02/11/2024
Good Evening !! Sorry it’s been a while for an update … but no news is good news! We are just living life, which is all we really want anyway, a chance to live life! Maddy has been doing really great. She is just our cute sassy, sweet little girl. It’s unseasonably warm here for February so we spent some time outside today. She is loving school and is finally starting to cooperate with her therapies (sometimes 😏.) They see starting to evaluate her in all areas (speach,OT, PT, IQ) for Kindergarten . While I’m happy they are doing this, it also scares me. It’s hard to see it all laid out in a long report, how all of this has affected her. I’m terrified to see how the radiation damaged her little brain. I just wish none of this happened to her. I’m so incredibly grateful she is here and continues to thrive but sometimes its hard with all of the unknowns about her future.
But look at her! Doesn’t she look fabulous ?!
I know she will do great things in her LONG life. She is so fierce and strong willed that nothing will stop her!!
She has a MRI on Friday (2/16), with this brings so much worry. No relaxing for this anxious mama.
Please keep her in your thoughts and prayers . I will be sure to update you once i know the results . If you can also pray that her big brothers flu does not infect her and I so this MRI doesn’t get postponed I would appreciate it!!