Tiffany's kidney journey

02/02/2026

I know I haven't updated y'all so much as on my personal page but I've been transplanted -- almost 5 months ago now.
And I'm 2 yr and 1 day clean from m**h.

11/21/2025

Not quite 3 months post
I haven't seen these numbers in AT LEAST 2 decades!!!!

10/11/2025

"Sky was diagnosed with a rare liver disease called Biliary Atresia. With no current cure for this disease, she had a Kasai procedure done, which reroutes the GI system in hopes of a better flow of bile. Despite the operation, doctors explained that a liver transplant could still be necessary in the future.

Once she was about 5-6 months, her GI doctor decided it was time to start the workup for transplant. My daughter's health reached a point where she could no longer stay home due to liver failure, and she was admitted to the PICU at Johns Hopkins and was placed on the transplant list. It had been 45 days since she was listed when one day her doctors came in and said they found a match for her. But after her transplant, she went to the OR five times within two weeks, had a chest tube placed, and had 2 code bells ring throughout the halls of the PICU.

After four weeks of a bumpy rollercoaster, when the day of discharge finally came, our social worker, Erica, came to our room and told us that Sky had been admitted for exactly 100 days.

It has now been almost three years since her liver transplant, and she is as healthy as can be. She runs, jumps and plays with no limits. She has such a boldness inside of her that she isn't hesitant to bring out. She is fearless and ready to take on anything.

She graduated from her therapies and met her nutrition goals. She went from 11 medications to now only five medications. She went from lab appointments twice a week to labs once a month. She went from having GI appointments every week to now every five months. The light was there the whole time. The light was at the beginning of the tunnel, in the tunnel, at the end of the tunnel, and was also there waiting for the next tunnel. All thanks to an organ donor."

– Sky's mother, Paris

Story via Donate Life America 💙💚

10/11/2025

Just over a month since my transplant. Tacro still gives me the shakes pretty bad. I'm feeling pretty good otherwise. Monday morning bright and early my stent and staples come out. Then no more trips to Des Moines until December. Thank you everyone for your thoughts, prayers and kind words.

09/11/2025

Just over 72 hrs post transplant GFR is at 39 and creatinine is 1.som**hing. I know most don't know what this app means BUT the higher the GFR the better - the lower the creatinine the better. "Charlie" is working amazingly. My whole team from transplant members to nephrology members and even the nurses in CCU are just amazed.
Now to address why/what is "Charlie". During this journey I've learned some recipients name their new bean. I chose Charlie just because. All I know about my donor is that it was a deceased 4 yr old. I don't know the s*x or even where they are from. This is kind of a hard pill to swallow but I do understand it was the family's wishes. I'm so grateful for this gift that this child and their family have given me. I hope to some day at least have a conversation with them.

09/11/2025

09/11/2025

MAKING AMENDS

Above all, we should try to be absolutely sure that we are not delaying because we are afraid.
TWELVE STEPS AND TWELVE TRADITIONS, p. 87

To have courage, to be unafraid, are gifts of my recovery. They empower me to ask for help and to go forth in making my amends with a sense of dignity and humility. Making amends may require a certain amount of honesty that I feel I lack, yet with the help of God and the wisdom of others, I can reach within and find the strength to act. My amends may be accepted, or they may not, but after they are completed I can walk with a sense of freedom and know that, for today, I am responsible.

From the book Daily Reflections.
Copyright © 1990 by Alcoholics Anonymous World Services, Inc. All rights reserved.

09/08/2025

I'M GETTING A NEW KIDNEY TONIGHT