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Myelin Moxi

This page is about roller skating and how I use it to combat Multiple Sclerosis. I share my tips, tricks, falls and progress along both journeys.

05/30/2025

Happy World MS Day! I’ve been MIA lately because, well, it’s not a pandemic anymore and life is calling me in so many different directions that I simply don’t have as much time to skate anymore like I did in 2020. Nonetheless, MS is an everyday thing that I always have to make time for, regardless of life circumstances.

If you’re new here, I was diagnosed with Tumefactive MS almost 8 years ago and have been rolling with the punches ever since. My journey started with numbness and tingling in my hands and feet when entering a hot vehicle in the middle of Texas summer. I saw a neurologist who prescribed me every medication under the sun until I found one that worked for me—now I’m on Ocrevus, which has been working wonders for the past 4 years.

MS looks different for everyone; some of us are rolling on skates while some of us may roll on a different set of mobility wheels, but regardless of what part of the journey you’re on, we’re all rolling towards the same outcome: to find a cure to end MS forever 🧡

04/10/2025

Ocrevus infusion: ☑️ let’s be real for a sec. The whole insurance + medication process is a WILD ride. Not only did I change insurance plans, I initiated the process with my Ocrevus provider in late January and didn’t get a full confirmation until April 2! 😤

Needless to say, I stood on business and get my infusion on time. Cheers to another protected 6 months to keep rolling. 🧡

03/16/2025

Day 16/365: Night skates never hurt anybody 🤭 here’s a cute bail

03/14/2025

Day 14/365: Ok! So those shin stretches and exercises I’ve been doing have been really helping! I actually prepped last night and it felt amazing.

and I returned to our old stomping grounds as we “condition” to skate the Walk MS Dallas event in April! It felt so good to be back in the environment that started it all and made me fall in love with my wheels all over again. 🧡 What place made you fall in love with skating?

03/03/2025

Happy MS Awareness month! I love being vulnerable and real about my diagnosis and talking about MS with anyone and everyone. My favorite thing is to connect with other people living with MS and instantly feeling that sense of camaraderie, that exhaling feeling of no longer being alone in this very moment 🧡

To kickstart this journey of spreading the word, I’d like to share with my new followers a little bit about my diagnosis and what this funky two-letter word is all about it. Firstly, hi! I’m Kaci! I live with Multiple Sclerosis and having a great time! 😅 Multiple Sclerosis, or MS, is an autoimmune disease that attacks health nerves in the brain and spinal cord. The damage to the nerves is the immune system mistaking healthy myelin sheath for “bad guys” and eating away at the fatty coverings protecting the nerve itself (think of rags chewing through a wire and leaving it exposed).

The “exposed wires” then have difficulty relaying appropriate signals from the brain, leading to strange happenings in the rest of the body. Symptoms typically associated with this are numbness/tingling in extremities, balance and gait problems, cognitive issues like thought processing/decision making, vision issues, sometimes speech problems, incontinence, nerve pain and even memory loss.

MS looks different on everyone! While two people may experience a handful of similar symptoms, the journeys are not the same and do not have the same outcome. There is not a cure for this lovely anomaly as we know it, but we are able to slow the flare ups/progression/disability of this disease with disease-modifying therapies, or DMTs. MS can affect anyone no matter race, gender or background. It is NOT contagious and is a lifelong illness that affects everyone differently.

Thanks for coming to my TEDtalk 🙌🏾 If you or someone you know is newly diagnosed, or suspects that MS could be a factor, don’t hesitate to reach out to the MS Society to speak to an MS navigator and discuss your options. 🧡

12/17/2024

It’s ok not to take a giant leap of faith in order to achieve your goals. The small steps it takes to get there equal up to the big leap. Goals are suppose to be bite-sized to be manageable and reachable.

It’s also ok to work hard towards the goal and take breaks to keep going. Give yourself a rest and recover from the hard work you put in. When you get back to it, you’ll be better prepared to continue on to greatness. 🧡
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11/22/2024

Plants + skates make the best dates! I’m still high on my skate-cation in downtown Ft Worth and visiting this amazing plant store on the way! I wasn’t able to wear my skates inside, but having them leashed on my back was still a badge of honor 🎖️ there’s nothing like exploring your metroplex on roller skates

11/14/2024

I finally skated downtown Ft Worth, y’all! 😍 Much different than skating Dallas due to all the cobblestone terrain (which wasn’t my favorite) but I conquered it, just like old times. It was so good to be outside on my wheels reliving those summers with my favorite peeps 🧡 .vixen I’m looking at you! 😂

To many more seasons of reigniting your love for a hobby that brings you to life
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10/30/2024

Nothing to see here other than some light work that I’ve been working on. Getting back into skating like I used to is proving to be a nostalgic experience and a humbling reminder of “if you don’t use it, you lose it.” A few summers ago I was ripping and running all over the streets of DFW, and today my stamina forces me to take breaks to catch a breath. While that’s not a bad thing, it certainly makes me wish I never stopped skating in the first place. Heres to picking up where we left on and continuing forward to greater things 🧡
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10/21/2024

Multiple sclerosis is a hell of a disease 😅 sometimes I’m functioning as normal, rolling around on all eights, and the next day I could have such extreme numbness in my feet that it’s hard to walk. I wish there was a schedule on days I could expect my flare ups, sorta like birth control.

The unexpectedness of Multiple Sclerosis baffles me everyday, but one way I make the best of it is engaging in my favorite things with my favorite people while I still have good days.

Skating is a hobby that keeps me sane and motivated to live my good days to their fullest. My journey is unique to me, and I want to own all of the time I have left by doing something that continuously brings me to life. 🧡

10/17/2024

This quote by Helen Keller resonates with me this morning because the mere feeling of roller skating can’t be seen or touched, but is something that truly warms my heart every time my wheels touch the pavement. Skating brings me so much joy that I haven’t found in any other hobby. It’s a different kind of happiness that I’ve become obsessed with, and I hope it never goes away.

On a lateral level of joy, I am so excited to share that I started a new job this week with Girl Scouts and I’m over the moon at how my life is progressing in the best way. New beginnings and unmatched feelings are all I welcome at the closing of 2024 🤩🧡

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