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Noa Strong, Dawsonville, GA (2026)

01/21/2026

Mako Bean survived her last clinic as a two year old! 🎉🎉 And her last appointment of Cycle 3!

We started the day by a surprise vomiting episode in the parking garage, but she said she was okay. Then when we got inside, somebody was spoiled immediately by chicken biscuits and a new Walrus friend from our wonderful friends from Cure and Rally Foundation!

We met an incredible new resident who was absolutely wonderful with Noa! We sincerely hope we’re on her next rounds in the ALFAC unit!

Noa’s numbers did come back wonky. Her ANC is back up to over 4000 (safety zone is 750-1500), and her liver numbers were also elevated again. Her white blood cells and her IGG also increased, which leads her care team to believe she either had a virus and had 0 symptoms (this plays into her Double Trisomy mutation) or she is in the beginning stages of having some type of illness. They sent us home to watch for fevers and any other signs of illness, but they didn’t seem overly concerned presently.

If her numbers continue to increase like this again at her next appointment, we will discuss increasing her oral chemotherapy treatments again.

Her next appointment is her second to last lumbar puncture 🎉 The finish line is in sight!!
She’ll have her LP with chemo that day, and infusion of chemo through her chest port, another 50/50 chance of an IVIG, and then we get to come home on 5 days of a steroid pulse. But she’ll only have to do this two more times!! Small wins!!!

For now, we are watching both Noa and the impending cold weather. We are doing our best to protect Noa! Daddy has to work during the middle of the storm, so it’ll be a girly pop ice retreat 🤣 We’re going to make the best of what we can do!

And once the weather passes, we will just prepare for Noa’s birthday excursion to hunt for shark teeth! She’s getting so excited!! We can’t believe we’re about to have a 3 year old! 🤯

If you happen to see a shark, say a prayer 💛 We are almost there. 💛

01/20/2026

Mako Bean has an appointment at Arthur M Blank tomorrow for bloodwork and we have a 50/50 chance of an IVIG. This will be her last appointment of Cycle 3 of Long Term Maintenance, and her last appointment before she turns 3!!!

We are praying for safe numbers and easy peasy accessing. 💛

See a Shark, Say a Prayer! 🦈💛✨

01/14/2026

Thank you to everyone who is making Noa’s birthday dreams come true!! We have raised $445 so far!

Because of your kindness, Noa is going to get to live out her dream of hunting for real shark teeth by the ocean! We are SO excited!

01/09/2026

WOW!!!

I am once again blown away by the incredible generosity that surrounds Noa!!!

In just a few days, we have raised $430 to let our brave girl live out her birthday dreams!!!

Thank you so so much to everyone who has given so far!!!

If anyone else would like to donate to her birthday wish of hunting for shark teeth, please feel free to pick a square on the tooth!!!

We can accept all gifts via Venmo, Zelle or CashApp!!

01/06/2026

Good Morning, sharky friends!!

Noa's 3rd birthday is just on the horizon! (41 days, but who is counting? 😜😜)

A lot of people have been reaching out to me and asking what they can do for Noa for her birthday.

We have asked Noa what she wants, and her dream is simple. "I want to go find real shark teethies."

We have found an incredible small company in Tybee Island that will take us out to hunt for shark teeth for Noa's birthday. We can't wait to make Noa's dream a reality.

If you would like to help contribute to Noa's dream, we have created a "Fill the Tooth" fundraiser for her. This will help cover our gas, food, and everything else we will need to make her adventure happen!

As a lot of you know, Noa spent her 2nd birthday in the hardest phase of treatment, DI. She had just lost all her hair, and was very sick on her birthday. We are trying to let Noa be a kid again and make up for lost time with a fun adventure.

Please, share this with family and friends. Help make Noa's dream come true!
We can accept through Venmo, Zelle, or CashApp. 💛

Venmo:
Zelle: 678-677-5162
CashApp: $Kmad6

If you have any questions at all, please reach out!

Thank you again so much for supporting our sharky girl. 💛 Let's make this a birthday to remember.

