Do It For Delanie

Do It For Delanie Delanie was diagnosed with Spinal Muscular Atrophy Type 1 (SMA) at 11 weeks old in August of 2019.

01/06/2026

1/5/2026

Delanie was discharged home late this afternoon. To allow her to recover, we will be switching her to homebound for school. Her poor lungs have been so sick, and she needs time to clear out the pneumonia completely before we risk any more illnesses. She’s still needing respiratory treatments every four hours and will need time to wean off 24/7 bipap support and oxygen. She will also have to build up her stamina to get back up in her wheelchair after being bedridden for nearly a month.

Continue to pray for complete healing for Delanie and that our home can catch a break from the constant sickness.

1/4/2026Delanie was moved from PICU to the floor today. She’s still having a hard time clearing the congestion, cough, a...
01/04/2026

1/4/2026

Delanie was moved from PICU to the floor today. She’s still having a hard time clearing the congestion, cough, and pneumonia. We are trying some different things with her pulmonary care to see if we can help clear it. She still hasn’t been able to come off supplemental oxygen so we are continuing on IV antibiotics. We will meet with her pulmonologist tomorrow for next steps.

For the first time in days, our sweet girl is having moments of feeling like herself again! We have seen that toothless grin today; it has been so good for our souls! Ma & Pa brought Wesley by this afternoon too. We have missed him so much!

1/3/2026Delanie has finally been able to come down on her oxygen support today, but unfortunately she still has not felt...
01/03/2026

1/3/2026

Delanie has finally been able to come down on her oxygen support today, but unfortunately she still has not felt much better. She is also having unexplained vomiting episodes. This admission has had so many curve balls.

They moved us to a new room today so we would have more space. We are hoping that in the next few days she perks up, and we can work towards goals for discharge. As always, we are on Delanie’s time.

01/02/2026

1/2/2026

Delanie had a rough night and required increased oxygen support. It’s carried over to a very up and down day. She has been very agitated and miserable. 😞 We hope sure gets relief soon. We miss her personality something awful.

Delanie’s had a stable day. No big steps forward, but no steps back either. She’s still needing continual respiratory su...
01/02/2026

Delanie’s had a stable day. No big steps forward, but no steps back either. She’s still needing continual respiratory support and oxygen, but not any more than she came in on last night.

I have finally been fever free for long enough to safely be with her bedside. We are hoping tomorrow is a day of progress. It’s been almost 3 weeks since we have seen her feel 100% like herself.

01/01/2026

Delanie’s waiting to be admitted to PICU for Human Metapneumovirus and worsening pneumonia in her right lung. Willie and her Granna are with her as I try to get over Flu A before I can safely be by her side.

This is not how we wanted to ring in the new year. 😩

12/21/2025

We are home. 🏡

Delanie was discharged this afternoon to continue her treatments at home. We will work towards getting her off her bipap in the coming days. She’s very happy to sleep in her own bed tonight.

Say a special prayer for the families still spending the holidays in the hospital. There are so many that are sick right now.

Delanie was able to come off supplemental oxygen a couple of hours ago!🎉 That’s a huge step in heading home, but the per...
12/21/2025

Delanie was able to come off supplemental oxygen a couple of hours ago!🎉 That’s a huge step in heading home, but the persistent cough will be the true test tonight. Pray that she can continue to hold her own on her bipap with the relentless coughing. That’s our biggest concern right now!

She’s been fever free for most of the day and her chest Xray is improved compared to yesterday. All great things towards her feeling more like herself!

Pray for her cough and no setbacks tonight!

Delanie’s had a good, stable day. We were able to lower some of her supplemental oxygen and she has gotten her personali...
12/19/2025

Delanie’s had a good, stable day. We were able to lower some of her supplemental oxygen and she has gotten her personality back sporadically today. She’s still fighting off fevers and coughing fits, but it’s been a small improvement from yesterday. She’s working hard towards getting home in time for Santa.

Mrs. Moore stopped by and delivered Delanie all of her Christmas goodies from school 🎄🎅🏼 She has enjoyed looking through the cards and gifts from her classmates. We are so thankful she has such a thoughtful teacher and friends this year! ❤️

Delanie was admitted to PICU a couple of hours ago. 😞Last night, Delanie had a vomiting episode in which she aspirated. ...
12/18/2025

Delanie was admitted to PICU a couple of hours ago. 😞

Last night, Delanie had a vomiting episode in which she aspirated. We maxed out respiratory support we could give at home and made it to the ER shortly after midnight. Between the aspirated pneumonia and testing positive for parainfluenza, she’s miserable and we need the extra hands to care for her. As always, she being spoiled and cared for by the very best.

Every admission sucks, but this time of year just stings more. Praying our girl is happy and healthy soon.

12/17/2025

Delanie has unfortunately come down with a respiratory infection. She’s been bipap dependent all day and requiring supplemental oxygen. We were able to get in with her pulmonologist and start an antibiotic today. We are hoping that will allow her to fight this off without an admission to PICU in the coming days.

Once again, Delanie missed out on her school Christmas party. 😞 We hate that she misses out on so much, but we are praying that she will be able to celebrate Christmas at home. This time of year is so hard.

Spinal rods lengthened ✅AFOs adjusted ✅Great report in Atlanta today! 8 months post-op from her second set of spinal rod...
11/11/2025

Spinal rods lengthened ✅
AFOs adjusted ✅

Great report in Atlanta today! 8 months post-op from her second set of spinal rods and thriving!

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Dunlap, TN

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