08/20/2025
I never got around to posting yesterday, we were exhausted when we finally got home! Mav is doing good! They went ahead and ordered a CT yesterday of his head and neck region to see what’s going on & what is causing the swelling. The CT showed fluid buildup in his right ear. The reason being, his PE tube is side ways in that ear, so it can’t drain the fluid properly. Next Tuesday he is scheduled to have his PE tube replaced, so all that fluid will make its way out! We were SO relieved & thankful that it wasn’t tumor related! His tumor is still itty bitty, just how we’d like for it to stay! As far as his ANC staying down, that’s still a mystery. We’ve stopped weekly antibiotics & appetite stimulants to see if that will help his levels boost back up. If they’re not back up next week, they’re talking about doing a bone marrow biopsy like they did when he first got diagnosed. So we would appreciate prayers for his levels to come back up on their own so we don’t even have to worry about having that procedure done!
Thank you all for continuously praying and checking on our boy! Yall will never know just how grateful we are! 💙
He is small & he is mighty! He is ! 🤍