01/01/2026

A year ago today we got the call…

“Your daughter is finally MRD Negative. No cancer cells detected.”

So of course, we had to celebrate in our favorite place! The Aquarium!!!!

Noa got to live out her best life, going behind the scenes and meeting real marine biologists who talked to her about propagating coral. She meet Opal the Otter, and of course we had to hang out with our favorite sharks. 💛

Now before you freak out that Noa was almost 6 months into treatment before she hit remission, let me say this;
The goal with B Cell ALL is to have the kids MRD Negative at Day 29. (MRD Negative is no detectable cancer cells) If they are not MRD Negative on Day 29, they are moved into high risk protocol.
That being said, we knew from the very first bone marrow biopsy that Noa has a very rare genetic abnormality called “Double Trisomy”. Because of this genetic abnormality, she will NEVER be considered high risk. I’m not really sure why, but we are so grateful nonetheless.

We learned after her fourth bone marrow biopsy (most ALL kids only have 2-3 bone marrow biopsies) that her Double Trisomy had been holding onto dead cancer cells to learn the DNA to know how to eradicate any other leukemia cell from the inside out. This is why it took so much longer than normal for Noa to reach MRD Negative status.

Double Trisomy is so rare that not a whole lot is known about it. We’re all still learning in real time what all it contributes to Noa’s diagnosis and how it will affect her post treatment.

But today, we celebrate 2026 and our miracle girl, and all the magic she continues to bring. 💛💛
Happy Remisson Day, Noa 💛 We love you so so much!

12/31/2025

🦈💛✨

Mako Bean took on her last appointment of 2025!!

This felt like the first appointment we’ve had in months where we didn’t leave with questions and a guillotine hanging over our head going “What if….?”

Noa’s blood counts look phenomenal! Her ANC is still in the safety zone at 1500! And her liver enzymes have almost completely corrected themselves! 🎉 One is back to normal levels and the other is just slightly elevated by a couple of points!

We also decided to change her medication calendar slightly to help combat the nausea that still persists. If this change doesnt work, we will begin looking at possibly switching her weekend antibotic.

Her hemoglobin is continuing to trend down slightly, but that’s just something we’re monitoring. We don’t have to be concerned of a blood transfusion until it hits the 7’s, and yesterday it was still at 9.1

Her IGG levels came down again, but she managed to skirt by an IVIG infusion by the skin of her teeth. All that means is we have a 50/50 shot next month of needing an IVIG. We just keep on rolling.

With us going into 2026, we sat down with Noa’s lead oncologist, the incredible Dr Ryan Summers, and discussed what the reality of Noa’s end of treatment looks like. It’s crazy to think that in 9 1/2 months, this life of active treatment will be over. Noa was 16 months at diagnosis, and she’ll be almost 4 when this is said and done. At this point in her life, she has spent more of her life fighting cancer than she hasn’t.

Noa is our superhero. She’s a force to be reckoned with and cancer is the LAST thing going to stop her.

We have some decisions to make regarding her port removal and some other end of treatment formalities. Please keep us in your prayers as we navigate this decision for our baby girl. 💛

She has her next appointment January 20th, and then we prepare to celebrate our miracle girl’s 3rd birthday! 🤯 What a ride it’s been!

Thank you all for your continued support. We sincerely appreciate it. Tonight we celebrate the ending of 2025, and we welcome 2026 with loving arms.

2026 is the year of the Noa. 💛

See a Shark, Say a Prayer.

12/30/2025

Our quesadilla loving shark princess is back off to Arthur M Blank today.

Please say a prayer for Noa for good bloodwork and for a good meeting with her lead
oncologist 💛

12/25/2025

So very grateful for our community and for the people who rallied to make Noa’s Christmas so memorable!!

Merry Christmas, everyone 💛🎄

12/09/2025

❄️🎅🏼✨

Someone was very excited to see their favorite Santa this weekend 💛❄️✨🎅🏼

Thank you for another year of magic Visits from Santa 💛

And thank you Rally Foundation for Childhood Cancer Research for another incredible Christmas party!!

