Kasai’s Journey

01/30/2026

A year ago today Kasai graduated the NICU, after a long 395 days. 361 of which we stayed at Ronald Mcdonald in columbus to stay close to him. Ronald Mcdonald was once just a place we heard of and then it became a place we needed. They welcomed us with a room to take breaks in and get rest away from the monitors. A place to shower and take care of ourselves while taking care of our son. They became a HUGE part of our life and still are! Today we decided to give back. Blankets, toys, food, drinks, pop tabs and more. Thank you to all who donated and all that helped out. We truly are greatful for the friends and family that helped us give back. You guys were a huge part of why today was able to happen. Also a big shoutout to the Northwood VFW 2984 for donating money as well as other things. We truly couldn’t be more blessed to give back.

01/24/2026

January 23rd,We traveled to columbus today for a seating and mobility appointment to discuss the options of seating for his wheelchair/stroller. Today we met with a group of people who specialize in the seating and who all collectively wanted to make sure that we’re making the right choice for Kasai. They all agreed and now we wait for it to go through insurance. We should know if we’re approved for it in 6 weeks and then we will have the equipment in 2-3months after approval. They will appeal is case if he isn’t approved but with his medical complexity we all don’t see them saying no,as it’s to better him and his condition. As always thank you all for the continued love,support and prayers❤️

01/23/2026

Yesterday, 2 years ago i held Kasai for the 1st time. After 20 days of life,he finally got to be embraced by my warmth,my love and my heart. I always heard holding your baby for the first time was a moment like no other….after 20 long days we both finally had our moment and it was the most special feeling in the whole world. The second picture is from after his last shunt surgery when i finally got to hold him again after letting him rest for a few days. And the final picture is one of us from last week. I couldn’t be more grateful for this little boy. The strength he poured into our lives,The happiness that he created in our hearts and The love that surrounds him. He was our blessing in disguise and we couldn’t more lucky. Your fight is forever our fight sweet boy,mommy loves you!❤️

01/15/2026

Share if you can,donate if you can! Anything and everything is appreciated!! This family needs all the love,support and prayers they can get. Their baby was only 3!! They are asking for help to cover expenses to help lay their baby to rest. She was in the hospital for a period of time,which we all know is a lot as is especially with medical bills. Praying for this family as they navigate this difficult time. Rest Easy Baby Girl❤️‍🩹

My name is ShaRon, and I am reaching out on behalf of my beloved granddaughter, Zhari… ShaRon Cowson needs your support for Support for Zhariyah Dunn’s Family

01/14/2026

“You hear that he said good job let me go to sleep”😂
(from his PT session this morning,practicing his rolls)

01/14/2026

Some pictures of our sweet boy over the last week or so. Not much to update recently,i’m gonna try to share updated photos of him when we don’t have any updates just so you guys can see his handsome self. I hope everyone is doing well with all the sickness going around! Please mask up if you don’t feel good,quarantine if you can, wash your hands and try not to spread anything. We’ve each (kasai,his dad and i) had a small cold on and off thankfully no fevers,no extra oxygen needed,just extra rest and pushing fluids. The stories being shared about babies,kids,teens and adults dying from sickness recently breaks my heart. I don’t wanna see any of you or us in that position so please take cautionary measures! Stay safe and as always thank you all for your love,support and prayers.

01/04/2026

We will be going down on the 30th,If anyone has anything else they’d like to donate or send to us! We appreciate it anything and everything! Thank you!

01/01/2026

3rd New year,2nd birthday,1st year home. Mannn, where does time go? You were just 1lb and now you’re 32lbs! You have come so far,beat so many odds and spread so much strength throughout our family. We love you more than words will ever be able to express and we couldn’t be prouder of you/nor luckier to be your parents.
Happy Birthday Chunk❤️

12/26/2025

All clean n cozy!! Hope all of you enjoyed your christmas❤️

12/25/2025

Merry Christmas from our family to yours!! 🌲❤️
Kasai had 2 christmas’a this year and enjoyed them both! He got to spend time with his gigi,papa and uncle aiden on christmas eve and his meemaw, aunt bay,great grandparents and cousins today! Our boy is spoiled rotten,we wouldn’t have it any other way. We’re beyond blessed to be home this year!