Support Haydin Jones in the fight against MLD

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Our Story

Haydin was 2 years old when she was diagnosed with a rare disease called MLD. She was born healthy and did everything any toddler could do, walk, talk, run, play, etc. When she was a year and a half that's when she started having issues and showing symptoms, she couldn’t walk, had problems crawling, couldn't stand up on her own, had weakness in her arms and legs, and was shaky. With this disease it kills off the nerves, that is what is causing all her symptoms, this thing was deteriorating her nerves pretty fast and with no trace of stopping. According to the doctor there's no way of slowing it down and there are no cures, the life expectancy is 5-9 years old

Since getting diagnosed she has been through a lot of ups and downs, weight loss, sicknesses, hospital stays, tests, etc. but has proven to be one strong little girl. We have researched anything and everything including alternative methods to help our baby as well as doing anything and everything to make sure she has the best life she could possibly have, we never stop fighting for her and never will.

This page is to keep everyone updated with haydins progress as well as letting other families with similar or the same diagnosis know what we do that helps our baby. If you want any other information or just to talk feel free to contact me on here or through my email riahjones09@yahoo.com