12/02/2025

On this beautiful Giving Tuesday, I want to provide a list of organizations that have PERSONALLY helped us. I can vouch that they are legit and get help, support and genuine kindness straight to families facing pediatric cancer.

1) Restoration Farm. Hands down, the kindest, sweetest woman and her team of volunteers. For the last year, Dani and her crew have shown up for us again and again and again, most of the time without asking. It is an incredible organization and deserves far more love and support! Dani, we adore you. 💛

2) Wish upon a starfish is an absolutely incredible organization. When we needed a break the most, they provided it and went far above and beyond anything we could’ve even dreamed for. Tom, his wife, and their team are so incredibly generous and we are forever grateful for our week with the and the friendship we now have.

3) The SebiStrong Foundation are also an incredible organization. They provide very nice wagons to children undergoing cancer treatments, along with so much more! They have become dear friends and we are so grateful for their organization.

4) The Brooklynn Miller Foundation creates the most detailed care packages that truly go above and beyond for these kids. I will never forget the joy on Noa’s face when she received her singing Asha doll and matching dress. She was so happy in a very hard time of treatment. I will forever be grateful.

5) Roc Solid Foundation builds incredible playgrounds for children, and sends hospital ready bags. Why is this so important? Because our kids need a safe place to play and regain their childhood. I am so so so incredibly grateful for Noa’s playground. She plays on it almost every single day. And we use her ready bag for every clinic visit and hospital stay.

There are so many more, but these are the top 5 that can make an immediate difference in a warrior’s life.

💛💛💛

11/28/2025

🦈💛✨

We have so much to be thankful for this year!! 🙌🏻

I apologize for the late update. I was waiting on the clinical notes on MyChart before I gave a full report.

To start, Noa got to go to her cousin’s house yesterday and enjoy all the goodness of Thanksgiving! Last year we were still quarantining, so to be able to have a semi-normal holiday was amazing. 🦃 Other than a small case of the steroid grumps, she had an absolute blast! Then we came home and got to watch our favorite “Santa Uncle Tom” on the big screen as he read a Bluey Christmas book! Then Noa decided she was too cool for Mami and Daddy, and jumped in thr car with her Lolli and Pops for a weekend campout in their living room.

✨✨NOW FOR THE MEDICAL NEWS ✨✨

Noa’s ANC has been steadily climbing for the last few months, most since her hospitalization in August. On Halloween, her ANC was 4000, which is just, way too high. A high ANC could point to many unfavorable things, the scariest being the beginning of relapse.

We are SO pleased to say her ANC has ✨COME DOWN✨ to a safe level!! As of Wednesday, her ANC is now 1240!!! God Bless Dr B and his staff for keeping our girl safe and healthy.

In addition to that, her platelets are also starting to come down, which makes our care team think that the gentic mutation she has, has finally released her platelets and is now focusing on something else. What that is? We’re not sure yet, but we’ll find out eventually.

AND! Her for the second month in a row, her IGG numbers have started to increase on their own!!! This is such a huge thing, because it means her immune system is slowly but surely strengthening on its own! We went from 490, to 512, to 526 in her last three appointments. Threshold for an IVIG infusion is 400, so it’s doing the right thing! Dr B said it’s too soon to call it, but it’s very possible Noa will never need an IVIG again!

We are so so so incredibly grateful and thankful for Noa’s amazing care team. They are truly angels on this earth. And we praise God every day for keeping our baby girl safe and saving her.

We go back December 30th for another round of bloodwork, and there’s still the possibility of an IVIG, but we might get to run away again!

We hope you all had an amazing holiday! We are truly grateful for each of you that keeps up with Noa’s journey. The first thing on our gratuity list is always “stranger on the Internet who rally behind our baby.”

We love you. Thank you.

See a shark, Say a prayer. 🦈💛✨

Noa Strong

01/21/2026

01/20/2026

01/14/2026

01/09/2026

01/06/2026

01/01/2026

12/31/2025

12/30/2025

12/25/2025

12/09/2025

12/02/2025

11/28/2025

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