Noa Strong

Noa Strong At 16 months old, Noa was diagnosed with B Cell Acute Lymphoblastic Leukemia.

This page is to document her journey and share updates in one central location. 💛🦈✨
See a Shark, Say a Prayer.

❄️🎅🏼✨Someone was very excited to see their favorite Santa this weekend 💛❄️✨🎅🏼Thank you for another year of magic Visits ...
12/09/2025

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Someone was very excited to see their favorite Santa this weekend 💛❄️✨🎅🏼

Thank you for another year of magic Visits from Santa 💛

And thank you Rally Foundation for Childhood Cancer Research for another incredible Christmas party!!

On this beautiful Giving Tuesday, I want to provide a list of organizations that have PERSONALLY helped us. I can vouch ...
12/02/2025

On this beautiful Giving Tuesday, I want to provide a list of organizations that have PERSONALLY helped us. I can vouch that they are legit and get help, support and genuine kindness straight to families facing pediatric cancer.

1) Restoration Farm. Hands down, the kindest, sweetest woman and her team of volunteers. For the last year, Dani and her crew have shown up for us again and again and again, most of the time without asking. It is an incredible organization and deserves far more love and support! Dani, we adore you. 💛

2) Wish upon a starfish is an absolutely incredible organization. When we needed a break the most, they provided it and went far above and beyond anything we could’ve even dreamed for. Tom, his wife, and their team are so incredibly generous and we are forever grateful for our week with the and the friendship we now have.

3) The SebiStrong Foundation are also an incredible organization. They provide very nice wagons to children undergoing cancer treatments, along with so much more! They have become dear friends and we are so grateful for their organization.

4) The Brooklynn Miller Foundation creates the most detailed care packages that truly go above and beyond for these kids. I will never forget the joy on Noa’s face when she received her singing Asha doll and matching dress. She was so happy in a very hard time of treatment. I will forever be grateful.

5) Roc Solid Foundation builds incredible playgrounds for children, and sends hospital ready bags. Why is this so important? Because our kids need a safe place to play and regain their childhood. I am so so so incredibly grateful for Noa’s playground. She plays on it almost every single day. And we use her ready bag for every clinic visit and hospital stay.

There are so many more, but these are the top 5 that can make an immediate difference in a warrior’s life.

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🦈💛✨We have so much to be thankful for this year!! 🙌🏻I apologize for the late update. I was waiting on the clinical notes...
11/28/2025

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We have so much to be thankful for this year!! 🙌🏻

I apologize for the late update. I was waiting on the clinical notes on MyChart before I gave a full report.

To start, Noa got to go to her cousin’s house yesterday and enjoy all the goodness of Thanksgiving! Last year we were still quarantining, so to be able to have a semi-normal holiday was amazing. 🦃 Other than a small case of the steroid grumps, she had an absolute blast! Then we came home and got to watch our favorite “Santa Uncle Tom” on the big screen as he read a Bluey Christmas book! Then Noa decided she was too cool for Mami and Daddy, and jumped in thr car with her Lolli and Pops for a weekend campout in their living room.

✨✨NOW FOR THE MEDICAL NEWS ✨✨

Noa’s ANC has been steadily climbing for the last few months, most since her hospitalization in August. On Halloween, her ANC was 4000, which is just, way too high. A high ANC could point to many unfavorable things, the scariest being the beginning of relapse.

We are SO pleased to say her ANC has ✨COME DOWN✨ to a safe level!! As of Wednesday, her ANC is now 1240!!! God Bless Dr B and his staff for keeping our girl safe and healthy.

In addition to that, her platelets are also starting to come down, which makes our care team think that the gentic mutation she has, has finally released her platelets and is now focusing on something else. What that is? We’re not sure yet, but we’ll find out eventually.

AND! Her for the second month in a row, her IGG numbers have started to increase on their own!!! This is such a huge thing, because it means her immune system is slowly but surely strengthening on its own! We went from 490, to 512, to 526 in her last three appointments. Threshold for an IVIG infusion is 400, so it’s doing the right thing! Dr B said it’s too soon to call it, but it’s very possible Noa will never need an IVIG again!

We are so so so incredibly grateful and thankful for Noa’s amazing care team. They are truly angels on this earth. And we praise God every day for keeping our baby girl safe and saving her.

We go back December 30th for another round of bloodwork, and there’s still the possibility of an IVIG, but we might get to run away again!

