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Aladdin’s Journey

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Aladdin’s Journey

This is a page about Aladdin’s journey. He was born on 12/29/21 with rare brain disorders, ACC, hydrocephalus, and bilateral open lip schizencephaly.

Despite all of this, he’s thriving. �

01/30/2026

We haven’t posted on here in a while… which is a good thing I suppose.

I’ve been putting off posting on here for a couple of days now but felt that someone may need to hear or read this today.

As I was looking through old photos clearing up storage on my phone and came across the first picture that is below. As I looked at the picture memories and different emotions overwhelmed me. It took me back beside to the hospital room beside that bed. We just got the news that he was going to have another surgery due to his shunt failing since his last surgery about a year ago from that moment.

It felt as if the wind had been taken out of my lungs. Anger and questions filled my mind, with no peace or answers to seem to be in sight. I felt as if God had abandoned us..

“why would you bring us this far to take us back to square one”

Still to this day… I don’t have the answers. Maybe it’s because I was never intended to have all the answers. That’s when the big “T” word comes into play…. Trust.

As these emotions and memories rolled through my mind while looking at this photo, the lyrics to Aladdin’s song played through my mind…

During that time, we were living the lyrics “believing gets hard when options are few, when I can’t see what you are doing..”

The options weren’t what we wanted, it didn’t look like we think it should have by any means. To us it was back to square one after all of this time.

But now “I looked back on this moment and see your hand on it and know you were near…
… oh my God did not fail
Oh oh oh that’s the story I’ll tell”

The report didn’t look good,
It’s not what we wanted,
We had questions.. with no answers.
The wound had been reopened..

But during those times.. that’s when he does the miraculous.

Whatever you may be facing in this hour or this season… know he is a God who cannot fail.
Know that even before the problem or situation arose he already created a way out for you.
This did not take him by surprise

One day you too will look back on this problem, this mountain, this diagnosis or this situation and know that God was already handling it.

Be encouraged that if he fails you… you’d be the first person in history that he has ever failed.

06/23/2023

God has been good! Dr said Aladdin would never sit, smile, roll over etc. but God said otherwise!

WE HAVE A WALKER 🙌🏼

03/30/2023

It’s been awhile since we posted on here.
Aladdin is doing great still and growing like a w**d everyday.

But as I’m laying down tonight memories flood my mind and especially this one memory of the day he was born and the post that we made on Facebook (pictured below).

The words “worse case scenario he has to get a shunt..” is what was posted and that line runs through my mind as I’m laying here.

Looking back a shunt was the last and worse thing that could’ve happened (atleast we thought that) and did happen.

Now looking back a year and some months later (while Aladdin is thriving) the Lord has reminded me that he’s still God even in the ”worse case scenarios”. The worse case scenarios do not remove him from his throne nor strip him from his power. In fact he knew the situation would come to this even before the diagnosis happened.

If you’ve followed Aladdin’s story you know that God has outdone himself time and time again in just this past year. Proving doctors, reports and diagnosis wrong.

If you are reading this and your situation doesn’t look to good or hope seems lost…. He’s still moves in the “worse case scenarios”.

These lyrics have become true in our walk this past year and still to this day I have to repeat them to myself:

“Believing gets hard when options are few,
When I can’t see what you’re doing I know that you’re proving you’re the God that comes thru”

Hope this encouraged someone tonight❤️

11/21/2022

When Aladdin was first born they told us outside of eating and sleeping, there wouldn’t be much he could do. They said he would have very low quality life due to the severity of his Schizencephaly (how much brain he had missing) combined with his Hydrocephalus (fluid on the brain) and ACC (missing his part of the brain that lets the right and left communicate)

All 3 of these were working against him.

As soon as we got home. We started therapy 3 times a week. We were told it was gonna be a long road. There was already a plan in place when he graduated from early intervention to have him on a waiting list with a PT and OT for older kids.

Here we are, he is 10 months old. And he just got discharged from therapy today. We went through the checklist today and he has checked off all of the 12 month old things on the list.

I don’t make this post to brag, or to rub it in the faces of families who have had a hard road with their medically complex babies.

I make this post to let you know there is hope. This is nothing other than the hand of God working in Aladdins life. This can’t be explained by doctors, therapists, surgeons, or specialists. Most of all I make this post to bring glory to God.

Your road may be longer, it may be harder, but there is hope. When there is absolutely no way possible, God says “Let me show you what I can do” 💙

11/16/2022

My boy did SO good at his checkup today. His shots always make him sleepy so he’s taking a good nap now 💙

His pediatrician said we must’ve had a lot of people praying because Aladdin is a miracle baby! I told him we had a lot of prayers going up!

He’s very healthy! He is 96th percentile in weight, and 93rd percentile in height! 😊

11/03/2022

It has been awhile since I’ve made an update on here! Life has been so busy chasing Aladdin around on all his new adventures I can hardly keep up!

By the grace of God he has been doing extremely well! He’s made leaps and bounds in his therapy, they’ve moved him down to therapy one time a month! They, as well as we, are amazed at how God has moved in his life! It is so evident every single day and I can’t thank Him enough!

With the part of the brain Aladdin was born without (which scans show is growing now) he shouldn’t be able to talk. But he is on the level of a one year old in his vocabulary! He is very vocal and loves to use his voice. He has tons of personality. 😊

He LOVES to eat. His food, my food, and your food too. 😂 he’s a whopping 25 pounds! And boy this pregnant mamas back feels it. 😂

We always say thank you to everybody who has prayed for Aladdin. We know your prayers made a difference in his life. We are forever grateful. 🤍

08/25/2022

Update on Aladdin:

We just left from Aladdin’s MRI. They said his brain is GROWING and the fluid has gone down! He’s getting more brain, and less fluid. His head hasn’t grown any (which is good) and he doesn’t have to go back for 6 months! And not another MRI for a year! Also enjoy this picture of him eating a rib 😂

06/23/2022

It’s been awhile since we posted! Aladdin is doing so good! He is currently getting over a double ear infection, but he is getting stronger and smarter everyday. 💙

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