JRob’s NICU Journey and Beyond

JRob’s NICU Journey and Beyond Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from JRob’s NICU Journey and Beyond, Medical and health, Ennice, NC.

Born at 23w5d on 04/26/25, JRob fought through 129 days in Brenner’s NICU and came home on 9/2/25. 💙 Our goal is to share his journey, spread hope, and raise awareness about prematurity, which impacts 1 in 10 babies.

This one hits close to home 🥹💙 JRob is rooting for Derick Hall ( #58) — not just the Seahawks, but a fellow 23-week pre...
02/08/2026

This one hits close to home 🥹💙

JRob is rooting for Derick Hall ( #58) — not just the Seahawks, but a fellow 23-week preemie who turned his NICU fight into purpose by supporting other preemie families with his One Percent Foundation.

From isolette to Super Bowl dreams… never underestimate how far these little warriors can go. 🏈👶💚

02/04/2026

The squeaky wheel gets oiled. 🛞🍼

I sent a very strongly worded email to the director over the entire WIC program in NC explaining why formula allotments should be different for premature infants like JRob who require higher-calorie formula mixes.

That email led to two phone calls.

First, I heard from the lead nutritionist. She explained I could opt out of solid food benefits to receive one extra can of formula per month, but that USDA sets the overall allotments, so policy concerns would have to be taken up with them. Still—she made sure I got that extra can.

Then, about 15 minutes later, I received a call from my district’s WIC director. He personally reached out to JRob’s pediatrician and asked her to write a specific medical note requesting extra cans and clearly explaining the medical necessity—rather than the generic WIC prescription that usually just lists the formula type and any specific instructions your doctor has. Thats typically where they put his calorie requirements in prior.

That note made all the difference.

➡️ We were approved for FOUR extra cans per month.

➡️ He also secured a supplemental allotment of 4 cans early, since JRob had to switch formulas before my benefits renewed.

I truly cannot say enough good things about Drew, the Appalachian District WIC Director. He has gone above and beyond for us—not just now, but even early on when we were dealing with breast pump issues after JRob was born. He’s a former NICU parent himself, and that lived experience shows. He understands this struggle firsthand.

This is your reminder: advocate loudly. Ask questions. Push back. Sometimes the system can bend—especially when someone on the other side truly cares. 💙

✨ Only 8 days until this mama’s birthday ✨Every year Facebook asks what organization or fundraiser I’d like to support f...
02/04/2026

✨ Only 8 days until this mama’s birthday ✨

Every year Facebook asks what organization or fundraiser I’d like to support for my birthday. This year, my choice isn’t one Facebook offers — because it’s a cause that’s incredibly close to our hearts and one we’ve created ourselves.

In honor of my birthday, I would be so grateful if friends and family would consider donating art & craft supplies to Brenner Children’s Hospital NICU. These supplies help NICU nurses create keepsakes for families during one of the hardest journeys no one ever expects to face. Those tiny handprints, footprints, and memories mean more than words can describe.

We’re collecting supplies now through May 2nd (JRob’s birthday party), and then we’ll be delivering everything to the NICU at Brenner’s in Winston-Salem.

I’ve created an Amazon wishlist with needed items, and for anyone who prefers, donations can also be sent via

💚 Cash App: $AMWilliams99
💚 Venmo: amwilliams99

Anything — big or small — is beyond appreciated. Thank you for helping us turn my birthday into something that brings comfort, love, and hope to NICU families. 🤍🫶

Check out this Gift List I created. https://www.amazon.com/registries/gl/guest-view/2UC6EW3H16E92?ref_=cm_sw_r_apin_ggr-subnav-share_4CVWHP4RQ088VB44J00C&language=en-US

I seen another page post a version of this regarding miscarriage and I felt like it could fit Nicu life too and be relat...
02/03/2026

I seen another page post a version of this regarding miscarriage and I felt like it could fit Nicu life too and be relatable for some mamas 💗

Everyone was so involved in the pregnancy.
So many messages.
So much excitement.
So many plans for baby showers, visits, and photos.
Then the baby was born early and went to the NICU.
And suddenly… a lot of people went quiet.
Some didn’t know what to say, so they didn’t say anything at all.
They disappeared.
No calls.
No texts.
No check-ins.
No “how’s the baby today?”
No “how are you holding up?”
Just silence.
And that silence was brutal.
Because no one was asking for the perfect words.
No one was asking for medical answers.
No one was asking to be fixed.
All that was needed was someone to stay.
To show up.
To say, “I don’t know what to say, but I’m here.”
Instead, the NICU journey made people uncomfortable.
It was treated like something fragile.
Like if it wasn’t mentioned, it would hurt less.
But having a baby in the NICU is isolating enough without everyone going ghost.
The NICU changes you.
But the silence changes how you see people.
Not out of anger.
Just out of clarity.
Because you never forget who disappeared
when your baby was fighting to survive.

©️ JRob’s NICU Journey & Beyond

Similac NeoSure for Sale 🍼• 13 oz cans• $15 each• 13 cans totalExpiration dates:• 2 cans – Oct 2027• 1 can – Aug 2027• 1...
02/03/2026

Similac NeoSure for Sale 🍼
• 13 oz cans
• $15 each
• 13 cans total

Expiration dates:
• 2 cans – Oct 2027
• 1 can – Aug 2027
• 10 cans – Dec 2027

All cans are unopened and were purchased at Jonesville Food Lion (Dec 2025, mostly Jan 2026). Stored properly at room temperature in a pantry using a first-in, first-out method.

Some cans have Sharpie markings on the lid only so I could track purchase order — no damage to the cans.

📍 Pickup or delivery available in:
Alleghany County • Yadkinville • Elkin • Jonesville

📦 Willing to ship if buyer covers shipping cost.

My son recently switched to Similac Sensitive, so I’m selling these to build his new stockpile. Open to trading for Similac Sensitive as well.

💰 Retail price is $33–$35 per can at Food Lion & Walmart — priced to help another family out.

Comment or message me if interested! 💙

02/03/2026

I’ve realized over time that WIC is not a very preemie-supportive program.

Preemie babies receive the same formula allotment as full-term babies, even though many require higher-calorie formula just to stay on track with growth—often meaning we have to use nearly double the amount of formula just for mixing.

On top of that, I also had issues getting a proper breast pump through WIC. I ended up having to pay out of pocket for the correct pump program/card I needed. Thankfully, we were able to cover that cost through donations while JRob was in the NICU—something not every family has access to.

I am truly grateful for the help WIC does provide. This isn’t meant to complain, but to bring awareness. There are families who rely completely on WIC, and no one chooses to have a premature baby. Preemies have different needs, and support systems should reflect that reality.

Formula example:
Similac sensitive regular mix instructions-
2oz water to 1 scoop formula

JRob’s 28cal required mix instructions-
4oz water to 3 scoops formula

Food for thought 🤍

Egg strips were a hit this morning! Highly recommend the solid starts app for food ideas and how to serve it to specific...
02/01/2026

Egg strips were a hit this morning! Highly recommend the solid starts app for food ideas and how to serve it to specific age ranges. 3 high allergen foods down so far out of 9 with no issues so far ❤️

Mamas chili is JRob approved! Blended with sour cream of course ❤️ this boy was built for baby led weaning he hates baby...
02/01/2026

Mamas chili is JRob approved! Blended with sour cream of course ❤️ this boy was built for baby led weaning he hates baby food 🤣

Snow baby ❄️💙 ft JRob’s First snow angel
01/31/2026

Snow baby ❄️💙 ft JRob’s First snow angel

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Ennice, NC

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