05/21/2026
Update** (look at me doing an update after scans).
Had a great Clinic visit after Ian’s scan today. All of the results were back in time too, so we could talk about them. That never happens.
Overall Ian's health update from scans:
✔️Chest shows some irritation, but that is common in scans for those who have been put under anesthesia a lot. We commonly see this.
✔️Liver lesions: overall common with all that Ian has been through. No new lesions detected other than what has been found in his previous scans. Not effecting his liver functions or any other issues.
✔️ Natera blood drawn to send for solid mass tumor early detection study. If they couldn't complete the test (like last time), it's on them, not us cause they were able to get big beautiful collections from his IV.
✔️Ian’s RBC and Platelets are still abnormally low, but thats common after treatment plus the fact that Ian's 3x BMTs are still trying to catch up, even after 2 years ago. He's still in his "normal range" and at least not going down, just very slightly up.
✔️unexpected good news: So ever since OSF upgraded the MRI imaging, they've always commented on tumor tissue left over by his iliac vessels. We really haven't been following that, except that it's there, hasn't grown, and no uptake. It reads like this:
"Peritoneum/retroperitoneum: Partially cystic lesion adjacent to the right common iliac vessels demonstrating an internal fluid fluid level is slightly decreased in size from prior. It measures 1.5 x 0.9 x 1.8 cm (3/35, 4/19), previously 1.9 x 1.2 x 1.8 cm 1.8 x 1.2 x 1.1 cm. This lesion does not exhibit restricted diffusion or enhancement. Small volume pelvic free fluid." So the fact that it has actually gotten smaller in the last 3 months is pretty cool.
Plus just had an amazing talked with Ian's Primary Oncologist who was in clinic today. Once again went over everything: scans, looking ahead, and also we are halfway through his first year of scans after treatment. Plus I got to thank her again for everything she has done for Ian and our family. I felt terrible I didn't talk with her at the bell ringing celebration. Tears were shed, sometimes the emotions just hit you when you least expect it.
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MRI scans today with sedation. PET/CT a few weeks ago went well and nothing too concerning showed up.
Going to clinic later today, hopfully to go over scans if they are done in time.
He seems to have these spots show up in his liver, but apparently they aren't concerning. It will be interesting to see if they ever get big enough or enough spots to be concerned with his liver activity. I wounder if it's from all the trauma his liver went through treatment and filtering out so many things like dead tumor tissue, fluid from all the ascites, and then chemo/rescue meds.
I'll try to update everyone if we get to talk to the Dr with scan results being back. Or if we go on like normal: no news is good news.
We have clinic at 2pm today 🥴 so we are trying to stay busy in the cafeteria with work books. By this pace, Ian will be done with all 3 by noon. Send help....lol
