Guarding Grayson

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Guarding Grayson Join us in the day to day struggles & triumphs of raising a type 1 diabetic (t1d) toddler, and his d It started with temper tantrums. I googled his symptoms.

Shortly after Graysons 1st birthday, our ever smiling toddler was going through some unpleasant changes. Literally over night he went from a playfully charming to downright miserable. Screaming for hours, banging his head around. Then his sleeping patterns began changing. He was listless a lot, napping more and becoming increasingly lethargic. The final symptom was HUGE increase in water consumption. At first I was so proud and showered him with praise everytime he emptied a sippy cup or bottle of water. After all, I know kids don't always like water and he LOVED it. Then he started the excessive urination, peeing through diapers at an alarming rate. We went up 2 sizes and started using overnight diapers during the day, and they would be full in a matter of a few hours. Soon he was choosing water over food. The very first article that came up on my search pertaining to a 1 year old consuming excessive water was, "viral onset type 1 diabetes." Grayson was hospitalized 4 months prior for a nasty respiratory virus. He was in the hospital for 4 days. I was scared but not convinced. After all, I knew of no one in my family with diabetes, nor Steves. So just to be thorough, I called my mother. I asked if there was any history, she told me no, not that she knew of, and wanted to know why I was inquiring, I told her my concerns. She told me to stay off of google and that my son was just being a toddler, toddlers sleep, have temper tantrum, and are fickle with foods. Perhaps I was just acting like THAT mom, that first time mom worrying about everything. But then with in a few days of my inquiries, things got worse. He had spit up a few times and I was shocked, he stopped spitting up 6 months ago! Then i realized it was mostly water. It was the day before easter Friday March 25. We went to crossgates to get eater pictures taken. They would be the last pictures taken before we were tossed into the world of diabetes. We had dinner at the mall after our pictures and we watched our son drink three 5oz sippy cups full of water BACK TO BACK and not even bother with his charished mac & cheese. That night he vomited water, but he had no fever, no diarrhea, or any other symptoms of being sick, so we made the decision to bring him to the pediatrician the following morning, a Saturday. We had a 10am appointment. Grayson had not eaten yet that morning, he was cranky. I told the pediatrician my suspicions and what I had read about. The weekend pediatrician (not our regular ped) seemed quite unconvinced that diabetes could be the problem after I frantically spewed my google findings. To humor me I'm sure, he finger stuck grayson and left the room for 20 min. It felt like an hour. When he retuned he told us that he has contacted Albany Med Emergency Room and that they will be expecting us, and that we needed to take our son there immediately. His resting blood sugar was 388. We fed him half a peanut butter and jelly sandwich with the pediatricians permission because he was so hungry and we knew it was going to be a very long day. By the time we were seen in the ER his blood sugar was in the 500's. I will never forget that moment. That pit in my stomach like 1000 pins deflated your heart and it sunk so far down in side you. I had an idea of what we had in store for us, but there was so SO much more. What our little boy would have to endure for the rest of his life.... 6 days in albany med PICU was just the tip of this diabetic iceberg.

Any fellow t1 parents want to share their kiddos 24 hour graph? 📈 😩📉
01/11/2025

Any fellow t1 parents want to share their kiddos 24 hour graph? 📈 😩📉

Sk8ing with my boy!!! Sharing this amazing pastime is so special to me!!
30/03/2024

Sk8ing with my boy!!! Sharing this amazing pastime is so special to me!!

Gearing up for chess club! ♟️
08/02/2024

Gearing up for chess club! ♟️

04/02/2023

This boy is my hero. Always and forever. .

“I gave you life, but really, you gave me mine.”  Thank you, Grayson, for your guidance. I hope I can make you as proud ...
19/05/2021

“I gave you life, but really, you gave me mine.”

Thank you, Grayson, for your guidance.

I hope I can make you as proud as you make me.


Determined. ♥️
21/03/2021

Determined. ♥️



A1c 6.3Pretty happy 😊 Lumen did fantastic in a room full of other type 1 children... considering she can smell the blood...
18/02/2021

A1c 6.3

Pretty happy 😊

Lumen did fantastic in a room full of other type 1 children... considering she can smell the blood sugar of everyone. She focused only on her boy.


11/02/2021

On this day, 6 years ago at 4:07 I delivered our son (after 35 hours of unmedicated labor)

We celebrate his birthday with pride! The mom in me celebrates differently, I celebrate his life because we were SO very close to losing him at 13 months old and never CELEBRATING another birthday again.

Signs and symptoms of type 1 diabetes:

❤️Extreme thirst
❤️Excessive urination
❤️Increased hunger (especially after eating)
❤️Dry mouth
❤️Upset stomach and vomiting
❤️Unexplained weight loss, even though they are eating and feel hungry
❤️Fatigue
❤️Blurry vision
❤️Heavy, labored breathing (your doctor may call this Kussmaul respiration)
❤️Crankiness or mood changes
❤️Bedwetting in a child who’s been dry at night

Please remember this.

You could save a child. ❤️

Happy birthday to our son, our hero, Grayson Romeo Stark. ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

02/02/2021

Awesome. 👏👏👏

16/01/2021

Lumen has been in the habit of alerting only adults (including grandparents) since we got her when Grayson was only 17 months old. Lately Grayson has been working with her. Some day when he’s older she will be accompanying him to school; as of now now we feel he’s too young to be her handler.

Graysons blood sugar was 100 and dropping.

Good low, Lumen!



The face of a warrior.
26/10/2020

The face of a warrior.

Looks the dexcom servers may be down again. At least for the sharing  app. Happening to anyone else?
25/09/2020

Looks the dexcom servers may be down again. At least for the sharing app.

Happening to anyone else?

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