Payton’s H3F3A Journey

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Payton’s H3F3A Journey Payton was diagnosed with an extremely rare gene mutation, H3F3A. She is 1 of 60 patients in the wor

11/02/2026
Just out here living her best life 🖤🌪️
11/02/2026

Just out here living her best life 🖤🌪️

This tiny tornado had the best time on her Christmas Vacation visiting our family and friends in Pennsylvania 🎄🎅🏻❄️🥶We l...
02/01/2026

This tiny tornado had the best time on her Christmas Vacation visiting our family and friends in Pennsylvania 🎄🎅🏻❄️🥶

We learned that she is 100% a Florida girl, she absolutely despises the snow and cold weather.

Payton’s favorite cousin rockin their New York Knicks jerseys 🖤🧡💙
30/12/2025

Payton’s favorite cousin rockin their New York Knicks jerseys 🖤🧡💙

27/12/2025

Surprising my dad on Christmas Day and her reaction made it SO worth driving to Pennsylvania 🖤

Just a sweet girl who lasted EIGHTEEN hours in the car while I drove to Pennsylvania for Christmas 🎅🏻 🎄🎁
26/12/2025

Just a sweet girl who lasted EIGHTEEN hours in the car while I drove to Pennsylvania for Christmas 🎅🏻 🎄🎁

Christmas shenanigans 🎄🎅🏻
21/12/2025

Christmas shenanigans 🎄🎅🏻

Sweet P UPDATE 🌻🖤Yesterday we met with her neurologist.Our plan is to do a at home EEG over a weekend to make sure she i...
17/12/2025

Sweet P UPDATE 🌻🖤

Yesterday we met with her neurologist.

Our plan is to do a at home EEG over a weekend to make sure she is still seizure free.

We will be starting intense physical therapy to see if we can help with her walking abnormalities.

We will follow up in 4 months and discuss her next MRI of the brain.

Santa came to school 🎅🏻
15/12/2025

Santa came to school 🎅🏻

A mouth full of food but my baby lost her first tooth 😭
09/12/2025

A mouth full of food but my baby lost her first tooth 😭

It’s been an exhausting five days for this sweet girl.. Payton unfortunately has strep throat for the first time since g...
25/11/2025

It’s been an exhausting five days for this sweet girl..

Payton unfortunately has strep throat for the first time since getting her tonsils and adenoids removed almost 2 years ago.

On Friday Payton had her follow up with her orthopedic and everything is going in the right direction. Her femoral head is growing properly since removing the screws. We will follow up again in six months to make sure it continues.

Today, Payton was at daycare playing outside when something bit her and she had an anaphylactic reaction. Her ears, neck, back, torso, and arms were covered in hives. Her eyes, mouth, and tongue started to swell so they had to call for an ambulance to take her to the hospital. Thankfully she is home and doing better. We are being referred to an allergy specialist.

I swear this sweet girl can never catch a break 😔

12/11/2025

Just a girl learning to communicate

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