Derek's ALS Army

04/15/2026

I had the privilege last week of doing something, federal advocacy.
The goal is to renew and fully fund the Act for ALS. I have included the link to the bill information. The Congressional hearing is tomorrow. Keep your fingers crossed.

https://www.iamals.org/reauthorize-the-act-for-als/

04/08/2026

Thank you to everyone that participated in sharing our page! We are now at 575 followers! 💙

We are so excited to keep growing this page, spreading awareness, and sharing our day-to-day life with all of you

If you’ve shared, commented, or followed along—thank you💙 It truly means more than you know!

And now… onto our giveaway! 🥁🥁🥁

The winner is…
✨ Brian Robbins! ✨
(Please private message us to claim!)

Thank you again for being here and supporting Derek’s ALS Army 💙

04/05/2026

Wishing you all a very Happy Easter today from Finn & I!🐰🐣💐

04/04/2026

We are SO excited to have reached over 500 followers!🤍

Thank you for being here, supporting us, and helping us spread awareness—it truly means everything. But we’re not stopping here… we want to keep growing and reaching even more people 💪

To celebrate, we’re doing a giveaway!
✨ Every share of this post = 1 entry into a drawing to win a Derek’s ALS Army swag basket!

The more you share, the better your chances 🙌

🗓️ Contest closes on 4/7 — winner will be announced shortly after!

Let’s keep this momentum going 🧡

03/17/2026

A one week countdown to St. Patrick’s Day with your favorite Irishman🍀🇮🇪

03/17/2026

Hello everyone!
I am honored to share that I have been chosen as the Ambassador for the 2026 Walk to Defeat ALS in Rochester, NY!

This cause is deeply personal to me, and being given the opportunity to represent this community means more than I can put into words. I’m beyond grateful—and ready to make this year even more impactful💪🏼

Last year, our team showed up in a BIG way. We had the largest team (around 70 people) and raised an incredible $37,587!!! That support, love, and dedication is something I’ll never forget🤍

This year, we’re doing it again—only bigger 💙

📅 Walk to Defeat ALS
September 12, 2026
Rochester, NY

Whether you’ve walked with us before or are new to our journey, I would love for you to join our team, donate, or help spread the word. Every step we take and every dollar raised brings us closer to better treatments and, ultimately, a cure🤍

Let’s keep building this army together💪🏼

🔗 Join Derek’s ALS Army or donate here: https://secure2.convio.net/alsa/site/STR/Walks/UpstateNewYork?pg=team&team_id=425603&fr_id=17465&view_as_public=true

Thank you for standing with me and with everyone affected by ALS💙🤍

For people battling ALS, time is not a luxury to waste. With an average life expectancy of 2-5 years following diagnosis, there is clear urgency to optimize care and find effective treatments for those affected by the disease. That's why we need to do everything we can to help The ALS Association Up...

03/15/2026

Meet Derek!
Husband, father, friend- and the reason behind this page! Our story is bigger than ALS, and we wanted to share a little about the man behind Derek’s ALS Army!
Thank you for being here and supporting his journey💙

03/06/2026

Happy Friday from Finnegan and I🐾