It is not me It's the disease

It is not me  It's the disease Health Advocacy/Activist, Blogger, Social Media Network Patient Leader & Chronic Pain Patient

03/02/2024

Thank everyone for the encouragement on the book! The Poetry book is almost complete and the secone book of my illnesses etc is getting there....

02/01/2024

▪️Raynaud’s syndrome is a medical condition in which the spasm of small arteries causes episodes of reduced blood flow to the end arterioles.

▪️ Typically, the fingers, and less commonly, the toes, are involved. In rare instances the nose, ears, or lips are affected.

▪️Episodes of Raynaud’s classically result in the affected part turning white and then blue. Often, numbness or pain occurs. As blood flow returns, the area
turns red and burns.

👉 As you can see in my photos, I am experiencing the last stage of Raynaud’s in which the blood flow is returning and my skin is red and mottled looking. And YES! It hurts! 👈

▪️ Episodes of Raynaud’s typically last minutes but can last several hours. Episode of Raynycan be very painful.

▪️Episodes of Raynaud’s are often triggered by cold or emotional stress.

▪️Primary Raynaud's, also known as idiopathic, means it is spontaneous, or of unknown cause, and unrelated to another disease.

▪️Secondary Raynaud's occurs as a result of another medical condition. Secondary Raynaud's can occur due to a connective-tissue disorder such as scleroderma or EDS, RA, MS, Chronic Fatigue Syndrome, Fibromyalgia, Lupus, Hypothyroidism, injuries to the hands, prolonged vibration, smoking, thyroid problems, and certain medications, such as birth control pills.

▪️Diagnosis is typically based on the symptoms.

▪️ Unfortunately there is not a typical treatment approach for Raynaud’s.

▪️ For Secondary Raynaud's (if possible) managing the underlying medical condition causing it can reduce symptoms/episodes. For both Primary and Secondary Raynaud's, avoiding triggers such as cold, emotional and environmental stress, vibrations, repetitive motions, avoiding smoking and sympathomimetic drugs can help alleviate symptoms.

▪️ The most important aspect of Raynaud’s is to have a medical professional provide ongoing oversight of a patient, to monitor for worsening of symptoms, or increased risk of developing skin sores or gangrene.

▪️ Approximately 4% of people have Raynaud’s. Raynaud’s is more common in cold climates and is often dubbed the “disease of being allergic to the cold.”

01/28/2024
Some know...some don't..I took a slip/fall Dec 23rd..had Femur Fracture surgery Dec 24th...bad type of fracture down my ...
01/26/2024

Some know...some don't..I took a slip/fall Dec 23rd..had Femur Fracture surgery Dec 24th...bad type of fracture down my knee knee and it is a prosthetic..it survived the slip but not my femur..
I spent until Dec 28th in Dallas in the hospital..came home to try an do home rehab rather than go to inpatient...which turned out to be a disaster....
I have a very LONG way to go ..and this will be a slow process..right now I am in a half cast/brace..and cannot bend my L. knee at all...so it is crazy trying to learn to get around...
I have NOT seen it but I have a very long plate and well over 10 screws holding the plate in place... it broke it lengthwise..from about 5 inches or so above that knee down to the knee cap...
I was told it is a difficult fracture and complicated surgery... it has been one issue after the other... I SHOULD have been able to GO to inpatient rehab FROM HOME IF I CHOSE THAT IT WAS TO MUCH AT HOME..between what all wrote and I read it..and the holidays delaying it all my INSURANCE DENIED ME GOING TO INPATIENT REHAB...
So I am continuing to rehab at home..and although it is a long process I feel this has already changed a portion of my life for the good... as bad as we often make these situations...
My L.hand is so full of arthritis, my R. collarbone is still getting over collarbone fracture surgery..my back hurts..both hips are bruised...I am colored like a rainbow from head to toe...

May Each and every one of you have an incredible holiday season. May the blessings abound with you and yours... and may ...
12/21/2023

May Each and every one of you have an incredible holiday season. May the blessings abound with you and yours... and may you be Overly Overjoyful about what Christmas is all about.

Wish everyone you know a blessed Christmas!

12/05/2023

As you are running...or many of us shopping online due to ot being able to get out...remember YOUR health is most important. Use your energy wisely. Rest when you need to. Split your activities in to several days or weeks. If you have an activity you are too exhausted, it is okay to say "No."

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