Small kids fight hard with Chiari, Pots and EDS

Small kids fight hard with Chiari, Pots and EDS Raising a kid with Chiari, Pots and Eds

08/01/2021

Isabella will be going for her Yearly MRI. This month. I hope everything is stable. We have seen an increase in headaches.

Isabella health has turned another Corner. She was admitted in the hospital for Sinus Bradycardia with Syncope. She has ...
12/07/2020

Isabella health has turned another Corner. She was admitted in the hospital for Sinus Bradycardia with Syncope. She has now suffer from bradycardia heart rate less than
50’s instead of usually tachycardia heart rate in 140’s-160’s. Prayers we can figure this out.

This is week has been a little scary and for Isabella was seen in terrible shape and admitted to the hospital. Now, she ...
12/07/2020

This is week has been a little scary and for Isabella was seen in terrible shape and admitted to the hospital. Now, she is suffering from Sinus Bradycardia with Syncope instead of tachycardia and it took two days to hydrate her. She always symptomatic sever lethargic, pale clammy skin. An occasional cough.

She was doing so well and then the vomiting started this morning. We are praying this is not a Pots flare. We hope no Ho...
02/22/2020

She was doing so well and then the vomiting started this morning. We are praying this is not a Pots flare. We hope no Hospital visits while we are here.

Knowing is everything
01/29/2020

Knowing is everything

01/24/2020

Prayers for Isabella today. School called to pick her up. She has been doing so well. Guess it is time.

My hopes for her is she never let’s Chiari, EDS or Pots hold her back.
01/18/2020

My hopes for her is she never let’s Chiari, EDS or Pots hold her back.

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Dillon, SC

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