Gabes Sanfilippo Journey #MPSIIIa

04/24/2025

https://thesupermom.org/2025/ashton-baird

Hi there. I'm Ashton, I'm a mom of two boys. My 9 year old, Gabe, has a rare genetic condition called Sanfilippo syndrome type A. And my 8 year old has some mental health struggles after my mom suddenly passed away in 2021.. I have joined a contest to try and win to help us get a wheelchair accessible van and to raise awareness for sanfilippo syndrome.

I'm in 3rd place for the super mom contest so far!!! Tonight is the top 15 cut... and 2x for your vote which is free... and I want to thank everyone who has been voting ❤️. I appreciate it so much. We're getting so close to the end.... I've never been to California so the trip to Napa valley, would be so exciting and I can take my best friend with me... we would get to enjoy some beautiful places together....I don't know the last time I got any time to be myself... so that would be amazing And I would get $$ 20k so I would get a wheelchair accessible van since it's getting harder to get Gabe in and out of the car.

Hi I'm Ashton, My 9 Year Old Has A Rare Genetic Condition Called Sanfilippo Syndrome And My 8 Year Old Has ADHD. I'm His Full Time Caregiver

05/02/2023

Here's photo dumb number 1. These will all be between home and several different stays. The first two show how much he has lost since February. He started having seizures in January our first long hospital stay, he got cdiff in February so another stay, he got cdiff again but we stayed home.... And now we just got back from a 5 day stay for an illius.
I'll write more about those stays when I can. But he's home now... We're tired.
Love you all

05/02/2023

Please share 🙏
Donations are appreciated!!

Hi I'm Ashton. My son Gabe is 7 with Sanfilippo type A or MPS 3a. It's a neurol… Ashton Baird needs your support for Help with a reliable van for medical apts