We hope you all had an amazing holiday! We are truly grateful for each of you that keeps up with Noa’s journey. The first thing on our gratuity list is always “stranger on the Internet who rally behind our baby.”

We love you. Thank you.

See a shark, Say a prayer. 🦈💛✨

Off to start Cycle 3 of Long Term Maintenance… we get to party hardy with a lumbar puncture at 7:30am.Noa has her prized...
11/26/2025

Off to start Cycle 3 of Long Term Maintenance… we get to party hardy with a lumbar puncture at 7:30am.

Noa has her prized sharks, Beignet and Nina, and we are on the road.

Daddy will join us soon. Until then, it’s a girly pop dance party. Pitbull ain’t got nothing on us.

Prayers for no traffic, good numbers, and good vibes.

One of the things that’s not talked a lot about with parents of kiddos fighting cancer is scan anxiety.Noa has an upcomi...
11/22/2025

One of the things that’s not talked a lot about with parents of kiddos fighting cancer is scan anxiety.

Noa has an upcoming lumbar puncture on Wednesday, and even though this is her 24th lumbar puncture, waiting for the results is terrifying.

Noa’s ANC has been increasing since her hospitalization in August, and because of that they increased both of her oral chemotherapies. If her ANC still isn’t at a “normal safe” level, they’ll increase her chemos again.

It feels like every step in Long Term Maintenance comes with more and more monster truck sized speed bumps. She flew through Frontline with so few hiccups, that everything feels devastating in LTM.

Noa continues to greet each day with an incredible smile and a thirst for life that is undeniable. She truly has handled her cancer diagnosis with more grace and bravery than I know I have. That’s one of the devastating blessings with this being basically all she has ever known.

Noa’s appointment is bright and early at 7:30am on Wednesday. Her lumbar puncture will be followed by a round of port chemo, and we have another 50/50 shot at having an IVIG infusion again.

We are praying for answers on her numbers and good results.

It’ll be a girls only driving party down to the hospital, because Daddy doesn’t get off work until her appointment starts. He’ll meet us down there when he can. So also extra prayers for solo driving in Atlanta 😅

Precious girl, we love you so much. 💛

See a shark, say a prayer. 🦈💛

✨🪩🎸Dollywood with Blue Skies Ministries was absolutely magicalNoa experienced her first theme park and we had an incredi...
11/11/2025

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Dollywood with Blue Skies Ministries was absolutely magical
Noa experienced her first theme park and we had an incredible time with our besties MightyMav and Charlotte’s Courage

Thank you again, Blue Skies, for just the weekend we needed 💛

11/11/2025

Noa’s having a rough night. She woke up vomiting at midnight. Please say a prayer for her and pray she rests easy the rest of the night.

🦈💛✨This is the face of a little girl so excited to be able to trick or treat!!!Noa had clinic early this morning and cou...
11/01/2025

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This is the face of a little girl so excited to be able to trick or treat!!!
Noa had clinic early this morning and couldn’t have been happier when Dr B said “Go home and enjoy some candy!”

The nitty gritty of the appointment; Noa’s liver enzymes have continued to rise, however her care team is not concerned yet. We will just continue to monitor.
Noa’s ANC was also extremely high (4000) and they prefer to keep it between 700-1200 or close to. They have increased her dosages on her daily oral chemo and her Friday chemo to help lower her ANC and keep it where it needs to be. With increased dosages may come increased nausea, so we are awaiting that storm.
We also had some minor issues with her port this morning. It has apparently shifted some and tilted. Normally, not an issue, but if her port flips completely, she will need a port revision surgery. But that’s an issue we will come to if we need to.

For now we sit, we monitor, we pray cold and flu season stays very far away from us, and wait it out till our next appointment.

Noa’s next appointment is the day before Thanksgiving, and she’ll start Cycle 3, so that’s a lumbar puncture, port chemo, and a steroid pulse.

Noa’s IGG levels rose on their own but just barely. So there is a chance that she will also need an IVIG in November.

Until then, we’re going to count today as a win. Cancer didn’t steal another childhood regularity away from us today.

See a spooky shark, say a loving prayer 💛🦈

10/31/2025

Off to clinic bright and early. Praying for decent labs. 💛

10/29/2025

Please say a prayer for your favorite shark.
She’s not feeling so hot today. I’m not sure if it’s the weather or if it’s another bug. But she’s thrown up twice already today.

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Dawsonville, GA

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