Sage’s Journey with CHD

12/21/2025

Unfortunately we spoke too soon and Sage and Alastor are down and out again 😞😮‍💨

12/17/2025

I can’t believe this is our fourth Christmas with you baby.

12/17/2025

Sage seems to have overcome the most challenging part of this and is now moving forward towards being his normal self.

12/16/2025

It’s been a rough few hours in our house. Poor Sage has been hit with a stomach bug and is dealing with a lot of throwing up. 🤒 It breaks my heart to see him so wiped out. Sending out a call for all the good vibes, quick-healing thoughts, and virtual hugs we can get! 🫶🏻

12/12/2025

Sage got a surprise visit from Santa, Mrs. Claus, and the Grinch. This is the second year Jason Ruark has been able to set this up for our little warrior, and we will always be so grateful to them for giving Sage this experience, which he probably wouldn’t have had if it wasn’t for them.

12/09/2025

The calendar flips to December's first snow, The world outside starts to shimmer and glow. But inside our haven, the lighting is dim, As we measure the feed and monitor him.
The garland is hung, but beside it, we see, A tangle of tubes from the IV tree. The stockings are hung by the chimney with care, Near the pump that keeps beeping its constant fanfare.
We dream of the carols, the pageants, the lights, But are tethered to monitors through long, lonely nights. No bustling airport, no long winter drive, Just praying our little one manages to thrive.
The scent of pine needles, sweet nutmeg, and spice, Is mixed with the sterile and comforting nice Of the hospital halls, or the scent of the home Where the nurses and doctors so frequently roam.
We try to wrap joy in the packages small, And pretend that the world is not waiting to fall. We speak of St. Nick, and the magic he brings, While counting the breaths and the flutter of wings— The angels of mercy who hover so near, Dispelling the shadows and calming our fear.
The well-meaning glances, the pitying stare, "It must be so hard," they politely declare. But the love that we feel is a fierce, burning light, That turns the long watches of darkness to bright.
This child is the gift, though the packaging's frail, A miraculous soul on a perilous trail. So we hang up a star, not of tinsel and thread, But a hope that keeps shining, though weary the head.
And as Christmas arrives, a soft, fragile grace, We find holiday splendor right here in this place. For the spirit of giving is giving our all, And watching our dearest stand steady and tall.

~we fight for sage~

12/01/2025

Megan is one of my best friends I don’t know what I would do without her 🫶🏻

THIS IS NOT ME AND SAWYER

✨ it has been requested that I post the boys Christmas wish list again since it is cyber Monday but the truth is you guys went above and beyond. I never imagined we would be blessed the way we were and will not be posting it because there are so many people who need help this holiday season ✨

So instead, today I want to share one of my best friends in the whole world. And by that I mean literally not five minutes goes by without us texting each other haha.

This is Megan and her sweet baby Waylon. Waylon spent most of his life in the hospital after being diagnosed with HLHS after birth. One of the worst days that I will never forget is getting a text from Megan in the middle of the night saying, “Waylon didn’t make it!!”

I remember sitting up in bed in complete denial saying no this can’t be real. I called one of our other best friends (Sage’s mom) who confirmed that it was true.

That was one of the darkest days our lives, even though baby Waylon ran into the arms of Jesus, all of us who love him were left here with a void that will never be filled.

So Megan is now expecting Waylon’s sweet double rainbow baby brother in just 10 short weeks (Megan also had a miscarriage after she lost Waylon).

This holiday season if you are looking to bless someone please consider this family. Megan has two older boys at home too who lost their baby brother and they are so excited to meet this new miracle.

I will put her baby registry in the comments 🫶🏻

So much love to every single one of you!!