Sage’s Journey with CHD

11/01/2025

10/20/2025

A huge thank you to Robert’s CDH Journey for sending us their belly bands Sage is truly enjoying them

10/09/2025

His poor tube 😭

10/07/2025

Sage's medical appointment today was favorable. His heart is in a stable condition, and we have been referred to immunology to investigate his lymph node issues. A third medication to manage blood pressure will be initiated, and although his aortic flow is slowing, it does not currently warrant medical intervention.

10/07/2025

We could use some prayers for cardiology to go good tomorrow 🤞

09/30/2025

The big kids school hosted a family picnic day. Sage and Alastor had a wonderful time meeting all of their friends.

09/29/2025

Sage will be going through a lot of tests soon so we can put him on growth hormones since he has stopped growing in height due to his stage of CKD, which is common. His nephrologist is concerned about some lab results indicating his heart is not in the best shape, so we will see his cardiologist next week for an echo and other tests. His liver labs are also elevated, so GI will need to monitor them and retest when we see the cardiologist. We also had to up his BP meds and kidney meds

Please enjoy his costume this year.