Prayers for Kevin Scott on his Journey

Prayers for Kevin Scott on his Journey was born at 24 weeks with Scimitar Syndrome. We have created this page to keep everyone updated on ways to help us and how to pray for Kev.

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05/20/2024

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One deserving woman will take the title as the Super Mom. The winner will receive $20,000, a two-page spread in Woman's World magazine, and a weekend getaway in Palm Springs, California. Will you take the SuperMom crown?

Friends I ask that you please be praying for sweet Lav and her whole family! Lavi is on day 5 of RSV. It is so incredibl...
08/29/2021

Friends I ask that you please be praying for sweet Lav and her whole family! Lavi is on day 5 of RSV. It is so incredibly hard to see our babies sick but it is so much harder when they have done so well for so long. Lav has been off her vent for a year and now this nasty virus has her back on the vent and oxygen. Pray she heals quickly and this virus leaves her, pray for her family as they have to be separated at this time due to COVID restrictions.

The moment she was born my life changed forever. I couldn’t have dreamt up a more perfect child. She’s truly an angel on earth. My forever baby. Please join me in setting your alarm for 11:24 am and praying for Lavender everyday until she is healed.

Lord Jesus, we ask you to clear Lavender’s lungs. Please take this virus out of her body, God. Lord we ask that you control her temperature and remove her fever and help her to get comfortable. Please allow her body to accept nutrition and give her energy. Jesus, this virus is strong but YOU are stronger. You have trusted me to take care of her and it is my greatest joy, but now I need you God. Please heal her of this virus. In Jesus name, Amen.

08/27/2021

I am just going to start by being honest. I have been struggling lately….isolation is hard! That is why I have decided to start sharing our story again from the beginning and sharing it all. I sit at home with Kevin during the week and our story plays on a loop from the beginning. I am hoping that getting it out and sharing this again, raw and unfiltered,will help me process.

November 7, 2014 I married the love of my life and we knew we wanted to start a family right away. We had boy and girl names picked and we couldn’t wait to start the rest of our lives. Two days after Christmas that year we got the best news! We were pregnant, went to the doctor and I was 3 weeks. I had a very easy start to my pregnancy, not much morning sickness and still had a good amount of energy. At my 20 week anatomy scan we learned that I had a single umbilical artery and that could possibly cause some growth restriction but nothing to be too concerned about, additionally our baby had a multi cystic kidney that would not function. Again, I wasn’t too concerned, my mom had a kidney removed and I knew it wasn’t that big of a deal to only have one functioning kidney. We did not get to find out the gender at this time because little man wouldn’t cooperate. We decided to go to a private ultrasound clinic to find out gender rather waiting for another appointment with my doc. I want to say it was around 22 weeks that we had our appointment to find out gender. We did the big gender reveal and announced that our baby boy’s name would be Kevin Scott. Kevin for Dave’s dad and Scott is Dave’s middle name.

The weekend of May 16th, 2015 I had a big deployment that I was in charge of for the company I worked for at the time. It was extremely stressful and I ended up working on it most of the day Sunday the 17th. Monday morning I went into work earlier than normal to make sure everything went off without a hitch. I had a terrible headache that started on Sunday and just would not go away. I ended up leaving work early. That evening we went over to Dave’s parent’s because I still had a bad headache and we took my blood pressure and it was pretty elevated. We talked with my doctor who upped my blood pressure medicine, and we talked about just waiting it out to see if the higher dose would work, but ultimately decided to go into the hospital. We went to St. Joe’s in St. Charles and they took me straight up to OB because I was 24 weeks and would have to be monitored. After tests showed that I had protein in my urine it was determined that I had superimposed preeclampsia. I spent the next few days in the hospital and my blood pressure was under control. They were trying to decide if they should send me home on bed rest or send me to St. Mary’s and let them assess me and make the decision now that I was high risk and would eventually deliver there. So on Thursday the decision was made to transport me to St. Mary’s and let them assess me. (Side note I went to high school with the paramedic that transported me and it was a bit awkward and embarrassing.) On the ambulance ride to St Mary’s my BP spiked again but they thought maybe it was just the excitement and anxiety of being moved. I got to St. Mary’s they got me all settled and my BP wasn’t coming down. They transferred me to a more severe part of the floor and got me on a magnesium drip (horrible experience by the way for anyone that has been on magnesium you know!). Friday they continued to monitor me and things were somewhat stable until I felt this extreme warmth and a small gush. I looked down and there was blood all over my sheet. Dave quickly got the nurse and they called the docs who came to do an ultrasound. It was the start of a placental abruption, but I was still considered stable at this point. I called my mom who lives in Florida and told her what was going on, my cousin was able to get her a flight right away. Dave and I were sitting in my room with my in-laws chatting and I calmly asked them to leave and asked if Dave would please get a nurse. The nurse comes in and I tell her “I am sorry but think I am bleeding again”. She rushes over, starts to clean me up, and I just keep apologizing which she promptly tells me to stop and next time to scream for everyone to get out and stop being so polite, lol. The docs come back for another ultrasound and they think I am still stable enough. Saturday May 23rd Kevin started showing signs of distress and the doctors made the decision we should move forward with a C-section while he and I were still stable. While they prepared for my C-section they sent in a Neonatologist to talk with us. I was not prepared for everything we were about to hear. How there was only a 50/50 chance he would survive delivery, the likely-hood he would have brain bleeds and severe developmental delays, the months he would need to stay in the NICU, and the roller coaster ride we were about to get on. In all of this, the most deafening thought in my head was why was I failing; failing to carry my baby to term, failing to protect him, failing to do what so many other women could do effortlessly and beautifully.

