ACPMP - Appendix Cancer / Pseudomyxoma Peritonei Research Foundation

03/08/2026

On International Women's Day, we honor the women impacted by appendix cancer and PMP, and those fighting for a cure.

From patients and caregivers to the researchers advancing treatment, women are driving progress in our community. Thank you for your strength and leadership.💛

Your resilience continues to transform lives.

03/05/2026

Please join Dr. Laura Lambert and team at NYU Langone Health on Thursday, March 26 at 7PM ET for a review and discussion of the recently released National Comprehensive Cancer Network (NCCN) Guidelines for appendiceal cancer, as well as the current Peritoneal Surface Malignancy Consortium Guidelines for this rare cancer.

This program will cover what the guidelines are, how they are created, how they are used, and how they compare.

If you find this topic confusing, you’re not alone. Submit your questions during registration and join us! This webinar is free & open to all.

Register: https://events.zoom.us/ev/ApL5GXBWt3-zfYT78DhF1XPC4Nhtn3L51Z0eb0jXI_rdQ75_6gtB~AhIESpUatBG6peqXhd-Og3zf08uIwsRSs5GcxgAYm3CbvKpik2DtVttjeHAnVkoSRHW-5lrp2C8RPOK_okgYgdJsXw

03/04/2026

Appendix cancer is rare. If you are living it, you know how complex it can be.

The ACPMP Patient Registry helps researchers better understand diagnosis patterns, treatment journeys, and long-term outcomes.

If you or a loved one has been diagnosed, consider joining. Your experience could help shape future breakthroughs.

https://acpmpregistry.iamrare.org/

03/03/2026

The votes are in!

Our 20th Anniversary Appendix Cancer Global Walk t-shirt design has been chosen, and we cannot wait to see our community wearing it this June.

For 20 years, this walk has funded research & educational efforts, honored loved ones, and brought patients and families together around the world.

When you register, you receive this year’s commemorative shirt and your own personal fundraising page.

Join us as we continue walking forward together.

Register here: https://secure.acpmp.org/appendixcancerwalk2026

03/02/2026

Join our friends at Abdominal Cancers Alliance on Friday, April 24th in Baltimore, MD for Living Proof: an evening of thriving, storytelling, and performance!

This new event will be an inspiring, emotional evening of performance and storytelling that showcases a shared truth: we who face these abdominal cancers can not only live longer, we can thrive. We are creating Living Proof to bring attention to the truth that we are living longer, better lives when we get to the specialized care we need!

And we're proud to partner with our friends at Guilford Hall Brewery in Baltimore to host this special new event!

📅 Friday evening, April 24, 2026
📍 Crown Hall at Guilford Hall Brewery, 1611 Guilford Ave, Baltimore, MD 21202

What to Expect:
📖 Personal stories of strength and hope
🎤 Survivor-led performances
🍽️ Dinner, drinks, and community connection
🌈 A powerful evening dedicated to changing the narrative around abdominal cancers

Join us as we celebrate and spotlight survivors' truths as the LIVING PROOF that we can thrive! 💛

🔗 Grab tickets, sponsorships, and learn more:

Join the Abdominal Cancers Alliance for this new event to raise awareness. Our mission is to save lives and improve quality of life for patients and caregivers facing rare and advanced abdominal cancers.

02/28/2026

On , we’re proud to spotlight a new CME (Continuing Medical Education) course developed in partnership with the Medical College of Wisconsin: The Neoplastic Appendix: When to Watch, When to Act, When to Refer.

The course is led by Ugwuji Maduekwe, MD, a surgical oncologist and appendix cancer specialist, and is designed to help physicians and advanced practice providers better distinguish between benign, inflammatory, and neoplastic appendiceal conditions, and understand when referral to a specialist matters most.

Whether you’re in primary care, emergency medicine, surgery, radiology, or any other medical specialty, this course provides practical, evidence-informed guidance you can apply right away.

• Free credit available
• Focused on real clinical decision-making
• Built specifically for rare appendix cancers and PMP

Register here: https://ocpe.mcw.edu/node/229093...

02/28/2026

It’s Rare Disease Day!

Today, we honor and stand with everyone affected by rare diseases, including the appendix cancer community. Rare Disease Day reminds us that behind every diagnosis is a person, a family, and a community pushing for answers.

Let’s come together to raise awareness, share knowledge, and support one another.

Learn more: https://acpmp.org/event/rare-disease-day-2026/

Rare Disease Day National Organization for Rare Disorders, Inc. (NORD)

02/27/2026

Tomorrow, Feb 28th will once again mark Rare Disease Day, a global campaign celebrated on the last day of February each year (the rarest day on the calendar) to raise awareness about the more than 7,000 rare diseases – including appendix cancer and pseudomyxoma peritonei (PMP).

Learn more: https://acpmp.org/event/rare-disease-day-2026/

02/26/2026

🎗️August is recognized as Appendix Cancer Awareness Month. In recognition of our associate, Richard Thoma, VP of Regional Sales, we have donated to the ACPMP Research Foundation.

02/26/2026

Today is the day! 🔬

Join us at 7 PM EST for a deep dive into the DECISIVE Study's 1-year findings and a look ahead to what comes next for the DECISIVE team as they work to build decision aids and resources for individuals and their loved ones considering cytoreductive surgery and the clinicians caring for them.

This is a unique opportunity to hear the latest research directly from the team and get your questions answered during our live Q&A.

💻 Register: https://events.zoom.us/ev/ApVvu41z6PNLXtaab4pBIr08TtsXwGk2jflk5knO60eFoA5CRFFf~AudZRYn2R778AUvQYeiNagOH16Mw26Mk4TcP6DHJmW1riAqd4eF01VWQTg

02/25/2026

🔬 DECISIVE Study Webinar – Free & Open to All

Hear the 1-year findings from the DECISIVE study, exploring the decision-making experiences with individuals with PMP and their caregivers considering cytoreductive surgery.

🗓 February 26 | 7 PM EST
💻 Register: https://events.zoom.us/ev/ApVvu41z6PNLXtaab4pBIr08TtsXwGk2jflk5knO60eFoA5CRFFf~AudZRYn2R778AUvQYeiNagOH16Mw26Mk4TcP6DHJmW1riAqd4eF01VWQTg

02/24/2026

"Scanxiety” is a word many people living with cancer already understand.

It describes the anxiety and uncertainty that can come before, during, and after scans, especially while waiting for results.

A recent study found that over 70% of patients experience scanxiety at clinically significant levels.

If this is something you’ve experienced, you’re not alone.

Read the article to learn more including practical tips for reducing scanxiety:

A new study finds many cancer patients experience high “scanxiety,” meaning distress before and after scans for recurrence or spread. About 70% reported clinically significant levels, prompting a question: when it’s this common, is it abnormal or expected?