://us02web.zoom.us/j/83045994053
We’ll cover:
• Estate planning
• Special Needs Trusts
• SSI eligibility
• Guardianship & alternatives
• STABLE accounts and disability‑focused savings tools
Meet our panel:
• Melanie Dresch – Estate planning & probate attorney specializing in special needs planning and Elder Law
• Kathryn Bryan, Ph.D. – Financial planner blending neuroscience, psychology, and financial expertise
• STABLE Representatives – Sharing tools and strategies for long‑term financial security
This will be a practical conversation with plenty of time for your questions.

We hope you’ll join us and feel more confident navigating these important decisions.

04/24/2026

West Virginia Families and Self-Advocates:
On May 5 from 2-3 p.m., the West Virginia Statewide Independent Living Council is hosting a free webinar in their new Stewart's Legislative Education Series!
Presenter Chris Marr will be discussing how to effectively navigate and use the legislative website while wrapping up details from the recent Legislative Session.
Free to join, but registration is required: https://tinyurl.com/yh3anhfx
WV Statewide Independent Living Council

04/22/2026

Navigating life with spina bifida? You’re not alone!

Join us April 29 at 7 PM for our Navigating Life with Spina Bifida: Financial & Legal Considerations designed for grandparents, parents, caregivers, and adults living with SB.
We’ll cover:
• Estate planning
• Special Needs Trusts
• SSI eligibility
• Guardianship & alternatives
• STABLE accounts and disability‑focused savings tools
Meet our panel:
• Melanie Dresch – Estate planning & probate attorney specializing in special needs planning and Elder Law
• Kathryn Bryan, Ph.D. – Financial planner blending neuroscience, psychology, and financial expertise
• STABLE Representatives – Sharing tools and strategies for long‑term financial security
A warm, practical conversation — with time for your questions.

Register at

We invite you to join us on Thursday, April 29th at 7:00 p.m. for our next virtual education session: Navigating Life with Spina Bifida – Legal and Financial Considerations.