08/25/2021

So I have decided to try committing to posting 3 times a week. What I need from you all is what you want to know and see. Do you want me to walk your through Kev’s journey from the beginning once a week until we get caught up and current life the other two days or the opposite, 2 days of his journey and 1 day of current life? Let me know!

08/07/2020

Saturday, August 8 is ! That means that every online order of your favorite Panda Express meal helps change kids’ health and change the future – for all of us. Use the promo code PandaCaresDay to contribute to our hospital.

06/20/2020

💥💥💥Firework Raffle💥💥💥

This year Smiles With Love has had to think outside of the box due to events being cancelled. Thanks to the support and ideas of those who lovingly surround us, we have been blessed with the opportunity to raise money for ‘The Super Alév ’ and his family, while giving you an opportunity to make your 4th of July brighter!

Rules of the raffle:
-Every $5 donation gives you one entry into the raffle
-Four different raffles will be done, more entries provides you more opportunities to win all four prizes
-Donations must be made through either PayPal or Venmo:
* PayPal: smileswithlove@gmail.com
* Venmo:
-When making your donation please add a note with your first name, last name and phone number
-Drawing will be done on Wednesday July 2nd @ 6:00pm live on page
-Winner will he called right after the drawing and a date and time for pick-up on Friday July 3rd will be made.
-Multiple entries means you do have the opportunity to win all four raffles
-Any questions regarding the raffles can be directed to on Facebook messenger

Information about “The Super Kev” and his family can be viewed on Smile With Love page and on posts under this event.

100% of all profits from this raffle will be donated to Kevin and his family. Let’s join together as a community and support a local family this 4th of July!

💥💥💥The Super Kev💥💥💥
Smiles With Love All-Star

Kevin Scott aka The Super Kev was born at 24 weeks weighing just 1lb 4oz. While being this premature was enough of a battle Kevin had several other challenges to face as well. He was born with a congenital heart defect known as Tetralogy of Fallot as well as Scimitar Syndrome. He also faced chronic lung disease, pulmonary hypertension and being blind in his left eye due to prematurity. Kevin spent the first two years of his life at Cardinal Glennon and then on to Ranken Jordan for 6 months before coming home for the first time with a trach, ventilator, oxygen and gtube.

Kevin is 5 now and has been home for 2 and a half years. He is thriving and growing so much. We have ditched the oxygen and ventilator and we are working towards the trach coming out. Kevin still has his gtube but he is now eating and drinking everything by mouth. Kevin absolutely loves books and learning. He picks things up so quickly. He is currently non verbal and does not use sign language either so he finds ways to communicate to us what he needs or wants. We are hoping to work towards using a communication for now.

06/09/2020

We are excited to share with you our 2020 Ambassadors for Children's Miracle Network Hospitals of Greater St. Louis! Faith, Willa and Kevin are all rock stars here at and we are so happy for them to be part of the important work that CMN is doing on behalf of children here in St. Louis!

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Florissant, MO

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