Walking In Wynters Wonderland- Life With OFD14

Walking In Wynters Wonderland- Life With OFD14 This Page is For Prayers and Updates on Wynter's journey Through Her Medical Adventure.

Winnie was officially accepted into the AeroDigestive Program in Ohio this week. In about three months, she will be seen...
01/30/2026

Winnie was officially accepted into the AeroDigestive Program in Ohio this week. In about three months, she will be seen by their team under general anesthesia for biopsies of her GI tract so that we can address her swelling and inflammation seen on her last scope.

After going through her paperwork from Birmingham, I'm seeing that this has been noted during her scopes but never brought up or looked into, which brings me to say: get that second opinion!

01/21/2026

Update on Wynter 🤍

We’re back at our home away from home after today’s procedures at Cincinnati Children’s. Wynter did great and was such a little trooper through everything.

Today included:
• Bronchoscopy
• EUA of ears with ventilation tube insertion (ear tubes)
• Botox injections to the parotid Glands to help with secretions (We found during this the submandibular glands aren’t there)

During the procedures, the doctor noticed swelling of the esophagus lining, and this is pointing toward a possible additional disorder. Because of that, we’ll be adding a specialty GI team and planning a scope with them. He looked at it all while he was already there. He said it usually takes seven months to get in with them, but since they already have these videos and pictures and we are already established with all the other teams that will be there they will do a scope in 3 to 6 months.

Which Could be Gastroesophageal Reflux Disease (GERD): Stomach acid flows back into the esophagus, causing irritation. (She has already been treated for over the years without any testing)

He thinks there’s a possibility that it is Eosinophilic Esophagitis (EoE): An allergic/autoimmune response where white blood cells (eosinophils) build up in the lining.

Next up:
📅 Thursday, January 22 – Wynter will have a CT scan, and she’ll be given medication to help her sleep for it.

We will also be back in 3–6 months for follow-up care as we continue putting all the pieces together.

Thank you so much to everyone who has been praying, checking in, and loving on our girl. We’re so grateful for her care team and the support surrounding our family 🤍

One step at a time.
— Kristen 💕

01/19/2026

We left today for Ohio, and Wynter has surgery tomorrow. This will be an exploratory surgery to help doctors determine exactly what surgeries she will need next. Along with her yearly Airway scopes, ear tubes, and Botox injections to her saliva glands.

On Thursday, Wynter will also be given medication to help her sleep for a CT scan.
We will get a 3d/4d view of her airways to further help there surgery decisions.

If anyone feels led to help support us with travel, lodging, and medical expenses, we would be incredibly grateful. Prayers are always appreciated just as much. ❄️

Ways to help:
💙 Venmo: -Wonderland
💙 Cash App: $WyntersWonderland19
💙 PayPal: kristen.n.lewis@aol.com

Thank you for loving Wynter and supporting our family during this time. 🙏

‼️We have officially gotten the team of 4 booked for the O.R. For surgery in Ohio for January now just to book the CT HE...
12/08/2025

‼️We have officially gotten the team of 4 booked for the O.R. For surgery in Ohio for January now just to book the CT HEAD/FACIAL/3D for the same time we are there.

I’m Excited to see what there next steps are for her but, so nervous she has only ever had surgery at childrens of alabama.

Christmas will be smaller than the usual small as we are still paying for last months therapy trip and now have another medical trip nexy month.

We are also scheduled for 3 weeks of intensive therapy in birmingham for March and South Carolina Is getting on the books this week while there for her Cerebral palsy doctor.

2026 is going to come in fast and furious but, I believe it will come with lots of Answers and milestones.

Check out this Gift List I just created. https://www.amazon.com/registries/gl/guest-view/1DLYSG81LL13A?ref_=cm_sw_r_apin_ggr-subnav-share_6SM4XPMF8WRC02W181RZ&language=en-US

Ohio has been great to us! The Ronald mcdonald house is Absolutley the best out of the 3 we’ve been too. So much to do (...
09/05/2025

Ohio has been great to us! The Ronald mcdonald house is Absolutley the best out of the 3 we’ve been too. So much to do (and we can eat in our room! If you know you know)

The Pulmonary Doctor and The Plastic Surgeon had the best bed side manners. They explained everything so well that I had little to no questions! We come back in 3 months for a scope of all airways, a CT Scan, Botox saliva injections and a visit with Genetics. There looking to see about the possibility of tongue reconstruction or jaw surgery or even both. But, that would be known after that surgery they also would like to look at a sleep study after all of this.

So more fundraiser coming your way for travel. But, there very enthusiastic about being able to help her.

2 days until we leave 😳 thank you so much for the shares and support!
09/01/2025

2 days until we leave 😳 thank you so much for the shares and support!

Hi, my name is Kristen Lewis. And we are trying to raise funds for m… Kristen Lewis needs your support for Support Wynter's Path to a Ventilator-Free Life

9 days until we head to children’s of Alabama for an appointment. We will stay the night and head to children’s of Cinci...
08/24/2025

9 days until we head to children’s of Alabama for an appointment. We will stay the night and head to children’s of Cincinnati the next day. So excited and nervous to see what all the doctors say. Between the three teams. Praying for answers and an easy plan.

Hi, my name is Kristen Lewis. And we are trying to raise funds for m… Kristen Lewis needs your support for Support Wynter's Path to a Ventilator-Free Life

26 days until Winnie is “6” She loves cows, music, her Cocomelon laptop, remotes, phones, tablets, chip bags that haven’...
07/27/2025

26 days until Winnie is “6”
She loves cows, music, her Cocomelon laptop, remotes, phones, tablets, chip bags that haven’t been open. Pretty much anything that’s not a toy.

We decided to not do a big birthday this year because we have two big Medical trips. One to Ohio two weeks after her birthday. And then to Orlando for a week for intensive therapy in november. Not counting the week we have in Birmingham two days after we get back from Ohio. And whatever Ohio decides on us coming back.

So her birthday list this year will not be full of toys. But more things she needs along with some fun.

https://www.amazon.com/hz/wishlist/ls/2VD8IJPVA9ULK?ref_=wl_share

I wanted to send a special thank you to everyone that has donated this far! Every cent is a blessing! We can now pay for...
07/23/2025

I wanted to send a special thank you to everyone that has donated this far! Every cent is a blessing! We can now pay for one of the appointments and we have also started on the 2nd of the 3.

Sarah and Bobby Smith $200
Shannon $100
Denise and Chops Gay $100
Dixie Westbrook $25
Mallory Hayes $30
Jasmine Caldwell $10
Smantha Brasher $20
Jasmine Roberts $25
Lauren DeSantis $25
Alicia Rainer $25
Misti Staley (freeArm) $50
Thank you so much!

Hi, my name is Kristen Lewis. And we are trying to raise funds for m… Kristen Lewis needs your support for Support Wynter's Path to a Ventilator-Free Life

Address

Cowarts, AL

Website

Alerts

Be the first to know and let us send you an email when Walking In Wynters Wonderland- Life With OFD14 posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Walking In Wynters Wonderland- Life With OFD14:

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram